Recap: dx 1.5 yrs ago after Optic Neuritis, non-specific lesions on brain, a few lesions on T-Spine.
I'm so tired of this conversation when I call my MS Neuro office (I speak to the APRN, or even when I go in and sometimes talk to the doc)
Me: I have XYZ symptoms
Them: It doesn't sound like a new lesion. A new attack would be on one side of your body only (or, would last all day, or .. would be .. would be .. etc) ... you should call your primary doctor.
I never call my primary, because that doc just looks at me and says, "you have MS, call your MS doc"
So anyway, my pins & needles have increased over the past month or so. Mostly in my feet - they'll feel numb after being in the same position too long, and will take 20min or so to get back to normal. Or, I will just have a numb feeling when I get up to walk after being in a chair too long. Also though, I will get sensations in my legs, feet, hands like someone has a voodoo doll, and is just having a blast with a needle and just pricking me. Damn annoying, not debilitating.
Called the MS Neuro this week and they of course said .. doesn't sound like MS because it's not in one spot, it's not consistent througout the day, etc etc etc.
Grrr. Part of me says who cares ;... not like there's anything I can do about it anyway. I'm just tired of sitting here, wondering who I pissed off, and how to get that voodoo doll away from them.
And on a more serious note ... do I just listen to the damn doc as a hidden message not to make a big deal about it, or go see someone else, or .. ? I really like this MS office, it's a very respected MS clinic at Yale in CT. Yet I don't know if my frustrations are with them ... or, with the general unknown of all of this.