Discouraging Neuro visits

[Salamander2]

Hello all,
I am new to the site and I'm not asking for any of you to make a diagnosis,  just tell me if my story sound familiar.  I am 54, but started with symptoms about 6 years ago.  I had terrible muscle spasms in my thighs.  I was unable to stand up, sit down, lay down,  really couldn't move at all.  I'm no whimp, but I almost had my husband take me to ER because the pain was so bad. It lasted several hours and he actually had to drag me to the bath to run warm water over my legs. I have had 2 other episodes of the spasms since then.  Also I have a large numb area on my right leg that never sometimes goes into my foot, but never really goes away.  I have problems with pronouncing words and have dizziness that comes and goes (but not everyday).  I sometimes have a sensation of cramping or tightness in my right ribs.  And the fatigue is the most depressing part of all of this. I'm posting because just today,  I started feeling like my right foot is in a block of cement, very heavy and some pain.  This is what Frankenstein must have felt like with his metal platform boots:)

My GP ordered an MRI which had 2 small spots.  I went to the Neuro who said he wasn't "impressed" with the spots, he did an LP which was negative.  He has tested and tested and most recently did some Iron tests and ask me to come back in a month.  I could cry.  I feel so crappy.  My question is, should I see a new neuro?  Should I just push the one I'm seeing?  Am I just crazy?  Please respond if you can.  Thanks.

[bearsmum]

Hi and welcome

I know what you mean about the lead foot situation, I get it with my right leg.
I have had several MRI's without contrast which showed 2 lesions and I just currently had a CT brain scan which showed a new very bright white new lesion measuring 12mm. I have been referred to the best neuro who specialises in MS on the 4th December and hopefully will finally get a proper diagnosis.
If I were you I would push to find a better neuro who actually specialises is MS, as they all have their own specialities.
Best of luck and take care
bearsmum

[Salamander2]

That's my youngest daughter's name!  Thanks for your response.  This is the first time I have experienced first hand being treated differently because of my age.  Do you know if any of the meds for MS help with the fatigue?  
Thanks,
Sally

[Lulu54]

Welcome to this board - it is the perfect place to be "crazy" with the rest of us trying to figure out what is wrong with our bodies.  These "experts" are wonderful - willing to share their knowledge from their own experiences.  I looked at your bio and see you are a nurse - that obviously hasn't helped in dealing with the doctors! LOL

My symptoms are almost identical to yours except for the thigh muscle spas ms - I haven't had those (yet?).  I will be 54 next month and was also told my age was a factor in not declaring MS immediately.

Like you, I have had symptoms over the years but didn't run to the doctors trying to figure them out - I toughed them out and they always resolved on their on until my right foot/leg decided to also do the Frankenstein impersonation as well.

Certainly this all doesn't help you much, but please know you are not alone.  Stay in touch, ok?

My best,
Laura