Any ideas anyone please. M.S

[momentoman]

Hi all I hope we’re all Well,
                                               Well I have been looking for answers for a while now but am getting nowhere fast.  I have all the usual symptoms of early M.S. But unfortunately have found the so called Consultants second rate  at best.  

I would just like some imput on the following test results,

1. My VEP showed I had a significant difference between both eyes on small patterns, eye specialist said she didn’t think it was significant . (She’s not twitching herself to sleep every night) lol. Well question one my  Farnsworth Munsell 100 hue test. Showed 189 errors in one eye and 209 error score on the other the mean being 80 for someone as me aged 35. The test results which I got unbeknown to my specialist also stated this was due to pathologic colour discrimination in one eye and just pathologic on the other can anyone tell me if this is of any use in getting closer to a diagnoses .

2. My blood tests showed very high cholesterol, and high prolactin, iron and my gamma gt was high also. I don’t eat meat very often. And drink alcohol rarely. My research into M.S has shown that these tests can be seen to be high in early MS. But I feel my neuro  would rather keep saying this  is mind invoked and keep sending me to his expensive friends. He has never done a lumber puncture or ordered a spinal   MRI  and also, I haven’t had a brain MRI under contrast. Do you feel as I do, I should get a second opinion

On getting some of my file through freedom of information, He said in one letter to my G.P he was sending me for sleep deprived E.E.G. But I was’nt told this at the time by the nurse and had good nights sleep before the test. Would this bring about  a normal result. Which I had.

Anyhow I would like to thank you in advance for any comments you might have,

My current symptoms  are : Tremor, Weakness, Muscle Twitching, Fatigue, Eye flashes , ECT.

[Guitar_grrrl]

Hi, and welcome.  You'll find this forum a wonderful place to bounce off ideas, vent, rant and otherwise learn heaps of info.  Check out the health pages (icon on upper R side of this page).

I'd get a second opinion.  You may go through numerous neurologists before you get some almost concrete answers.  I don't know what Ireland's health care system is like - hopefully closer to the French model than UK's.  MRIs with and without contrast are essential, unless your neurological exam is super positive, and your history is carefully accounted for.  Again, look at the Health Pages.

Cheers,
Guitar_grrrl

[momentoman]

http://www.takingcontrolofmultiplesclerosis.org/index.php?mode=Immunoglobulins
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC495893/?page=1


Hi there,
            Thanks for input. Here just some of the links re:the cholesterol, Also did you ever take antihistamines before you where diagnosed as there is an old study done in that area too.The natural amino acid derivative is histamine, a very small and simple molecule made by every human (and animal) body from the naturally occurring (and conditionally essential) amino acid histidine. Yes, that's the same histamine that most of us are told is the "bad guy" of the allergy world, against which we're all urged to swallow the latest patent (and prescription-only, until the patent expires) "antihistamine" medication. Apparently, individuals with MS either don't make enough histamine in their own bodies, or just need more. Perhaps both. No one knows for certain.

Also the cholesterol is thought to be the body's protective system kicking in, protecting the spine through some process or another. There is number of study's present into this and other ways of protecting nerves through the active phase. Then other frame thought state exactly the opposite .

http://www.lifeclinic.com/fullpage.aspx?prid=512492&type=1

[Armygirl73]

Hello,

Welcome to the forum. I'm guessing this is your first visit ...? At any rate, I think you should get a second opinion if you are having all these troubles. But be prepared, limboland can be so frustrating. Every doc will see things differently and diagnose differently unless you show super classic signs.

I'm not a doctor, but I've been through this process being recently diagnosed, and I had issues with my VEP too but was told it was nothing either. Also, you should have a contrast MRI b/c in my novice knowledge it shows lesions better ... Quix, if you read this, can you fill in my inept blanks here. ;-)

A second opinion is important no matter what, I think. My first doc sent me away with a diagnosis of an essential tremor despite my numbness, parathesia, vertigo, clumsiness and the list goes on.

My second doc gave me a clinical diagnosis based on my tests, his review of my MRIs and my symptom diary. Even so, I didn't find out about his diagnosis until I was having a medical screening over a year later.

I guess what I'm saying is, no matter how frustrated you can get don't give up until you know exactly what is going on with you. If you are feeling you need a second opinion, trust your instinct.

By the way, I'd be interested in hearing more about the cholesterol research you found ... I have the same issues and eat pretty darn healthy. If you can remember where you found it or come across it again, please let me know. Thanks!

Hang in there, and please stay with us. There is terrific support and friendship here.

Blessings,
ArmyGirl73