Aa
Helping on MRI scans results
Hi All,
I'm new here, just found out about the forum on Google and was amazed with the amount of information you post here!
I'm 29 and I'm from Brazil but live in Ireland. At the moment I'm getting into a diagnosis of MS, although I personally have no doubt that it's my "issue" from my history of symptoms etc.
Anyway getting into the point, end of last year I went to a doctor here in Ireland to check my eyes and he couldn't find anything wrong on the tests, so he suspected it could be optical neuritis and requested me a test. The test result confirmed the neuritis and after googling it I found out that most likely it would be related to MS.
After reading about MS I was sure that I was suffering from it as I had a couple of other episodes that are also common symptoms of MS.
I went back home (Brazil) for Christmas and decided to visit a neurologist there as I personally don't like the health system in Ireland. Between the time I got the confirmation about neuritis and my flight to Brazil I found out about a doctor and researcher that is applying a treatment with high doses of Vitamin D on his patients with excellent results... so I read a lot about this, watched videos and the results were really amazing.. no side effects and the most amazing thing is no further MS symptoms further down the treatment road.
I was very lucky and managed to get an appointment with a doctor from his team and after almost 3 hours consultation the doctor was pretty sure that I have MS, however he couldn't confirm without the MRI scans. He also asked for blood and urine tests which I managed to do in Brazil.
Due to the short time in Brazil I had to have the MRIs done here in Ireland, luckly everything worked fine with that and I recently got the result... however it's hard enough to get an appointment with a neurologist over here, even for private (which costs 270 euro). Therefore I would like to hear your opinion as more experienced people... please find the result below:
"
MRI brain:
On the axial FLAIR sequences several linear periventricular deep white matter high signal lesions are identified consistent with focal demyelinating plaques.
None of these demyelinating plaques show significant enhancement postgadolinium.
The gray matter is normal.
No focal infarction or space occupying lesion identified.
The posterior fossa structures are well preserved.
MRI cervical spine:
On the sagittal T2-weighted sequences there is a high signal lesion in the superior cervical spinal cord at the level of the odontoid peg. A further high signal lesion is also seen posterior to the intervertebral disc space of T2 and T3.
These lesions are consistent with focal areas of spinal cord demyelination.
The lesions do not show enhancements postgadolinium.
No evidence of cervical spinal stenosis identified.
"
I really appreciate if someone could provide me with your opinion about my results.
For the ones interested to know about the treatment with high doses of Vitamin D I recommend to google for "Dr. Cicero Galli Coimbra", you'll find loads of information. There's also a facebook groud of his patients following his treatment and they share their results, etc...
Many thanks in advance.
I'm new here, just found out about the forum on Google and was amazed with the amount of information you post here!
I'm 29 and I'm from Brazil but live in Ireland. At the moment I'm getting into a diagnosis of MS, although I personally have no doubt that it's my "issue" from my history of symptoms etc.
Anyway getting into the point, end of last year I went to a doctor here in Ireland to check my eyes and he couldn't find anything wrong on the tests, so he suspected it could be optical neuritis and requested me a test. The test result confirmed the neuritis and after googling it I found out that most likely it would be related to MS.
After reading about MS I was sure that I was suffering from it as I had a couple of other episodes that are also common symptoms of MS.
I went back home (Brazil) for Christmas and decided to visit a neurologist there as I personally don't like the health system in Ireland. Between the time I got the confirmation about neuritis and my flight to Brazil I found out about a doctor and researcher that is applying a treatment with high doses of Vitamin D on his patients with excellent results... so I read a lot about this, watched videos and the results were really amazing.. no side effects and the most amazing thing is no further MS symptoms further down the treatment road.
I was very lucky and managed to get an appointment with a doctor from his team and after almost 3 hours consultation the doctor was pretty sure that I have MS, however he couldn't confirm without the MRI scans. He also asked for blood and urine tests which I managed to do in Brazil.
Due to the short time in Brazil I had to have the MRIs done here in Ireland, luckly everything worked fine with that and I recently got the result... however it's hard enough to get an appointment with a neurologist over here, even for private (which costs 270 euro). Therefore I would like to hear your opinion as more experienced people... please find the result below:
"
MRI brain:
On the axial FLAIR sequences several linear periventricular deep white matter high signal lesions are identified consistent with focal demyelinating plaques.
None of these demyelinating plaques show significant enhancement postgadolinium.
The gray matter is normal.
No focal infarction or space occupying lesion identified.
The posterior fossa structures are well preserved.
MRI cervical spine:
On the sagittal T2-weighted sequences there is a high signal lesion in the superior cervical spinal cord at the level of the odontoid peg. A further high signal lesion is also seen posterior to the intervertebral disc space of T2 and T3.
These lesions are consistent with focal areas of spinal cord demyelination.
The lesions do not show enhancements postgadolinium.
No evidence of cervical spinal stenosis identified.
"
I really appreciate if someone could provide me with your opinion about my results.
For the ones interested to know about the treatment with high doses of Vitamin D I recommend to google for "Dr. Cicero Galli Coimbra", you'll find loads of information. There's also a facebook groud of his patients following his treatment and they share their results, etc...
Many thanks in advance.
This two links are quite good.
The first one is about a women that is using considered high doses of Vitamin D for more than 10 years and you can see her results, although her doses are not high at all...
http://www.ncbi.nlm.nih.gov/pubmed/23202962
This second one is about Australia government being the first one to believe and start using Vitamin D on MS prevention and treatment:
http://www.msra.org.au/australia-rolls-out-world-first-ms-prevention-trial
There are plenty of articles and studies published on the link I post before (http://www.vitamindandms.org/)
Again, please do not take your neuro's word as the on that is correct and everything else is wrong or doesn't exist. Unfortunately we have loads of outdated doctors working world wide, plus there are the pharma industry interests involved... many of them do get money from the labs to prescribe a specific medicine to their patients.
Anyway I just recommend everyone to read as much as possible and watch videos.. there is another option!
An also, the Vitamin D treatment can indeed be applied together with the traditional interferons one. Most of Dr Cicero's patient start the treatment in parallel with the intereferons until a point where they stop taking the shots and never come back.
For the ones that mentioned about feeling sick after taking Vitamin D, it can be related to the oil itself and not to the Vitamin. Some people have to look into options of dry pills of vitamin D instead of the oil, but usually after a couple of days with the oil your body gets used to it and the problem goes away.
I think I mentioned before, but Dr Cicero's protocol is not only build on Vitamin D, there are other Vitamins used and also Omega 3... all of them have importance on the protocol's effectiveness.
There's a file with testimonials from his patients, all written and published by the patient's themselves and not by the doctor... via facebook.
Not sure if the link will work for you guys that are not on the group, but try that out... there are a couple of testimonials in english (from patients from outside Brazil of course) but most of them are in Portuguese. Anyway it's easy enough to translate them on google translate...
http://www.************/download/477598928961590/Depoimentos.docx
Good to see all the discussion happening here!
I hope more people will be benefited by the power of the "Vitamin" D and have a better quality of life!
The first one is about a women that is using considered high doses of Vitamin D for more than 10 years and you can see her results, although her doses are not high at all...
http://www.ncbi.nlm.nih.gov/pubmed/23202962
This second one is about Australia government being the first one to believe and start using Vitamin D on MS prevention and treatment:
http://www.msra.org.au/australia-rolls-out-world-first-ms-prevention-trial
There are plenty of articles and studies published on the link I post before (http://www.vitamindandms.org/)
Again, please do not take your neuro's word as the on that is correct and everything else is wrong or doesn't exist. Unfortunately we have loads of outdated doctors working world wide, plus there are the pharma industry interests involved... many of them do get money from the labs to prescribe a specific medicine to their patients.
Anyway I just recommend everyone to read as much as possible and watch videos.. there is another option!
An also, the Vitamin D treatment can indeed be applied together with the traditional interferons one. Most of Dr Cicero's patient start the treatment in parallel with the intereferons until a point where they stop taking the shots and never come back.
For the ones that mentioned about feeling sick after taking Vitamin D, it can be related to the oil itself and not to the Vitamin. Some people have to look into options of dry pills of vitamin D instead of the oil, but usually after a couple of days with the oil your body gets used to it and the problem goes away.
I think I mentioned before, but Dr Cicero's protocol is not only build on Vitamin D, there are other Vitamins used and also Omega 3... all of them have importance on the protocol's effectiveness.
There's a file with testimonials from his patients, all written and published by the patient's themselves and not by the doctor... via facebook.
Not sure if the link will work for you guys that are not on the group, but try that out... there are a couple of testimonials in english (from patients from outside Brazil of course) but most of them are in Portuguese. Anyway it's easy enough to translate them on google translate...
http://www.************/download/477598928961590/Depoimentos.docx
Good to see all the discussion happening here!
I hope more people will be benefited by the power of the "Vitamin" D and have a better quality of life!
As I said Dr Cicero's treatment is a result of a research and is being applied for over 10 years.
It's a fact that 10,000 IU/day is not dangerous to anyone to take as this amount of Vitamin D is obtained by staying in the sun for 20-30 min with your arms and legs exposed. This is not a lot. The amount of Vitamin D we get from food is nothing...
10,000 IU/day can be taken by anyone with no harm... above that you need to have a doctor with you and a special diet as diary should be avoided.
It's a fact that 10,000 IU/day is not dangerous to anyone to take as this amount of Vitamin D is obtained by staying in the sun for 20-30 min with your arms and legs exposed. This is not a lot. The amount of Vitamin D we get from food is nothing...
10,000 IU/day can be taken by anyone with no harm... above that you need to have a doctor with you and a special diet as diary should be avoided.
My advice is, your neuro is doesn't know everything. Don't believe 100% that he says is the right thing. Look up for other opinions and options of treatments.
Vitamin D power is not taught on Medicine schools unfortunately. The mult billionaire pharma industry is not interested to have it started anyway...
However there are other options, many studies released around the power of this hormone wrongly called as a Vitamin.
The same thing applies for what is considered a good/right level of vitamin D on your blood tests. The right level varies from country to country and nobody seems to be quite sure about what is right yet.
Vitamin D power is not taught on Medicine schools unfortunately. The mult billionaire pharma industry is not interested to have it started anyway...
However there are other options, many studies released around the power of this hormone wrongly called as a Vitamin.
The same thing applies for what is considered a good/right level of vitamin D on your blood tests. The right level varies from country to country and nobody seems to be quite sure about what is right yet.
I recently started taking 10,000 iu daily after taking 5,000 for quite a while and my blood levels staying around the middle range - though up from deficient where I was previously. Will be tested again next month to see I'm in optimum range yet. I agree there's something to this.....too many studies seem implicate it in this disease, for various reasons. While they sort that out, I'll continue on Copaxone which has significantly decreased my relapse rate and severity. To answer your question, mummy, no I don't have any side effects from this high dose of D3.
And I guess just to echo mummy's comments to twopack,I also have never heard that it's harder to have MS dx'ed in countries with universal health care. If anything, I'd think it would be easier since all citizens have access to diagnostic procedures, that doctors and not insurers decide which tests to run and which treatments are provided, and no one goes without these tests and MS treatments based on ability to pay. In Canada, as in the US, neuros use the McDonald Criteria to dx, so ease of dx is theoretically the same. Here, all provinces and territories provide access to DMDs not just for RRMS, but CIS and SPMS as well, because the Canada Health Act guarantees access to medically necessary services. It's rather cynical to think there's some kind of conspiracy in place that encourages doctors to break their professional oath, not comply with federal legislation, and deny/delay/fudge the results of tests to stave off diagnosis, and deny treatment, all as an effective method of managing the provincial budget. Would seem a whole lot simpler to ditch the system if that were the case.
Seems to me,entirely anecdotally I will admit, that in a for-profit health system where insurers make greater profits the more tests and treatments they deny, it theoretically would be more challenging to get diagnosed and treated in such a system. But yes, anecdotal and possibly way off base. I think when patients have had a long and difficult road to dx, whether in a profit based system, or otherwise, the reasons are probably far more complex than could be explained by our respective anecdotes and conspiracy theories............
Sorry gmac for hijacking your thread!
And I guess just to echo mummy's comments to twopack,I also have never heard that it's harder to have MS dx'ed in countries with universal health care. If anything, I'd think it would be easier since all citizens have access to diagnostic procedures, that doctors and not insurers decide which tests to run and which treatments are provided, and no one goes without these tests and MS treatments based on ability to pay. In Canada, as in the US, neuros use the McDonald Criteria to dx, so ease of dx is theoretically the same. Here, all provinces and territories provide access to DMDs not just for RRMS, but CIS and SPMS as well, because the Canada Health Act guarantees access to medically necessary services. It's rather cynical to think there's some kind of conspiracy in place that encourages doctors to break their professional oath, not comply with federal legislation, and deny/delay/fudge the results of tests to stave off diagnosis, and deny treatment, all as an effective method of managing the provincial budget. Would seem a whole lot simpler to ditch the system if that were the case.
Seems to me,entirely anecdotally I will admit, that in a for-profit health system where insurers make greater profits the more tests and treatments they deny, it theoretically would be more challenging to get diagnosed and treated in such a system. But yes, anecdotal and possibly way off base. I think when patients have had a long and difficult road to dx, whether in a profit based system, or otherwise, the reasons are probably far more complex than could be explained by our respective anecdotes and conspiracy theories............
Sorry gmac for hijacking your thread!
ah heck Mummy, even here its hard to get a Dx sometimes and I've read plenty of posts on here from people in the UK and Australia who say its very hard to get them to actually admit to a pt that they have MS........
I think we are forgetting the basic common sense rule here, Vit E in safe amounts will harm no one and if your neuro says you have enough, they you have enough. I take a maintenance dose because I do stay indoors so much and miss the sunshine which my skin doctor says is not good for me anyway. My own vit D levels are sufficient to satisfy my neuro.
I think we are forgetting the basic common sense rule here, Vit E in safe amounts will harm no one and if your neuro says you have enough, they you have enough. I take a maintenance dose because I do stay indoors so much and miss the sunshine which my skin doctor says is not good for me anyway. My own vit D levels are sufficient to satisfy my neuro.
A question and a comment
1). Does anyone find the get nauseous if they take too much Vitamin D? I am supposed to take 4000 iu but tried taking 5000 and it made me I'll
2). Twopack, I think your previous comment is completely inaccurate. I've never read a statistic that indicates that countries that provide healthcare are less likely to diagnose MS and from what I've read on this board it doesn't matter where you are from, sometimes people are diagnosed quickly, sometimes not... But to suggest that countries that provide healthcare willingly sit back and overlook a diagnosis such as MS is horrible.
1). Does anyone find the get nauseous if they take too much Vitamin D? I am supposed to take 4000 iu but tried taking 5000 and it made me I'll
2). Twopack, I think your previous comment is completely inaccurate. I've never read a statistic that indicates that countries that provide healthcare are less likely to diagnose MS and from what I've read on this board it doesn't matter where you are from, sometimes people are diagnosed quickly, sometimes not... But to suggest that countries that provide healthcare willingly sit back and overlook a diagnosis such as MS is horrible.
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