I should add that blood tests have ruled out vasculitis, RA, and Lupus.
I would find a MS specialist and go from there........
off topic but that's how I found my kidney stone. I have MS and fell in the middle of the street while crossing, and went to the ER for rib pain and they did a CT and there it was, 1.43 cm...........yep, I didn't know it was there but the fall must have knocked it out of place and in 4 months, I had to have it blasted, as it became most painful.
Ellie, it sounds to me like you're on the right track, going to a neurologist. I will echo Sarah's recommendation to make that a specialist in MS. Too many other stories are told of docs looking at Rorschach's butterflies and seeing only spots.
Sarah: Ouch! That's a big one! Remind me to show you my scar sometime!
Hi Ellie, it is a good idea to start logging all issues you have had and try to note month or year of those occurrences. It gives the neuro a good idea of what may be symptoms related to what was found in your MRI even if they don't seem MS related.
I think you have an awesome attitude about your luck by the way!
Corrie
My story is very similar except i had mri because i had l
l'hermittes. Once i saw neuro and had a spinal mri which showed more lesions i was able to be diagnosed. No need for any more tests except all the bloodwork to rule out other diseases. I know this news and scary and very shocking to find out like this. This forum is the best group of individuals and we will be right here beside you for any questions or support you may have. It is a lifesaver for me.
Hopefully this wont be drawn out for you. I wish you the best and hope to hear some better news from you soon!
Thanks everyone for your comments. I am trying to think of all the symptoms that could be MS related. At the same time, I just don't know what else demyelination with nerve disruption can indicate besides Lupus, vasculitis and RA. If anyone else knows, please let me know. I can see that this is a great discussion forum. I was reading posts last night before I posted, and I thought the comments were very insightful and helpful. Thank you all for making me feel welcome. I appreciate it so much.
Hi Sarah. You had to have a lesion blasted? How do they do that?