Continuation of 'Penis hard when flaccid' thread...

[frenchiman]

Hey guys. I've been suffering from a similar problem as most of you. Most days penis is smaller and hard when flaccid, lowered sex drive, can't get full erections in this state like I used to, rarely get morning wood, when erect penis it's so stiff that you cannot bend it left and right slightly, and so on. In my case however all this goes away after I don't masturbate or have sex for about 5 days. Then upon ejaculation the 'hard flaccid penis' comes back to haunt me.

For me this started 6 months ago after one night when I had done ecstacy. I've found at least 3 other people on the internet with the exact same problem that started after a night on ecstasy. I've done countless research online and went through every forum with people who report 'hard flaccid penis'. A lot of us share the same symptoms which leads me to believe that the problem derives from one source, be it poor circulation, nerve damage, or imbalanced hormones, but yet nobody has made the connection.  

I too suffer from a back injury as some others, but I definitely ruled out the theory that this is caused by spine problems. My back pains come and go, but the penis problem is uncorrelated. In my particular case I am convinced that this was brought by ecstacy becasue others have reported the exact same symptoms and timing. This could mean that E either messed up my serotonin levels, or messed up my circulation somehow. Heat does help 'soften' up my flaccid penis somewhat as others have mentioned. Also there is a possbility that I, as well as many of you, have some form of prostatitis. We need to go get that checked out. If that is the case than the good news is that it is treatable.

So I've narrowed it down to three possibilities for my case:
- Prostatitis
- Unbalanced circulation or hormone levels caused by the MDMA
- some weird STD (I've had unprotected sex numerous times, but this option is very unlikely as it started the morning after I have done mdma).

I am going to get checked out next week and I will post my findings.
In the case that this is due to some circulation problems amongst most of us, from my research I recommend you all to start taking Omega-3 fish oils and L'arginine ethyl ester (helps increase and improve blood flow) on a daily basis. Further look into Ginko Biloba, but I'm unsure about the effectiveness of this. Also wrap a hot towel around your penis once a day.
If this is due to hormonal imbalances, such as serotonin levels in my case, then the key is a balanced diet, a multi-vitamin, sunshine, physical exercise and give your penis a lot of rest. Perhaps try to go for weeks without sex if possible.

I have just started applying all of this for myself. I'm going to a doctor next week and will post my results. Whoever has valid imput or knows a thing or two around medicine and neuroscience please share! We are going to get through this with doctors or without!


This discussion is related to Penis hard even in flaccid state.

[sdkwufc]

Hi guys. I'm currently doing some PE exercises and I've got scared, really scared. I've been doing them for a month and a half and I've been getting good errections etc, but I'm thinking to decrease them to a minimum.
I'm really compassionate about all of you and I support your research. Couple of years ago, when I was feeling exhausted from a lot of mastrubation (5 times a day) I wasn't getting good errections and a doctor prescribed me some pils, that most of you won't be able to get (I live in Eastern Europe). Those pills have me extremely good erections ! I swear I just fel amazing. And they were a food suppliment, not something for temporary effect like cialis or viagra. Here's what they contained. I think you guys should try combining those in the same quantities, if may have a positive effect : 250mg L-Arginine, 50mg (10% extract) Yohimbe, Ginseng powder 150mg and 150mg Tribulus terrestris.
You should try it, it's all natural substances and maybe combine it with vitamin E, at least that's what my doctor said.
I REPEAT - I didn't have the same problem, but it helped me with my libido drop and improved blood circulation and erection quality.

Good luck to all you guys and please post results if you have improvement or not !

[SearchForTheCure]

Had to break my last post into two parts... here's the rest.

This letter to the doctors is just a draft - we would have to revise the email before we send it out. I haven't even spell-checked it... just wrote it on the fly.

Step 3 would be for all of us to scour the internet and find email addresses of doctors we think could be of help. The names would come from abstracts, books, on-line research for urology departments, medical schools, research hospitals, etc. We would come up with a list/spreadsheet of all of these doctors.

Step 4 would be for me to email each of the doctors, and include the spreadsheet of our group. I would then follow up with the doctors, and report back to all of you.

Step 5 (hopefully) would be for some or all of us to go and be seen by the doctors who respond that they are willing to help.

That's it for now. Let me know what you all think. I am willing to share email addresses if anyone would like to start working on this. Peace to all of you. I know this is a horrific, unbelievable torture, which is made worse by the fact that we have to suffer in silence. Please let's all try to stay positive and hope that we can find some relief.   FYI I have posted this on another thread as well.

[SearchForTheCure]

Gentlemen -

I tried to keep this brief, but it turned out to be long. In an effort to keep it short, I am not mentioning specifics about my "hard flaccid" nightmare. Just let me say that I am 17 months into it, and I have experienced all of the same things you have. My heart goes out to each and every one of you because I know how difficult this is.

I have been watching this thread (and other threads) for 17 months. I decided I would not add any posts until I have solved the problem and come up with a cure. Unfortunately, I have not found a cure, despite extensive efforts. Like many of you, I have seen many urologists. I have undergone many tests and have tried a variety of "treatments," without success. But today I had an idea and thought I would share it with you. This is not a "medical idea" about some kind of treatment (I can share those with you another time). Rather, it is a proposed plan that we can put into action to try and find a cure.

Here's the background. Many of you have written about being frustrated by your doctors' indifference - which I have experienced first hand. At first I was resentful of the doctor(s), but then I realized that if the doctor knew what was going on and thought he or she could help, he or she would probably help. Because the doctor(s) have not been able to provide a cure, that must mean that 1) the doctors are most likely perplexed because this is an odd situation and they simply don't know what to do, 2) the doctor has probably tried their best and is unable to help, and 3) the doctor is unwilling to perform hours of research into the problem to try and find the cure, most likely because this is such a "rare" condition and the doctor figures they will probably never see this condition again (i.e., there is no money in it for the doctor, and they otherwise have no motivation to go the extra mile to help us). We can't change #1, #2 or #3 about our present doctors. But I think that if we band together, we can find a doctor where #3 won't be a problem.

I am hopeful that somewhere out there, there is a doctor or a facility that has the time, money, and motivation to tackle this problem. Sorry to use the lame comparison to a t.v. show, but I am thinking there is a "House" out there somewhere - we just haven't found them yet. This probably will not happen in private practice, as we are a "money loser" for any doctor who is trying to treat just one of us. But, consider an academic setting, such as medical school campuses (Johns Hopkins) - where doctors are actively performing research and who have medical students at their disposal. Or something like the world-famous Mayo Clinic, that boasts it has thousands of researchers. In addition, there are many urological journals out there, filled with the names and email addresses of doctors who are interested in performing research and publishing their findings, performing cutting edge medicine, etc. In researching this problem, I have spent many, many hours reading abstracts from medical journals, reading medical texts on-line, etc. The names and email addresses of these doctors are out there. But, if we approach the doctors individually, we are unlikely to get anywhere (as above, the doctors will not be motiviated, and may think it is just in our heads).

So here's my plan, which will require efforts by all of us. Step 1 is that we create a spreadsheet of our conditions. This would include our "code names" (i.e., absolutely no real names used), ages, duration of problem, any suspected trigger of the problem, current endocrinology findings (if any), tests performed, etc. We will have to come up with the spreadsheet categories, as a group. Then, the more of us that are willing to contribute to be included on the list, the better.

Step 2 is that we write an email/letter to be sent to the doctors. It will be much more detailed, but would be along the lines of:

Dear Dr. [X], I am writing to you on behalf of a large number of men who are all suffering from the same medical condition, as discussed in more detail below. Despite our individual efforts, we have been unable to find a cure for our problem. I have read your [book/article/etc.] and thought that you might be able to provide some help or some insight regarding this consition. It is my hope, and the hope of the men I am writing for, that you will consider our condition and will let us know if you are able to provide any assistance. We are willing to make appointments to see you and to perform necessary tests. If you are unable to help, it would be greatly appreciated if you could pass this on to your colleagues.

While there are some minor differences in our symptoms, we all suffer from a hypertonic penis in the flaccid state. This is commonly referred to as a "firm flaccid penis" or a "hard flaccid penis." The best way to describe it is that even during the flaccid state (i.e., no form of sexual stimulation whatsoever), our penises are abnormally firm. The condition does relax intermittently, such as during rest, or during urination, so we do not believe that there is a permanent thickening of the tunica or any other structures. Also, most of us do have normal erections, so we do not believe this is a typical Peyronies condition. Despite very brief periods where the penis "relaxes" and is in a normal flaccid state, the penis is almost always in the hypertonic or "hard flaccid" state. It is our belief that because the penis can occasionally relax, there must be a way to return it to its normal flaccid state. We do not know whether this condition is a blood flow issue, a nerve issue, an endocrinological response, a muscle spasm, or some other cause. For many of us, this hypertonic state brings with it pain (such as pain caused by a firm flaccid penis rubbing against clothing), excessive wrinkling of the skin, very pronounced veins which have become visible on the exterior of the shaft, and for some of us, the glans has become cold and light colored (and the glans does not fill during erection). Attached to this email is a PDF of a spreadsheet which shows more detail about the condition we are suffering from. In addition to the men listed on the attached PDF, a great number of other men are suffering. You can read more about the experiences of these other men on the following website blogs: [insert links]

Thank you in advance for taking the time to read this email If you believe you can help, we would very much love to hear from you. If you do not think you can help but you know someone who can, we would very much appreciate it if you could forward this email to them. We suspect that because of the similarity of our symptoms, there is a specific medical condition that we are all suffering from, but unfortunately we have not been able to find relief separately. We are hopeful that by providing the attached spreadsheet of data, and perhaps by examining some of us, the right doctor or doctors will be able to come up with some kind of diagnosis and cure. We belive that a cross-disciplinary approach will be needed (including urologists, endocrinologists, erectile physiologists, neurologists, and radiologists), and again we invite you to share this email with your colleagues.

Thank you once again for your consideration. You can email me at [insert email address] and I would also be happy to speak with you over the phone.

[end of sample letter]

[summer1998]

Hi every body, Sorry, my english is not good enough to explain my situation or to tell my story since the 29/07/1998, Yeah... I have to deal with it
since 1998, it's a daily nightmare. If some of you can speak French, It would be a pleasure to talk about it in MP or Email in a basic english or in french.

My story in French for those of you who can read this langage ::

Pendant l'été 1998, c'était le mercredi 29 juillet, Je suis allé au toilette, rien d'anormal jusque là, sauf que j'ai vu que ma peau etait devenuet plus sombre
en faite c'était un changement hormonal normale, étant de type latino, la peau de mon pénis devenait mature et donc devenait plus brune qu'avant.

Cependant, j'ai été pris d'une terrible angoisse , une peur qui vous fige (freeze) que ce changement de couleur était du à une maladie ou quelque chose que j'avais fait de mal.
Le choque à été très intense, j'ai presque failli m'écrouler à l'idée d'avoir une maladie au pénis, symbole de la virilité. Je pensais avoir fait quelque chose de mal à cause de mes multiples masturbations.

Le jeudi 30 juillet et le vendredi 31, je n'ai pas dormi de la nuit, je suis allé pisser dans le noir pour ne pas voir mon pénis car son changement de
couleur me faisais peur (changement de couleur qui était totalement normal mais à l'époque je ne le comprenais pas).

J'ai commencé à me retenir d'aller uriner de plus en plus et le 1er Août 1998 quand je suis aller aux toilettes, le pénis dont j'étais si fière, était devenu rigide, rétracté et de couleur bleuté.

J'ai fini aux urgences avec mon père qui se foutait de moi car ils pensait que les médecins ne me prendrait pas au sérieux..

arrivé à L'hôpital, le médecin a cru que j'avais pris de la cocaïne ou du speed vu la rigidité et la rétraction de mon pénis et mon père me fusillait du regard pour savoir si j’avais pris de la drogue.

Alors ne sachant plus quoi dire, ne plus quoi faire, j'ai dit que je ne savais plus uriner pour ne pas me faire gueuler dessus par mon père car je n'avais jamais pris de drogue.

Quelle erreur j’ai faite, Ils m'ont sondé la vessie, par le pénis pour vider ma vessie et mon drogué  sous une forte dose d’anxiolitique toute la nuit.

Après cela j’ai gardé cela pour moi et n’en n’ai jamais plus parlé avec la famille. Mes érections etaient normale, sauf que peu à peu, mois apres mois l’élasticité de mon pénis a diminué. Je n’ai plus eu d’aussi grosses érections qu’avant et c’est cet fièrtée perdu qui est le plus dur à endurer.

Avoir un petit pénis est une chôse que j’aurais admi s avec le temps si cela avait toujours été le cas. Mais perdre en largeur un pénis dont j’étais si fière ma ruiné ma vie privée et social..

J'ai consulté pendant les années 1998-1999, des spécialistes urologues, dermatologues, rien, rien, rien. C'était d'après eux tout dans ma tête, ou neurologique.

J'ai appris à vivre avec,  je sais que le stress déclenche la rétraction du pénis, mais ici le moindre conflit le fait aussi, la moindre colère, la moindre peur. J'ai perdu en élasticité, surtout en diamètre. Bien que mes érections soient toujours bonnes après 13 ans de calvaire (18 cm de longueur en érection, pour une circonférence de + ou -  16cm mais ca dépends de mes nerfs, j’ai parfois moins parfois plus et au repos (flaccid state) ) quand je suis détendu elle tourne autour de 11 cm et quand elle se rétracte 9 cm au repos (shrink state)

C'est très perturbant de voir que son pénis ne reviendra jamais à son diamètre d'origine.

Pour moi c'est une histoire de traumatisme emotionnel car il est impossible de séparer les fonctions psychologiques de niveau supérieures à la neuro-physiologie qui la sous-tende.

Cette peur que j'ai eu le 29 juillet et le 1 août ont probablement surchargé mes centres limbiques et le tronc cérébral ce qui se traduit par un déséquilibre systémique dans l'ensemble de l'organisme par des spasmes vasculaires des muscles lisses. D'ailleurs cette rigidité ne concerne pas que le pénis, elle concerne toute la région du périné, les cuisses, le bas du dos.

C'est systémique, le pénis n'est qu'une partie du symptôme.

Voilà Ca a commencé quand j'allais avoir 19 ans et aujourd'hui j'en n'ai 31 !

Je vis avec et essais de limiter au mieux tout type de stress, les médicaments ne marchent pas.
Sauf, les anxiolitiques, les beta blockants.

Les Alpha blockers ne sont que des béquilles qui provoquent chez moi directement une éjaculation rétrograde donc je ne les utilisent pas.

L'arginine ne donne pas plus de résultat.

Seul le calme, la sérénité détends le pénis. Et je suis comme vous tous :

- Perte d'élasticité
- veines sombres (spider veins)
- rigidité du pénis au repos
- et tout ce que vous savez déjà.


Good luck for all of you guys, Don't have a doubt about what you feel, your problem is REAL, the doctors just dont know and they don't give a... about it because a lot of guys would have a larger, bigger one. But our problem is not a bigger one, it's juste about recovering our initial normal state.

Sorry for my English, I don't pratice this langage enough.

[Nick_ca]

Hello and good day all,

I have been looking at this thread for the past 6 months or so, as all of you i have pretty much the same problem. Same symptoms, same depression, same struggle everyday...

For me it all started about 6 months ago, when i went to the bathroom to (crap) my penis would shrink dramatically and become very hard and rigid, then it would pass in the next minutes. Gradually it became hard and small all the time, and my penis is often cold and glans is bluish color. There is not 1 minute, second i don't think about this because; i canno't sit anymore, i didn't sit on a chair or a sofa for over 3 months. If i sit my penis get so hard and so cold and i cannot have erections for days after and my penis just feel like dead, very depressive. Just to let you know i am young (under eighteen), because of this i cannot go to school anymore (can't sit on a chair all day long). I also can't work because the least muscular or cardio exercise i do make my penis shrink and go hard as a rock, and very cold.

Like all of you, i went to the doctor, they said i had nothing. Also humiliation because one of the doctor that checked me asked me if it was my real penis size and i told him no it was not because its extremely shrunk and hard. And he looked like he didn't beleive me. In the past 5 months i never had my normal penis back once. Its been so long that i almost don't remember how it was before when i had a relaxed, normal flaccid penis.

Anyways, i am gonna go to another urologist soon but i am not so positive about it because he checked me quickly at the hospital and said i had nothing, but i will pass test and scans...

Actually i take magnesium and it worked for like a month or two ("worked" means that i feeled a slight improvement, my penis does not get cold as much). But right now i have the impression that its not working as well as before.

Also i wanted to try other supplements and alpha blockers but i have no money to buy them and my mother don't have the money for it, she doesn't beleive me too much either. She assumes that if the doctor told me that i have nothing, its true.

If the urologists i will see soon give some results, be sure i will post it here because i know all the pain all you guys suffer like me everyday. By the way i am from Canada and the health care is free so there is no money limitation for me to see new doctors or to have scans, test etc.

I wish everyone good luck and will be coming back soon. bye.

[Fred2]

Okay- Just got back from my 6th Urologist and he found nothing wrong. Kept saying that he is in the business of making sure guys can get erections. He believes there is plaque on the core fibers and that is causing the hardness. He recommended 300mg of Vitamin E. Oh well, more dough down the drain. He did give me the name of another doc- so will give that a shot.