Gonna call my Opthalmologist...

[Rena705]

I have had a chance to sit down and think about things very carefully this weekend and I am going to call the Opthalmologist on Monday.  I figure that he is the ONLY dr. that has said that my vision difficulties are due to my MS and NOT my eyes.  I figure that maybe he can refer me to a NeuroOpthalmologist and see where I can get from there.  I will try!

I have also been told about a one evening program at our university all about nerve pain.  The dr. that is hosting it is the same neuro that my pharmacist's assistant sees as her MS Specialist.  I not only would like information on dealing with nerve pain but I want to see if I may get a chance to talk to this dr.  Worth a try I figure...I am getting no help now, I may as well push my way around and see if I can get the answers that I need.  Short of that I am going to have to talk to a lawyer I guess...I am being blackballed by the doctors I trusted and am I going to run out of time by not being given access to the DMD's...we'll see I guess.

Rena

[spastic]

I am with Zilla on this, You Go Girl, and remember my post on How and Where to Stalk Neuros?  hehehe  I think it is a fabulous idea to go to the presentation.  He will probably ask the crowd if anybody has a question, etc, etc.  Than you can nail him with your questions and hopefully he will take you as a patient.  That would be so cool!!!!

Love Ya,

Ada

[Momzilla]

You GO, girl!

Zilla*

[Rena705]

Well I called the Opthamologist's office and asked them about him referring me to a neuro/ophalmologist and they didn't think he referred patients to one (you are probably right db,,,huge shortage of them here) but they said if you are having a hard time getting help. he. in all likelyhood will refer you to a new specialist!  That is good news!  So I am going to see him on June 26th.  I have also registered for the nerve pain presentation on the 23rd and who knows...maybe I can get to speak to this neuro personally and see if he would be willing to see me...worth a try I figure and then I could get the referral from the eye dr.  Wouldn't that just rot my gp's and ?MS Specialists? socks eh?
So now it's just to wait yet again for appointments but hey...I am going fishing in the meantime so it won't be soooo bad will it? tee hee
Thanks for all your support people...you know I appreciate it and I will let you know what the gp says to me TODAY to pi** me off!  hmmmm...guess it depends on how her weekend went I am guessing...she is so notional it drives me nuts!

[Fluffysmom]

I think you've worked out a great plan.  Advocating for yourself is the way to go; and finding help through the ophthamologist that believed that the MS is causing the eye issues is a great first step.

I love the dual approach plan of learning about nerve pain and possibly making contact with a MS specialist that may be able to help you!  I learned about a neuro from someone on this forum, and it turns out she's got some great credentials, a good reputation with at least one patient, and I'm looking forward to seeing her if her dang office ever calls to schedule!  :o)

My best friend came along with me on my last appt. with my PCP to let her know that any "black marks" in my chart by neuros #1 and #2 were completely unfounded, and that she had witnessed most everything I was going through and has known me for 9 years and can vouch for the fact that I am not a hypochondriac or suffering from anxiety.

My PCP was appreciative and agreed that she had known me almost as long and believed that my version of what I've been going through is the truth.

I despise the power some lousy docs have over our lives.

I hope this works out well for you; I'll be crossing my fingers and toes, praying, sending good thoughts your way, and anything else I can think of that might help.

It is time for you to get quality care.  Even if it does take an attorney, darn it!

Hugs,

Kathy

[doublevision1]

There is a new neuro-ophtha, Dr. Michael Johnson, apparently starting a practice this August at the eye clinic at the Royal Alex hospital.  No one seems to be able to confirm this for me, but that is the rumour.  Perhaps your ophtha will know the scoop and can get you on the wait list.  My ophtha refers patients to neuro-ophtha's, so I'm sure yours can too.

Other than that I think Dr. Rudinsky is the only other neuro-ophtha in the Capital Region and I hear that his wait list is 2 years???  Alternately you might have better luck being seen in Calgary.


db

[6-paq]

Since your current docs are doing nothing to help you or give you the treatment you deserve, I think that's being very smart and proactive!!

You are your own best advocate.  You have a good plan.   I really do wish you the best and I hope that your ophth or this neuro presenting the nerve pain program can help you.

Please keep us updated!!

Take care, Pat :)