How many of you had an early hysterectomy/endometriosis?

[MrsAristotle]

Over the last 2 years I have noted something very interesting. I have met quite a few women either with MS, or in limbo land who had an early hysterectomy and endometriosis.

I am wondering if there is a link.

I found some research in the USA where 100,00 women with endometriosis, 516 developed MS.
100,00 women tested who didnt have Endometriosis, only 73 women had MS.

ALSO fibroymayalgia comes up high too, Out of 100,00 women with endometriosis   5,897 got Fibromyaliga. 100,00 women who didnt have Endometriosis 3,400.

Also Lupus comes up high too. Out of 100,00 women with endometriosis,   842 develop Lupus.
100,000 women without endometriosis only 41 developed Lupus.

When you look at the percentages above they are quite high arnt they?

How many of you on here have had hysterectomy and the above illnesses?

I am going to send my findings to my neurologist just out of curiosity.

I had endometriosis and an early hysterectomy I was about 25. I have either Lupus or MS type illness.

Perhaps when we are diagnosed with endometriosis we could be charted for further problems or something could be done to change this or something???

Sorry brain isnt in gear this morning. Think i have a cold coming.

[legalgirl5]

You made a comment that made me think...

It was: i think your research makes very interesting reading and maybe there is a link, maybe if you are vulnerable to one autoimmune disease then you are vulnerable to having a few

I am a Type 1 Diabetic who also has Crohns Disease and now suspected MS...I would say three is enough!

Susie

[weeme]

i have had endometriosis since i was 13 dx eventually when i was 19 which was 11 years ago now and very rare to have it from such a young age.

i have not had a hystorectomy.

i also have pernicious aneamia!!

not dx as MS but in limbo have lots of neurological symptoms and i am having a brain scan on 2nd Nov.

i think your research makes very interesting reading and maybe there is a link, maybe if you are vulnerable to one autoimmune disease then you are vulnerable to having a few

take care x

[wadeheather]

Wow!
I had a partial at age 29 becuase of fibroids. My chronic headaches started six months later for almost 2 yrs, then four months of normalcy, then this other stuff started and it's been a year now.

All the docs said because i kept my ovaries my headaches could not have been caused by hormones.

[legalgirl5]

Sorry about that I am a goof...I am 47 now and that was in 1997....so...that was 12 years ago....gosh, has it been that long?  Time flies when your having fun!  Anyway....35 years old...duhhh..

Susie

[legalgirl5]

Hi,

I am in limbo land possible MS...We are in the process of doing all the tests

I had endometriosis, cysts and ooparectomy (sorry about spelling) when I was 44.  At 44 1/2 they took the other ovary and did a hysterectmy.

Susie

[TinaMarieTX]

I know this was posted a long time ago, but I just read this and really wanted to post since I too believe there is a connection with endo and MS. I truly believe endometriosis is an immune disorder and immune disorders do tend to run in families.

My family has a history of immune disorders. In my mom and dad's families there are or were multiple cases of MS, Lupus, Thyroid (Hashimotos), Sjogren's, Celiac, Endo and RA. Several of my aunts are currently on thyroid medications. My sister (age 36) had to have her thyroid removed because her immune system basically destroyed it. My other sister has endometriosis.

My problems started as a teenager, but were ignored for a very long time. My endometriosis and adenomyosis were diagnosed at age 28. I had a hysterectomy at 29. Neurological problems started in my 20's, but MRI was negative. Was diagnosed with peripheral neuropathy. I am now 40 and I'm awaiting new tests to see if I have MS.

Was diagnosed with pernicious anemia which is only resolved with B12 injections. I self-inject monthly, and this helps with my mood and vision, but not numbness, tingling, fatigue, urinary and bowel problems, weakness, cognitive difficulty or clumsiness. I tried a gluten-free diet to see if it would help my neurological symptoms, as it did my daughter, but it didn't.

Youngest daughter was diagnosed with celiac (which has been linked in studies with endo) Her neurological problems resolved on a gluten-free diet. Oldest daughter is 16 and is already showing signs of having endo (that are resolved on birth control). She has neurological issues and couldn't walk when she started going through puberty. She had a negative MRI, but was diagnosed with psoriatic arthritis. She is also estrogen dominant like me. Oldest son is 21 and has ADHD and narcolepsy.

I follow medical studies closely because I feel there is a connection that researchers are on the brink of discovering. Perhaps they will be closer to a cure and a way of preventing immune disorders in the future!

Tina