I fell, hit my head and had an MRI

[ellie811]

I guess I should be thankful I fell and split my head open on a table, otherwise I would never have had an MRI.  The MRI shows demyelination on both sides of my brain with significant demyelination on the right front-mid area (something like that).  It also shows lots of nerve signal interruption.  O.k. So do I have other symptoms?  I guess so.  I don't have anything as severe as others have described on this forum.  I have tingling fingers and hands and pain in my wrists (I thought it was carpal tunnel).  I have numbness and pain in my left ankle (I thought it was due to an old injury).  I have blurred vision (I thought I just couldn't get my eye glasses prescription right).  I definitely have fatigue, but I go to work anyway.  So, now I'm on track for going in to see a neurologist.  I am worried.  I don't know what to think of all this.  I never expected that something was wrong with my brain.  What does the community think of all this?  What should I do?

[ellie811]

Hi Sarah.  You had to have a lesion blasted?  How do they do that?

[ellie811]

Thanks everyone for your comments.  I am trying to think of all the symptoms that could be MS related.  At the same time, I just don't know what else demyelination with nerve disruption can indicate besides Lupus, vasculitis and RA.  If anyone else knows, please let me know.  I can see that this is a great discussion forum.  I was reading posts last night before I posted, and I thought the comments were very insightful and helpful.  Thank you all for making me feel welcome.  I appreciate it so much.

[jen673]

My story is very similar except i had mri because i had l
l'hermittes.  Once i saw neuro and had a spinal mri which showed more lesions i was able to be diagnosed.  No need for any more tests except all the bloodwork to rule out other diseases. I know this news and scary and very shocking to find out like this.  This forum is the best group of individuals and we will be right here beside you for any questions or support you may have.  It is a lifesaver for me.  

Hopefully this wont be drawn out for you.  I wish you the best and hope to hear some better news from you soon!  

[Corriel]

Hi Ellie, it is a good idea to start logging all issues you have had and try to note month or year of those occurrences. It gives the neuro a good idea of what may be symptoms related to what was found in your MRI even if they don't seem MS related.

I think you have an awesome attitude about your luck by the way!

Corrie

[PastorDan]

Ellie, it sounds to me like you're on the right track, going to a neurologist.  I will echo Sarah's recommendation to make that a specialist in MS.  Too many other stories are told of docs looking at Rorschach's butterflies and seeing only spots.

Sarah: Ouch!  That's a big one!  Remind me to show you my scar sometime!

[SarahL2491]

I would find a MS specialist and go from there........

off topic but that's how I found my kidney stone.  I have MS and fell in the middle of the street while crossing, and went to the ER for rib pain and they did a CT and there it was, 1.43 cm...........yep, I didn't know it was there but the fall must have knocked it out of place and in 4 months, I had to have it blasted, as it became most painful.

[ellie811]

I should add that blood tests have ruled out vasculitis, RA, and Lupus.