Gone Fishin'

[Quixotic1]

Hi, all.  I want to thank everyone who has written worried that I haven't been posting.  Sorry to drop from site, but I just couldn't bring myself onto the 'puter during the bad days.  First, I'm doing a little better.   The weird Uro-G visist with the 6 stairway fire alarm was just the beginning of a particularly horrid interval in this MiSerable disease.
  
She gave me a med (Enablex) to try to calm the painful bladder spasms and help with the worsening urinary incontinence.  However, the med, even at its lowest dose, made everything worse and made me feel very sick, nauseated and depressed.  Instead of quieting the excited bladder, it caused it to cease emptying (she thinks) and caused acute retention.  Then my bladder stayed full all the time and the overflow overflowed.  The bladder twitched, spazzed, and cramped all the time, but wouldn't empty much at a time.   So, instead of being incontinent only when I needed to go (along with painful cramping) I was leaking constantly and dumping some when the bladder spasms were worst.  I was running through a dozen and half of the extra large pads every day, plus rushing to the bathroom to piddle a liddle.   Any energy I have had was used up mopping the hardwood floors and doing laundry.   Sorry to be graphic.

Has anyone else noticed that the faster you try to walk (with spasticity) the stiffer and lower you move?  That demonstrates the "rate-dependent" nature of spasticity.

I had a horrible public flooding and stopped leaving the house.  We thought maybe the full dose would reverse things, but it got even worse - So, I've been feeling wretched and feeling very embarrassed which is not like me.  Clearly it was interrupting my sleep.  I stopped the med on Wednesday, but it is an extended release med and is taking a while to get out of my system.  Today is the first half decent day I have had, but I'm really sleepy.

So, the Sleeping Beauty awakened only in time to be kissed by a toad and transported to a swamp. I am awaiting someone to magically save me from the ongoing tsunami which is my life.  I see the Uro-G in 11 days for a new urodynamic study and a new plan.  And hopefully a pair of paddles and hip boots.  The whole thing has left me feeing cruddy and weak.  Yesterday I was bent over behind my recliner trying to plug something in to an electrical strip.  My weak leg slid slowly out from under me, and I slid down.  I was left to contemplate the various dust puppies, lost pens, empty cups and a dead mouse who had apparently died in one of the floods, that have accumulated over time.  I looked for the lawn snake that Clyde had brought in which made a dash for freedom back there, but he was long gone.  I yelled for my sister, but she didn't hear me.  Of course then was when I also needed to rush to the bathroom - natch'.  So I sat and played "Battleship" with the dust bunnies and petted the worried felines as they wandered past until I rested enough to haul myself up.  Of course now my shoulders and wrists are sore from the pull back to my feet.  I need to get this wretch into shape...(and someone needs to sweep this place!)

There are so many interesting things being discussed so well on the forum.  You are carrying on nicely.  Newcomers are so impressed with the place you are creating.  This is quite the remarkable place we have.  I realize that I can spare my family the litany of my woes when I have all of you to dump on.

I hope to feel more like using my waterlogged brain soon.  Still incapacitated by Cog Bog - an apt expression if CCSVI is playing a role, don't you think?

Well, off to the BR.

Love ya all

Quix

[rendean]

I'm so sorry to hear about the flooding and pain issues. How awful! Sure you can't bargain or barter your way into an appointment sooner with uro-G?

I see you still have your sense of humor. I especially like the Battleship with the dust bunnies ;-) Can relate to the 'can't get ups". I was pulling weeds this afternoon in the front yard for all to see, of course, and could not get up. Luckily my DH came and rescued me after a short while. I didn't have any Battleship and had to resort to twiddling my thumbs and removing the pine cones from my bottom.

I hope you continue to feel better a little each day until they can remedy your bladder issues.

Keeping you in my thoughts,
Ren