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551343 tn?1506830518

How many of you had an early hysterectomy/endometriosis?

Over the last 2 years I have noted something very interesting. I have met quite a few women either with MS, or in limbo land who had an early hysterectomy and endometriosis.

I am wondering if there is a link.

I found some research in the USA where 100,00 women with endometriosis, 516 developed MS.
100,00 women tested who didnt have Endometriosis, only 73 women had MS.

ALSO fibroymayalgia comes up high too, Out of 100,00 women with endometriosis   5,897 got Fibromyaliga. 100,00 women who didnt have Endometriosis 3,400.

Also Lupus comes up high too. Out of 100,00 women with endometriosis,   842 develop Lupus.
100,000 women without endometriosis only 41 developed Lupus.

When you look at the percentages above they are quite high arnt they?

How many of you on here have had hysterectomy and the above illnesses?

I am going to send my findings to my neurologist just out of curiosity.

I had endometriosis and an early hysterectomy I was about 25. I have either Lupus or MS type illness.

Perhaps when we are diagnosed with endometriosis we could be charted for further problems or something could be done to change this or something???

Sorry brain isnt in gear this morning. Think i have a cold coming.
54 Responses
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551343 tn?1506830518
Hi quix how do we do a poll?

Its very interesting on my other forum I have nearly 20 ladies already with Endo/MS/LUPUS/RA/FIBRO

I am frightening myself now as with this quick response already, perhaps I need to do more research and work out who to send it to. I live in the UK.

Its really looks like a link, so perhaps all the ladies with Endo could be screened for these other diseases over their life time.

I met someone yesterday who told me all her symptoms and I said DID YOU HAVE A HYSTERECTOMY AND ENDO, and she said YES. Its almost like you know they will have had that now.

YES TO POLL anyway if you can sort it out. xxx
Helpful - 0
359574 tn?1328360424
All intriguing.  However, isn't hysterectomy/oopherectomy one of the most common procedures women have?  So wouldn't you need to find a way to look at all the gals who have had this and NOT come down with neuro diseases?  Just saying.
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599170 tn?1300973893
If she was doing a scientific thesis she would because she would need a variable,,,we are simply saying its a recent connection we have all realised how many ms patients had enodmetriosis leading to a hysterectomy it may be a bit too much to be a coincidence.
Helpful - 0
146298 tn?1258712247
Endometriosis is currently my only diagnosis. I'm not getting a hyst tho.
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Avatar universal
I had a complete  hysterectomy when I was 41 after suffering from endometriosis for 5 years.  I have been diagnosed with Myasthenia Gravis and 'Mild' MS.  I am waiting to see another neuro to get a second opinion on the MS. Has anyone else had a diagnosis of mild MS ?  I know there are different types and degrees but it sounds wrong somehow, surely I either have it or I don't?  What concerns me is if it is mild now will it get worse? and do I need medication for it?  Thats why I am seeing another neuro.  Any opinions would be welcome.

Regards
Sparra57  
Helpful - 0
Avatar universal
Something to think about.
I had my uterus removed at age 21 (1976), due to uncontrollable yeast infection, tubes were also plugged. I developed Fibro in 1999 after a Flu shot. With research I felt my Fibro had a fungal etiology. I persuaded my female PA to prescribed Nystatin 1 million units and Diflucan 200mg for 1 month. (I had been a self employedremodeling contractor but was forced to quit working due to the pain.) At about the 6 week mark I noted my pain and other Fibro symptoms were lessening. By 6 months I was once again able to work, lift 50 pounds, sleep at night.

Conventional medicine is so slow in realizing or accepting what all yeast/fungus/candida infection can do. It had taken until 1999 for the Mayo system to realize most sinus infections are fungus and the use of anti-biotics only add to it.

If you check out fungus infection sites on the web you may see a list of your symptoms. It will explain how and why fungus has developed.

You will have to be very persistant with your doctor or fing another one. Fungus infection is not something they learn in school. They need to be educated by patients or experiencing it first hand.

And on last thing, of course, women are more proned to having yeast infections. Lucky us!
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