Aa
Checking in, staying the course
Just checking in here. I've been lurking around :-).
I've now gotten an appointment with OSU neurology in March. I started seeing a new doc, a physiatrist. He's trying to treat the pain, until I get into OSU, which I much confess is quite severe as of late. I've really been working trying to keep my job, as I know it is in jeopardy with all the work I have been missing for doctors visits and sometimes just being in to much pain.
I have to laugh, I went and got my notes and test results from my previous neuro (note I said previous). He noted on one of his notes that all of my evoked potentials were fine. This is the funny part: The only evoked potential he gave me was touching the sensor to my wrist in four places. I bet insurance got the bill for a full workup. When asked about it by the Physiatrist, I explained I had never received any kind of Potentials, less the VEP. Needless to say, I'm scheduled for a full work up for next month.
My final straw with my neuro was when he asked me if I've ever done acid. I of course replied a big NO! He the goes to explain that he wasn't insinuating that I looked like the kind of guy that would do it. He was wanting to put me on a cocktail of Meds that would have a similar effect on me as acid, and that he has a friend that he prescribed the same cocktail to. He was saying that I would have hallucinations and such. I asked him, " do you really think that I could function properly on these meds?". He then replies that it would be nothing to worry about, I would be able to tell the difference. That was the day I walked out of the office, finished with him.
Other than that things are moving, some days fast, some days slow, but moving all the same.
Everyone have a great week!
I've now gotten an appointment with OSU neurology in March. I started seeing a new doc, a physiatrist. He's trying to treat the pain, until I get into OSU, which I much confess is quite severe as of late. I've really been working trying to keep my job, as I know it is in jeopardy with all the work I have been missing for doctors visits and sometimes just being in to much pain.
I have to laugh, I went and got my notes and test results from my previous neuro (note I said previous). He noted on one of his notes that all of my evoked potentials were fine. This is the funny part: The only evoked potential he gave me was touching the sensor to my wrist in four places. I bet insurance got the bill for a full workup. When asked about it by the Physiatrist, I explained I had never received any kind of Potentials, less the VEP. Needless to say, I'm scheduled for a full work up for next month.
My final straw with my neuro was when he asked me if I've ever done acid. I of course replied a big NO! He the goes to explain that he wasn't insinuating that I looked like the kind of guy that would do it. He was wanting to put me on a cocktail of Meds that would have a similar effect on me as acid, and that he has a friend that he prescribed the same cocktail to. He was saying that I would have hallucinations and such. I asked him, " do you really think that I could function properly on these meds?". He then replies that it would be nothing to worry about, I would be able to tell the difference. That was the day I walked out of the office, finished with him.
Other than that things are moving, some days fast, some days slow, but moving all the same.
Everyone have a great week!
Hmmh..I thought I had posted something to you but it does not seem to have made it and must be lost in cyber space or perhaps the higher authorities removed it but don't think there was anything defamatory or rude!
Anyhow I just wanted to say good to hear from you but I was not impressed with your neuro experience.
Anyhow hope that things keep moving in the right direction for you and be well.
Sarah
Anyhow I just wanted to say good to hear from you but I was not impressed with your neuro experience.
Anyhow hope that things keep moving in the right direction for you and be well.
Sarah
Glad you were able to establish a therapeutic relationship with a good physiatrist. They often have a good understanding of MS since they help with rehab after exacerbations or when injury recovery is complicated by MS. They also understand how to use pain medications and anti-spasmodic drugs well from their experience with traumatic spinal cord injury.
I'm not sure your neuro's question should be defended but I am interested in what the intended use was for his cocktail. Was he interested in helping to control your pain? I'm reminded that Rendean has been having some success with pain control after receiving infusions of Ketamine, a drug known to cause vivid hallucinations. It's use is, of course, tightly controlled.
I know that hallucinagenics were originally viewed as valuable drugs. However, therapeutic uses were quickly dismissed and research ended when the drug's recreational appeal became apparent.
I'm also wondering what was in the mix that caused hallucinations. There are drug cocktails prescribed by doctors who treat terminal cancer patients, that have a cocaine-like ingredient (some countries may still use cocaine). They use these cocktails because they control pain without knocking the person out cold. Patients are able to function and enjoy family and friends while keeping pain at a managable level. I wouldn't think many neuros would be experienced in prescribing such a cocktail........
Mary
I'm not sure your neuro's question should be defended but I am interested in what the intended use was for his cocktail. Was he interested in helping to control your pain? I'm reminded that Rendean has been having some success with pain control after receiving infusions of Ketamine, a drug known to cause vivid hallucinations. It's use is, of course, tightly controlled.
I know that hallucinagenics were originally viewed as valuable drugs. However, therapeutic uses were quickly dismissed and research ended when the drug's recreational appeal became apparent.
I'm also wondering what was in the mix that caused hallucinations. There are drug cocktails prescribed by doctors who treat terminal cancer patients, that have a cocaine-like ingredient (some countries may still use cocaine). They use these cocktails because they control pain without knocking the person out cold. Patients are able to function and enjoy family and friends while keeping pain at a managable level. I wouldn't think many neuros would be experienced in prescribing such a cocktail........
Mary
It was so good to see a post from you. I've been wondering about how you getting by.
I'm glad you ditched that guy. Sounds like he was making up a story for you when you called him out on the whole insinuation thing. Patients like us are getting smarter on our feet when we see this kind of stuff and instead of sticking with a lousy doctor, we get the heck out of there and find someone else.
I also have a physiatrist manage my pain. I have found that she is the best doctor I've had in a long time. Your's will be more than a pain management doc. He/she can very well be your best advocate for anything from pain control to getting the proper mobility equipment if or when you may need it. And, if you need to stop working, this person will be may be an advocate for you on that front as well. I hope he/she is a good one and will stand by you.
Take good care and keep dropping in when you can. We miss you.
Julie
I'm glad you ditched that guy. Sounds like he was making up a story for you when you called him out on the whole insinuation thing. Patients like us are getting smarter on our feet when we see this kind of stuff and instead of sticking with a lousy doctor, we get the heck out of there and find someone else.
I also have a physiatrist manage my pain. I have found that she is the best doctor I've had in a long time. Your's will be more than a pain management doc. He/she can very well be your best advocate for anything from pain control to getting the proper mobility equipment if or when you may need it. And, if you need to stop working, this person will be may be an advocate for you on that front as well. I hope he/she is a good one and will stand by you.
Take good care and keep dropping in when you can. We miss you.
Julie
COMMUNITY LEADER
Hmmm lets just add a few halusinations to the mix, yep nothing to worry about, acid anyone?! What a tosser lol glad you replaced that neuro!
My brother was crippled with peripheral nerve pain, just recently put on one of the epilepsy drugs (starts with A sorry i've forgotten its name, I hate nouns lol) anyway, he's in seventh heaven, feels 20 years old again. They had him on a coctail mix and it hardly touched it, this one has given him back his mobility, if you like i'll find out its name for you, seriously dont know if it would help but you never know.
Fingers crossed they work something out that helps.
Cheers........JJ
My brother was crippled with peripheral nerve pain, just recently put on one of the epilepsy drugs (starts with A sorry i've forgotten its name, I hate nouns lol) anyway, he's in seventh heaven, feels 20 years old again. They had him on a coctail mix and it hardly touched it, this one has given him back his mobility, if you like i'll find out its name for you, seriously dont know if it would help but you never know.
Fingers crossed they work something out that helps.
Cheers........JJ
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