Aa
Has MS Changed Your Mood, Thinking, etc.?
I have noticed that I feel very different. I am over-sensitive, don't 'think' the same, tend to 'react', get irritated more easily.
Has anyone else oberserved these changes in themselves?
Often, I get upset, but I don't know why.....until later.
Sheila
Has anyone else oberserved these changes in themselves?
Often, I get upset, but I don't know why.....until later.
Sheila
My mood/personality is definitely been affected by ms. I have less patience and am irritible and my mood is often low. Some of this is due to being in pain etc though...
COMMUNITY LEADER
No to negatives, and if i'm not confused by what you mean, as I mentioned before "i've always been very calm and tolerant and because i've always laughed a lot, i'd of said i was content and happy but after my big bang of 09, i've become even more so. I laugh a lot more than ever before, I appreciate all the little things and i know that sounds corny but its true."
I honestly can't answer with confidence or sicsincly (sp) if its changed my 'thinking' for me that's too open ended, but if you mean change my way of thinking about my self, then i'd have to say not really. I still like my self and have no major changes to how I still see my self as being, but my priorities for my self are different. I've always been independent and self driven, and if anything i am even more driven now, though its more about needs than wants.
My comment "to me stress is a generic term, it means different things to different people, and what one person finds stressful another will thrive on. Life in general has been dissected and analysed and just like 'fatigue' is over used by everyone and their pet hamster, well to me so is 'stress' over used."
I was meaning by the general public, people living normal lives and not those who know exactly what they are because they experience the true definition of fatigue or stress. People in general, use fatigue or stress for normal living but they don't really know what it's like to live with it, both have become commonly used or everyday terms and from my perspective, the over use is degrading them.
I walk like a bouncing string puppet, which is physically exhausting and I fall over a lot, with my eye sight as it is, driving is not such a good idea, so getting out isn't easy unless I have help to get where I want to go and someone to help me stay on my feet and when necessary, do the communicating for me. A small outing can total me for days, popping down the shops for a bit of retail therapy is not on the cards any more (pitty), so the physical has inhibited my freedom.
Overall, what's changed mood wise for me is basically what I always had, but more of it, if that makes any sense.
Chronic pain is one of the hardest things anyone has to deal with, isn't there anything they can do for you?
Take care..........JJ
I honestly can't answer with confidence or sicsincly (sp) if its changed my 'thinking' for me that's too open ended, but if you mean change my way of thinking about my self, then i'd have to say not really. I still like my self and have no major changes to how I still see my self as being, but my priorities for my self are different. I've always been independent and self driven, and if anything i am even more driven now, though its more about needs than wants.
My comment "to me stress is a generic term, it means different things to different people, and what one person finds stressful another will thrive on. Life in general has been dissected and analysed and just like 'fatigue' is over used by everyone and their pet hamster, well to me so is 'stress' over used."
I was meaning by the general public, people living normal lives and not those who know exactly what they are because they experience the true definition of fatigue or stress. People in general, use fatigue or stress for normal living but they don't really know what it's like to live with it, both have become commonly used or everyday terms and from my perspective, the over use is degrading them.
I walk like a bouncing string puppet, which is physically exhausting and I fall over a lot, with my eye sight as it is, driving is not such a good idea, so getting out isn't easy unless I have help to get where I want to go and someone to help me stay on my feet and when necessary, do the communicating for me. A small outing can total me for days, popping down the shops for a bit of retail therapy is not on the cards any more (pitty), so the physical has inhibited my freedom.
Overall, what's changed mood wise for me is basically what I always had, but more of it, if that makes any sense.
Chronic pain is one of the hardest things anyone has to deal with, isn't there anything they can do for you?
Take care..........JJ
I have taken a break from this forum for about a month but I am happy to return. This is an excellent thread. Thanks for bringing up this topic.
MS has definately changed my mood, or more accurately disability has changed me. I suffer from mild depression. At times I feel sad, hopeless, useless and frustrated.
I cry often and am easily frustrated. I am always tired and prone to anxiety.
I work really hard to work out a lot which really helps my physical and emotional self. But the bottom line is that I am not the same person I use to be. :(
Deb
MS has definately changed my mood, or more accurately disability has changed me. I suffer from mild depression. At times I feel sad, hopeless, useless and frustrated.
I cry often and am easily frustrated. I am always tired and prone to anxiety.
I work really hard to work out a lot which really helps my physical and emotional self. But the bottom line is that I am not the same person I use to be. :(
Deb
JJ-so, your MS hasn't changed your mood, thinking, negatively.
This was the point of my thread, to learn from other members, if, and how MS has affected their mood, thinking, negatively. How stress affects them.
And I respectfully disagree, I don't believe that the words stress and fatigue are over-used. At least, not my me.
At the age of 60, and with the progression of my MS, I know that I don't have many choices in my tomorrows. I accept it.
It appears now, that I have lost too much weight, to do my Rebif injections.
And my husbands insurance doesn't cover the orals.
I watched my 2nd cousin, live with MS for 18 years, and die from it, in 2008.
He lived his life, in constant pain, the same way I live my life.
In what way, has the physical part of MS, isolated you?
For me, the nerve pain has returned with a vengeance, and I am unable to sit up for more than short periods of time. And because of the Lymphocytic colitis, pain meds are out of the question.
Perhaps I should have stated my question formy thread, as "Has MS Changed Your Mood, Thinking, Negatively, etc?" because that is what I wanted to learn from other members.
This was the point of my thread, to learn from other members, if, and how MS has affected their mood, thinking, negatively. How stress affects them.
And I respectfully disagree, I don't believe that the words stress and fatigue are over-used. At least, not my me.
At the age of 60, and with the progression of my MS, I know that I don't have many choices in my tomorrows. I accept it.
It appears now, that I have lost too much weight, to do my Rebif injections.
And my husbands insurance doesn't cover the orals.
I watched my 2nd cousin, live with MS for 18 years, and die from it, in 2008.
He lived his life, in constant pain, the same way I live my life.
In what way, has the physical part of MS, isolated you?
For me, the nerve pain has returned with a vengeance, and I am unable to sit up for more than short periods of time. And because of the Lymphocytic colitis, pain meds are out of the question.
Perhaps I should have stated my question formy thread, as "Has MS Changed Your Mood, Thinking, Negatively, etc?" because that is what I wanted to learn from other members.
COMMUNITY LEADER
I do in the main have it together, for me the physical has already isolated me from the world around me but its easier for me to laugh about, lol i'm a bouncing human string puppet and my brain drops me for the stupidest things, [blush] even intimacy can be hilarious, trust me on that one lol
In the physical world, my verbal communication is nothing like it use to be, its more than using the wrong word, loosing my nouns or other words etc. I have a lot of difficulty actually speaking. I slur and stutter or stick on a sound and the words do not always come out. Which can seriously be a pain when trying to have a conversation, and being a talk-a-holic to me not being able to talk, is isolating.
Add, my written communication issues which is basically cognitive and visual (double) and it makes communicating by writing not as simplistic as it use to be, (lol what seems like a life time ago) i use to write a lot, for both personal or work commitments but now it often takes me hours to create a simple post and it does isolate me even more when its playing up.
But wait there's more - no steak knives for me lol actually that's basically it thats relevant, the physical, the verbal and the written and when combined or even separately, it adds up to being isolated by circumstance and not by choice. I am an optimist so thinking about what i've lost isn't something i tend to do, and its hard for me to even think of a negative future.
I can't change the here and now, so it doesn't upset me or even frustrate me, i still believe the next chapter of my book hasn't been written and i still have choices in my tomorrows. Don't laugh (or do but share) I still feel lucky, and being an optimist I could write pages and pages of why i am lucky but i'd struggle to come up with negatives because my brain honestly doesn't work that way. To me thats just one more reason why i should feel lucky but the biggest one, is that no matter what is happening now or tomorrow, i will still always be little old me and i'm going to hang onto that!
Hugs to all.......JJ
In the physical world, my verbal communication is nothing like it use to be, its more than using the wrong word, loosing my nouns or other words etc. I have a lot of difficulty actually speaking. I slur and stutter or stick on a sound and the words do not always come out. Which can seriously be a pain when trying to have a conversation, and being a talk-a-holic to me not being able to talk, is isolating.
Add, my written communication issues which is basically cognitive and visual (double) and it makes communicating by writing not as simplistic as it use to be, (lol what seems like a life time ago) i use to write a lot, for both personal or work commitments but now it often takes me hours to create a simple post and it does isolate me even more when its playing up.
But wait there's more - no steak knives for me lol actually that's basically it thats relevant, the physical, the verbal and the written and when combined or even separately, it adds up to being isolated by circumstance and not by choice. I am an optimist so thinking about what i've lost isn't something i tend to do, and its hard for me to even think of a negative future.
I can't change the here and now, so it doesn't upset me or even frustrate me, i still believe the next chapter of my book hasn't been written and i still have choices in my tomorrows. Don't laugh (or do but share) I still feel lucky, and being an optimist I could write pages and pages of why i am lucky but i'd struggle to come up with negatives because my brain honestly doesn't work that way. To me thats just one more reason why i should feel lucky but the biggest one, is that no matter what is happening now or tomorrow, i will still always be little old me and i'm going to hang onto that!
Hugs to all.......JJ
JJ-I struggle, as well, with finding the right words to express myself. It's extremely frustrating when I can't 'think' or I can't find a word.
But don't allow yourself to become isolated because of it.
I have to admit, I was surprised to read your post, because in your 1st post, you made it sound like you've got it all together.
MS affects each of us so differently. But, if you are like me, and battling more than one auto-immune disease, (I'm on #4) it is overwhelming.
I know that my life will never be the same again. And I miss my old life.
I hit 60 this year, (My profile picture is of me at 59 with my sweet Kia, whom I miss so very much. She and Sydney kept me from feeling isolated, when things progressed to the point of not being able to go out. I miss both my sweet girls so much.)
I 'think' what you refer to as needing a "bigger bucket" may be what many of us consider feeling stressed. Sometimes, life can just be overwhelming, and we want to be the strong people we were before.
The hardest thing for me has been learning to depend on my husband.
When I became really sick, in '05, I ended up in bed, for two years with nerve pain in my spine so severe, that he had to pack me in pillows at night, so that I wouldn't move. Not an easy thing, for an independent strong woman.
Now, here we are, married 39 years, and I'm back with that same nerve pain.
It isn't the retirement he deserved.
Hang in there......
(((HUGS)))
Sheila
But don't allow yourself to become isolated because of it.
I have to admit, I was surprised to read your post, because in your 1st post, you made it sound like you've got it all together.
MS affects each of us so differently. But, if you are like me, and battling more than one auto-immune disease, (I'm on #4) it is overwhelming.
I know that my life will never be the same again. And I miss my old life.
I hit 60 this year, (My profile picture is of me at 59 with my sweet Kia, whom I miss so very much. She and Sydney kept me from feeling isolated, when things progressed to the point of not being able to go out. I miss both my sweet girls so much.)
I 'think' what you refer to as needing a "bigger bucket" may be what many of us consider feeling stressed. Sometimes, life can just be overwhelming, and we want to be the strong people we were before.
The hardest thing for me has been learning to depend on my husband.
When I became really sick, in '05, I ended up in bed, for two years with nerve pain in my spine so severe, that he had to pack me in pillows at night, so that I wouldn't move. Not an easy thing, for an independent strong woman.
Now, here we are, married 39 years, and I'm back with that same nerve pain.
It isn't the retirement he deserved.
Hang in there......
(((HUGS)))
Sheila
Have an Answer?
You are reading content posted in the Multiple Sclerosis Community
Top Neurology Answerers
Australia
ON
Queensland, Australia
Queen Creek, AZ
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease
