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1268921 tn?1288919056

Columbus (Ohio) Neurology and Neurosurgeons

Has anyone had any experience with Columbus Neurology and Neurosurgery (specifically Drs. Carroll, Klatte, or Simensky).  Not sure what my eventual diagnosis will be, but you've all been helpful so far, so I thought I'd post here.

If you have suggestions about any others, I'd love to hear of them....the only caveat is they need to be covered under OSU insurance!  
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751951 tn?1406632863
I don't think you created a problem using names, until I mentioned a certain neurologist and called him bad things in the same post.  When I finally came up with his name, I think MedHelp saw the possibility of a lawsuit, so they edited my posts.  No problem.  PM me -- anyone -- if you have any more questions.

Like sb (another Buckeye, you know), I had a migraine spell over a decade before this journey began.  Like her, I had an MRI afterward that showed nothing.  It's on actual film, done in 1997, in the Dark Ages of MRI technology.  Still, little teeny-tiny lesions that show up today should have shown up then if that summer's migraines caused them, wouldn't we expect?  I have experienced one other classic migraine with aura, but it was AFTER my latest MRI, which shows the lesions in question.  It was over a year ago, too, but all the symptoms I had for months before it are still around.  I can't see anything that ties them together but the patient's name, DOB, & SSN.

I know that I can be a bit paranoid, but my suspicion is that neuros used to tell us that we were nuts, until the psych docs got serious about telling us that we aren't.  Now, they blame migraine, because it can't be proven or disproven, and we need a neuro to do much of anything about it.

Incidentally, the doc about whom I said such negative things wanted to keep trying different migraine meds until he found one that worked for me.  He told me that there are somewhere in the range of 100 different ones that he would try.  He said this with a psychiatry resident "sitting in" with him "for part of the day" because "she had some free time."  I hope she told him afterward that he was nuts.

I also pray that your path is more successful than mine has been to-date, and that it's much shorter before you reach the dx milepost.
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1268921 tn?1288919056
And, no....have never had a true migraine, am not really a headache sufferer....so, the migraine thing is new to me!
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1268921 tn?1288919056
Was FINALLY able to find someone who takes my insurance but is not directly related to/with OSU.  They were able to get me in on Monday.  I am curious to see what his take is on the MRI and continued visual disturbances.  I also have an appt with a Neuro-Optha on Monday morning.  So, I am hopeful to have some answers (and more questions???) after both appts on Monday.  I don't really know much about this dr and would rather go with someone I have been rec'd, but that was hard to do with our insurance.  Thanks again for everyone's help...that first appt didn't seem completely accurate, but I am new to this neuro world so I was questioning my thinking.  
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279234 tn?1363105249
You wrote "did I mention that the only reason the neuro felt the radiologist mentioned the non-specific lesions and demyelination couldn't be ruled out was because 'he's trying to protect himself from lawsuits.'

Did you go to one of my old neuros? LOL My very first neuro told me this....same exact thing, about my 4-5 nonspecific lesions. This was of course before he laid a finger on me, or did a exam. He said I was perfectly fine. Our doctors must have went to the same school and read the same handbook on what to tell their patient when they don't truly  know what is wrong. I've heard every line in the book about nonspecific lesions, "Oh everyone has those, I can grab several people off the street and they would have them,
Those are nothing of concern, blah, blah, blah"

The thing is about all those comments is..Does those people have my abnormal neuro exam, or symptoms?...probably not, so maybe these doctors should pay attention to our nonspecific lesions when we are showing signs of something neurological going on. Nonspecific lesions can occur in MS.

As far as your "traveling" episodes and your other symptoms, from what I read on the internet about migraines, your episode and symptoms could fit with MS as well. Did they say what type of migraine DX you have? Do you suffer from migraines?

Migraines can leave nonspecific lesions as well, but it seems every neuro is jumping to this conclusion (that this patient is a migraine suffer) when they have abnormal neurological symptoms & nonspecific lesions, even when the patient doesn't complain of past or present migraine problems. I've had to argue with doctors about my patient history, because somehow it got put in to my files that I'm a migraine sufferer. Yes, in my lifetime, I've had maybe 2-4, but I wouldn't consider myself, a sufferer, and back then, my MRI was clean.

I hope you get a great doctor. Like I said before, there is bad & good in every place, but in my opinion about OSU, your case needs to be very strong towards MS, before they will DX, and that means all the "typical" lesions on MRI. This is just my opinion :)

Boy we are similar, aren't we...this is ironic :)


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1268921 tn?1288919056
Ack....I am sorry if I caused problems with names!  My apologies!!  I truly appreciate everyones help and insight!!!!
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751951 tn?1406632863
I have to add that the OSU neuropsychologist to whom I was sent for the half-day neuropsych testing was excellent.  I'll have to look him up; name escapes this old brain at the moment.  He gave me a very thorough assessment, and basically said that I'm in excellent shape, brain-wise, except for some specific deficits clearly attributable to some indeterminate disease process in the white matter, consistent with my MRI report.  I'm still not clear on the exact nature & function of those specific deficits, but they have something to do with visuo-motor stuff.

The MRI report to which he refers was the one with the four T2 hyperintense foci -- "punctate-to-small" -- of indeterminate etiology, that both Drs. Racke and Quick had said were normal for someone my age.  The first neuro to whom I was referred -- Brian Fahey, D.O., not an OSU doc -- had said the same thing, about the "one spot per decade" being normal.

I was also very pleased with Dr. Stephen Katz, the neuro-ophthalmologist at OSU, whom I have seen three times.  I'll confess being happier with him AFTER he moved off the main campus; he seems less rushed and far less crowded.  He's the one who has prescribed gabapentin for my orbital pain; see the other thread for detail on that topic.  He acknowledged that "one spot per decade" isn't "normal" per se, but suggested that it isn't at all unexpected, either, as we get small lesions from a wide variety of causes, some of which I've experienced (concussions, sleep apnea), and sometimes from high blood pressure, which I had NOT experienced until after the MRI.

It is weird that my BP jumped up all at once, eight days after that MRI was taken.  I'd had a spike or two in the past when in extreme pain, but it always returned to normal, until 1/31/09.  I'm going to guess that one or more of these docs had something to do with that!
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751951 tn?1406632863
I had named the junior neuro at OSU in my post mentioning migraine, but as the post has been edited, the reference of "him" in my 2nd paragraph isn't evident; it was Dr. Adam Quick.  Our MH Moderator wasn't comfortable with some of the terms I'd used to describe him earlier, which I understand.  If you read them before the edit, please disregard. ;)

54, did they move the MS people to the main campus, or move the other neuros out to Kenny Rd.?
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572651 tn?1530999357
Hi again.  As I said early on, there are several people here who had less than satisfactory experiences with the OSU clinic and now I can include your story, too.   I hate hearing that there are such extremes at one facility.  They have now combined all the neurology practices into one building instead of being spread all over the campus.  That might work for some patients, having access to all those different neuros.  I'm sure the decision was based on the budget and not on patient care.  These changes caused a good friend to leave up there and now travels to U.C. for their Parkinson treatment.  

Have you asked any friends, coworkers, people who work in your PCP's office if they have a recommendation  Keep asking until you find a relationship you are happy with.

good luck and let us now how the next appt. goes.
Lulu
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751951 tn?1406632863
I've had classic migraine with aura in the past, incidentally, and the OSU folks concluded that this odyssey -- with no symptoms or sensations anything like that -- is that.

I am still waiting for the OSU folks to call back so I can file a complaint with them about him.  It's been a number of months now that I've been waiting for that return call.  I'll go into more detail when I get time, if anyone's interested.

The guy I've seen most recently is Dr. Geoffrey Eubank of Neurological Associates.  Their practice is something like ninety years old.  He's not; he's maybe my age or a smidge older.  So far he's been less dismissive, though he's still unconvinced, and seems to be genuinely stumped, having tested about everything that can be tested on me.  Last word was we'll do another MRI (next month, 6 months from our last contact) to see if anything's changed in there.  Might consider spinal MRI too.  I've heard rave reviews of him, though not in referrence to MS cases.  He is, however, involved in the local MS society somehow, possibly on their board, IIRC.
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1221035 tn?1301000508
I just have a comment about the vision problem being all or nothing.

My vision would go blurry and I would have double vision, fogginess, halos, starbursts. Sometimes it would even clear up for a bit through out the day,...but the episode last about 3 weeks. I was DX with Optic Neuritis.

So, I don't agree with the neuro that told you the vision thing is all or nothing.

Good Luck and God Bless You
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1268921 tn?1288919056
Thanks to everyone for their insight...

The true 'traveling numbness' was with the event--started in my fingers and traveled from my fingers, through my hand, into my arm, up to my face over the course of 20minutes.  As it moved, those body parts became cold--not to the touch, but my brain told me it was cold.

The numbness that I had for the 8-9days after the event had been something like this--2 hours of right pinkie/hand numbness--then it will move to my forearm for a couple hours.  I've also had numbness in my tongue that lasted for 3-4hours....then went away.  The last time I had it was last Wednesday.

So far I haven't noticed a difference with the elavil--not sure if it's due to this not being related to a migraine, a low dose, or the fact that it hasn't had enough time to work.

Hoping that there is more information in the radiologist's report--did I mention that the only reason the neuro felt the radiologist mentioned the non-specific lesions and demyelination couldn't be ruled out was because 'he's trying to protect himself from lawsuits.'  It is supposed to be mailed to me.

Slightly Broken--Funny (in an ironic kind of way) with the things you were told...sounds very similar.  I am hoping that the Columbus Neuro group is good...at least it gives me some feedback/opinions from someone outside the OSU complex.  
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279234 tn?1363105249
Hi,

I have a different opinion about the neurology department at OSU. I didn't get the pleasure of going to the MS clinic that LuLu goes to. I've heard it is a good place, if you have a pretty obvious case of MS. They wouldn't accept me at the MS clinic, based on my non specific lesions, so they referred me to their neurology department.

I decided to give it a try, and at least get my foot in the door. When I went, my blood panels for all the mimics have been negative, my LP was negative, the only thing that was left for concern was those 4-5 nonspecific lesions in my brain, and my abnormal neuro examination.

My neuro doctor for that day was a student, with her teacher overseeing the process. I was told that since my lesions weren't "typical" for MS, that I didn't have it.  When they asked me how my symptoms acted, I told them that my symptoms would come on,  usually effecting both the left arm & leg, last for weeks and then go away. They said (both the teacher and the student) that this didn't fit with MS. They said symptoms would occur in a certain way that didn't fit how I was describing.

So then I ask them, if not MS, what then, autoimmune disease? The student said no, because my blood panels have all been negative. She said I was suffering from stress. She said this, both her and the teacher without any questioning of my mindset. They said I had nothing life threatening. 2 weeks later, I was in the hospital with a blood clot in my leg.

Now I'm not saying there isn't good doctors at OSU neuro department ...just my own experience with them. I know that I won't go back to them. I got better treatment from CC, at least they admitted something was wrong with me, but admitted they didn't know what, and gave up.

To me, in your case, and this is just my opinion too, I think your experience at OSU is this, they were looking for the "typical MS patient". The one that presents a certain way, has certain lesions, in a certain location, and that have the certain symptoms.

Quix started out with a so-called UBO in the frontal lobe as well. It was actually MS. As far as your symptoms, it's all individual. I've heard several MSers on the forum complain of tingles/numbness in one area for several hours, and tingles/numbness in another (if that's what you mean by traveling).

I wish you did have your measurements of your lesions. The bigger the better, as far as diagnosing.  I'm sorry if I've put too much of my opinion in this, and I don't mean to bash OSU. Like I said before, I'm sure there is good doctors there. Heck, I believe there is bad doctors in every hospital. I just heard of too many people leaving OSU with your diagnosis, so hopefully it is the right one.

If you do get headaches/migraines, I would allow them to put you on meds for this, and see if your symptoms stop. If they don't, then you'll have your answer.

Take Care

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751951 tn?1406632863
My OSU experience has been less than ideal.  I'll have to look up the name of a person or two I saw there, but I was initially referred to "the 1st available doctor at the MS Clinic," which might not have been the best way to go about it.  Instead of Dr. Boster (highly recommended by a certain young lady from Dayton), I wound up with Dr. Racke (Michael?), who I understood to be the head of the OSU Neurology Department overall (though I recently heard another name given that rank; could the head of the university's and hospital's neuro departments be two different things?).  Dr. Racke did a pretty thorough exam, but he did it as if he were doing it for the 9 millionth time and didn't expect anything different to show up, IMHO.  He noted my reflexes as normal, when they sure seemed abnormal to me with the hammer-under-the-kneecap part of it.  I felt that he was pretty dismissive, and he referred me to a junior in the main hospital, to the obvious surprise of his office staff.

I will say this: While waiting for my appointment with this junior, I had some intensification of some symptoms, as I recall, and called to whine to the nice girl who used to schedule things for the MS Clinic.  She got me in to see the MS Clinic's nurse practitioner, Mary Pat Bartosek.  Mary Pat was splendid in terms of attitude, though she got some details wrong (keep reading).  However, I think she was possibly more than a little hesitant to question anything that Dr. Racke had already pronounced.

I got a copy of the letter she sent to my PCP afterward.  Her intro, obviously from a form letter, described me as something like, "a pleasant, 51-year-old male with relapsing-remitting multiple sclerosis."  However, further into the body of the letter it is obvious that she wasn't describing me as an MS patient, but a limbolander in the process of being sent elsewhere.  This same report letter describes responses from her neuro exam for which I didn't recall her checking, and it listed my Romberg as negative, when it was likely more positive with her than with any of the four or five other times it had already been checked.  I almost hit the floor, but she caught me.

All said, I think she probably did a decent job, but either there were some dictation &/or transcribing errors, or her higher-ups perhaps directed some changes in what she reported rather than what she observed.

Will write more about neuros #1 & #5 (4?) later (none of them are among the names you listed); hafta get to work on some things here.  God bless.
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1268921 tn?1288919056
And, the other thing is that I am struggling to find the right next dr due to not knowing what the deal is....Do I go with someone who knows Chiari Malformation since I have the low-lying cerebellar tonsils? Someone who specializes in headaches due to the migraine diagnosis?  Someone who specializes in MS due to the lesions and some symptoms?  I'm at a loss.
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1268921 tn?1288919056
No, the one lesion/per decade was via the OSU Neurology Dept/Clinic (hence my reason for wanting a 2nd opinion--that was why I thought the Col. Neurology/surgery would be a good bet (ie. not getting a 2nd opinion from someone in the same group)--I saw a resident (in the ER and then as a follow-up) and her attending physician was the one who said the "one lesion per decade".  I do not recall her name now...the resident is Dr. Bruns.  A few other things she mentioned:
--My lesions don't look like MS lesions and are in the wrong spot to cause my symptoms--they are UBO's.  I didn't get a measurement, exact placement (only that one is in the temporal lobe and another in the left frontal lobe)
--MS symptoms don't travel--they are there and then will go away after a few weeks.  They will not come and go as mine have.
--Vision problems with MS are all or nothing--there wouldn't be fogginess, shadows, halos, lack of peripheral vision like I am experiencing--it would be near blindness in one eye or the other.

I feel badly b/c my husband was just so relieved to hear the migraine diagnosis....b/c it didn't mean I have/had something else. :(  I just don't know how much faith I put in that diagnosis right now.
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572651 tn?1530999357
and was  the one lesion per decade neuro at this group?  

I would look for a group that specializes in MS  - if you drive a Porsche you are not going to take it to a GM dealer for service, right?  Go with the specialists who know your (suspected) disease.
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572651 tn?1530999357
I have had very good experiences with OSU MS Clinic - but I know others here who were less than happy.  My neuro is Aaron Boster, and I do not hesitate to recommend him.  If you have more questions, drop me a PM.  

The unhappy folks saw other people. - he has only been there about 2 years.


Also, at OSU they have now combined the neuro clinics all into one big clinic, so if you are not MS they can refer you to another neuro within the group.

Sorry, I know nothing about this other practice.

be well, Lulu
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