Aa
Buzzing in foot
I am sorry that I ask so many questions, and do not often offer any answers to other questions. However, I have only had this "unknown" disease for 1 year...so I am still a newbie in LIMBOLAND. I was diagnosied with MS in October, only to have it taken away by my MS Specialist in December. She believes that I have ADEM.
Anyways, I have been having pulsating buzzing in my foot for the past several days. The pulsing does not correlate with my pulse. My question is: is it usual to have the buzzing/vibrating in the same location for several days? Is this typical of MS?
I have had buzzing throughout my entire leg at different times, this is just unique because it continues to be in the same location.
Any input would be much appreciated. Thanks for the comments. I have learned SO MUCH from reading the health pages, and other questions that are posted here. THANK YOU, THANK YOU...I finally feel like I am not alone!
Anyways, I have been having pulsating buzzing in my foot for the past several days. The pulsing does not correlate with my pulse. My question is: is it usual to have the buzzing/vibrating in the same location for several days? Is this typical of MS?
I have had buzzing throughout my entire leg at different times, this is just unique because it continues to be in the same location.
Any input would be much appreciated. Thanks for the comments. I have learned SO MUCH from reading the health pages, and other questions that are posted here. THANK YOU, THANK YOU...I finally feel like I am not alone!
Yes, I have read EVERYTHING that there is to read about ADEM.
I have a 1.5 cm lesion in my cerebellum, and numerous microlesions or "non-specific white matter disease". I had a LP last September, it had 12 o bands in CSF, not in serum. That is when I was first diagnosed with MS.
I switched neuros to go to an MS speciailist in Indianapolis, and my new neuro said I do not meet the criteria of MS, but probably had ADEM. In my heart I believe that I have MS. I did not have ANY of the initial symptoms of ADEM with the exception of severe vertigo and ataxia. I am referring to the symptoms that you posted above..."The disorder often follows viral infection or vaccination. Most common presenting symptoms in one series included ataxia, head ache, and weakness. Other signs and symptoms include fever, nausea/vomiting, and nonspecific rash."
My neuro is wanting to do another LP soon, to see if the o bands have resolved. If I still have 12 o bands, I would "ASSUME" that I truly have MS. I guess that I just have to wait and see.
The MS specialist only focuses on the lesion in the cerebellum, and I understand that because it is big. However, my question is, if the lesion causes the symptoms, which my initial symtoms were severe vertigo and ataxia caused by the lesion in the cerebellum, why have my symptoms now changed to extreme leg weakness and contant ringing in the ears?
I hopefully will get a definite diagnosis someday!
I have a 1.5 cm lesion in my cerebellum, and numerous microlesions or "non-specific white matter disease". I had a LP last September, it had 12 o bands in CSF, not in serum. That is when I was first diagnosed with MS.
I switched neuros to go to an MS speciailist in Indianapolis, and my new neuro said I do not meet the criteria of MS, but probably had ADEM. In my heart I believe that I have MS. I did not have ANY of the initial symptoms of ADEM with the exception of severe vertigo and ataxia. I am referring to the symptoms that you posted above..."The disorder often follows viral infection or vaccination. Most common presenting symptoms in one series included ataxia, head ache, and weakness. Other signs and symptoms include fever, nausea/vomiting, and nonspecific rash."
My neuro is wanting to do another LP soon, to see if the o bands have resolved. If I still have 12 o bands, I would "ASSUME" that I truly have MS. I guess that I just have to wait and see.
The MS specialist only focuses on the lesion in the cerebellum, and I understand that because it is big. However, my question is, if the lesion causes the symptoms, which my initial symtoms were severe vertigo and ataxia caused by the lesion in the cerebellum, why have my symptoms now changed to extreme leg weakness and contant ringing in the ears?
I hopefully will get a definite diagnosis someday!
I thought my buzzing had stopped, because I hadn't had any in a couple of weeks, that I noticed. Tonight, my cell phone vibrated several times in my right front pants pocket. Trouble is, every time I'd try to answer it, thee was no one there, and no "missed call" message or voice mail. Finally I put the phone in my shirt pocket, but my thigh is still intermittently vibrating.
Hi SAJ, I haven't had the chance to say hi to you yet, so welcome to the MS forum. I am glad to hear the health pages have been useful to you. Your symptoms sure sound like MS to me but I'm not familiar with ADEM and went looking for more ino.
I found this at
webeye.ophth.uiowa.edu/eyeforum/cases/30-AcuteDemyelinatingEncephalomyelitis.htm
"ADEM is a monophasic, multifocal demyelinating disorder of the central nervous system. It primarily affects children. Mean onset in children is 8 years of age. The disorder often follows viral infection or vaccination. Most common presenting symptoms in one series included ataxia, head ache, and weakness. Other signs and symptoms include fever, nausea/vomiting, and nonspecific rash. A variety of focal neurologic deficits may be present, as with MS. Examination of CSF is typically normal. However, CSF can also show nonspecific findings which could suggest aseptic/viral meningitis, encephalitis, or MS. This was seen in our patient. Head CT scan is typically normal.
ADEM versus MS: The distinction is not always clear
ADEM and MS have several features which can help to distinguish these seemingly similar disorders.
MS exhibits recurrent episodes of demyelination, while demyelination in ADEM is monophasic. Thus, MS typically shows demyelinating lesions of varying ages on MRI. MRI in ADEM typically exhibits lesions of the same age.
MS typically exhibits demyelination of the deep or periventricular white matter. ADEM usually involves the superficial white matter, often at the junction of gray matter and white matter.
CSF examination in MS is usually positive for oligoclonal bands, while CSF in ADEM is usually negative for this. Uncommonly, ADEM may exhibit oligoclonal bands. However, they usually resolve when ADEM resolves. Oligoclonal bands in MS usually remain positive indefinitely.
Despite these differences, up to one-third of ADEM patients are later diagnosed with MS. Furthermore, ADEM with recurrences has been described.*
Have you had an LP? It appears that would be helpful in the dx mystery.
Please know you are right, you are not alone. Hang in here with us - sorry the doctor can't make up her mind with you.
My best,
Lulu
I found this at
webeye.ophth.uiowa.edu/eyeforum/cases/30-AcuteDemyelinatingEncephalomyelitis.htm
"ADEM is a monophasic, multifocal demyelinating disorder of the central nervous system. It primarily affects children. Mean onset in children is 8 years of age. The disorder often follows viral infection or vaccination. Most common presenting symptoms in one series included ataxia, head ache, and weakness. Other signs and symptoms include fever, nausea/vomiting, and nonspecific rash. A variety of focal neurologic deficits may be present, as with MS. Examination of CSF is typically normal. However, CSF can also show nonspecific findings which could suggest aseptic/viral meningitis, encephalitis, or MS. This was seen in our patient. Head CT scan is typically normal.
ADEM versus MS: The distinction is not always clear
ADEM and MS have several features which can help to distinguish these seemingly similar disorders.
MS exhibits recurrent episodes of demyelination, while demyelination in ADEM is monophasic. Thus, MS typically shows demyelinating lesions of varying ages on MRI. MRI in ADEM typically exhibits lesions of the same age.
MS typically exhibits demyelination of the deep or periventricular white matter. ADEM usually involves the superficial white matter, often at the junction of gray matter and white matter.
CSF examination in MS is usually positive for oligoclonal bands, while CSF in ADEM is usually negative for this. Uncommonly, ADEM may exhibit oligoclonal bands. However, they usually resolve when ADEM resolves. Oligoclonal bands in MS usually remain positive indefinitely.
Despite these differences, up to one-third of ADEM patients are later diagnosed with MS. Furthermore, ADEM with recurrences has been described.*
Have you had an LP? It appears that would be helpful in the dx mystery.
Please know you are right, you are not alone. Hang in here with us - sorry the doctor can't make up her mind with you.
My best,
Lulu
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