From Naeva....

[Lulu54]

Hi all, I copied this from another thread. I hope someone will have useful ideas for Naeva.  - L



hi all im new to post, im a new MS partaly dianosed person
i have proplems off and on for about 13 yrs i started at 17, i went numb on right side of body, but because i had a tiny headache nurses decided miargines, 6 years later another attack right side but things were different, i could walk proply for a month and the dizzy spells drive me nuts, had MRI came back normal so i was told,
3 yrs after that i had another attack, this time leftside, (april 08) rung ambo got told anxiety attack and see GP, went to GP he took one look at me and sent me to hospital, at hospital got told miargaines, told them they were **** and send me somewhere else, next hospital rund and sent me private to specialist (nz we have free healthcare unless you wnt to pay to get faster result) i went to specialist and had MRI got told normal, i aid check my spine, they did, had a 4.1cm cyst compressing spinal cord, had it removed, ON day of op they were wondering which part to op on MY HEAD or SPINE, i then got told i had an 8mm drop called chiari malformation, so they op on spine, when recovered they sent me for another MRI to check the cyst wasnt doing the damage, It wasnt, their were no new lesions and but still white matter (very confused), i requested copies of every MRI and heart tests and everything they did, and well i learnt more from that,
They decided not to op on brain as to danerous, so they decied MS early stages , this was march 2009. since then my symstoms have gotten really bad and i have requested to go back to specialist, so hope this time they can give me poper answers,


the attack i had last year knocked me for seven, i have bad days more more then good now,

these are my new symtoms

buring hands, feet, lips, cheeks
chest pains
breathing problems
numbness in mouth, tounge roof of mouth, top of head, forehead, eyebrows,
eyes going out of focus
ichy head to toe
muscule spasms in throut, chest.
stinging after urinating

those are new,
i normally get
weakness in arm and legs
fagitige
tingling in arms
vertigo/dizzyness
headaches
neaser
concentartion
loss of memory
libido droped

and well the list is endless, i am shocked once i wrote them down how many different things i get.

there are other things but im sooo tired now, i cant keep up with day to day things at times that even typing takes a lot out of me, its not normal to be this exhused
sorry everyone my spelling *****
this message has taken my about an hr to do

[ShadowsSister]

I would suggest you get a MRI of the Brain and Spine, there is something going on
I will be keeping you in my Prayers.
Hugs {{{~!~}}} ShadowsSister

[milwrite]

Is it possible for you to get a second opinion from another neurologist or neurosurgeon? Sometimes a new set of eyes can think of something else that would help. I'm not a doctor, but from what I've read, a chiari malformation can cause many of the symptoms that you listed.

Take care,
milwrite