How many of you.....?

[Quixotic1]

Recently someone challenged me that people aren't dismissed, disdained, discarded or humiliated by neurologists as often as I seem to imply.  How many of you (with a brief description) have come away from a doctor visit angry, in tears, feeling humilated, or feeling ignored?  How many of you have had doctors imply that your symptoms were insignificant or stress-related or imagined?

After the second year that my first "evil" neuro dismissed me as "okay", despite worsening spasticity and then had the gall to suggest that all I wanted was to get medical testing as an attention-seeker (specifically the LP) - I swore that no matter what happen to me, I was never going to risk that with another docotr and cancelled all further appointments.  See my Journal entry.

I would just like to see a showing of posts on who has been treated this way.

Quix

[Lulu54]

All, I'm playing catchup today and checking through lots of posts - this one had me pause and spend lots of time reading and rereading your posts.

There are a number of new things listed here and I hope everyone who wants/needs a reply to their post will start a new one, separate from this.  Many times we skip over something that was started this long ago; May 2008 was 3 months before MS had even been mentioned to me! So please, please start a new thread if you want to get a response to your specific comments.

That said, I just want to say reading all of this makes me want to run screaming from the room.  Even if you are suffering CD or other mental issues, and I'm not saying any of you are, the patient  deserves humane treatment.  Telling a person they are crazy and then showing them the door is not working to heal that person's problems, it is compounding the illness but adding on more problems.  

This is all so wrong - I wish you all luck in connecting with the right doctor for you.   I am in the same situation as lissalou wtih a dx that seemed impossibly simple - so much so that often I stop and wonder if it is the right dx for my situation.  

Wishing all of you better days and doctors,  Lulu  

[lissalou30]

My first relapse was so odd that I didn't even think of going to a neuro. Metal taste in my mouth and slow moving pain that ended in my eye. After many doctors I gave up when symptoms got better. With my second relapse, numb from the waist down, I was told it was anxiety and they tested for diabetes. I went to my PCP on a Tuesday who referred me to a neurologist. I called on Wednesday and lucked out and they had a cancellation and could fit me in that day. I saw him and after a physical exam he ordered an MRI and scheduled a follow-up on his next available day, a Monday. I had the MRI on Thursday and the results were rushed. My Neuro called that same day and rescheduled my appointment for Friday, his day off. I went to my appointment and he clearly came in at 8:00 on his day off, he was wearing golf clothes to give me my diagnosis. I love my Neuro, but his PA always seems to downplay what I am feeling and without my awesome DR I would be lost. Part of the reason I worry about mis-diagnosis is because it was relatively easy to be diagnosed.

[green924]

Hi... First let me apologize because I can't follow & focus on all the posts, but really want to know what everbody has been through with horrible neuros & drs in general. I was DXd last Sept but have had symptoms for ten years. My story is to long to try to recap & some of the reason for my not being DXd sooner is probaly my fault since I only went to the Drs when I had to bc of no insurance... But I have been told I had umpteen different things thru the years with no one even mentioning MS since a neuro dismissed it in 2002. Now the MS specialist I'm seeing is wonderful but cant understand how it had been missed for so long. He says for my age, 29, I have pretty much the most severe case he has ever seen with all my test results being thru the roof??? This probly makes no sense but hope its not too bad :~) Hope everbody has a great day & weekend!!!

Melanie

[cainer]

Mercy-  well  you should ask how  many had a good neuro    to start  with- lol
  wonder if there was  ONE-
  I know its old post   but  me  to   it  was like-  you  dont want  m.s,  do  you-- duh
and  are  you on street  drugs???
  its  really  sad  what  most of us  went  through-
     tick

[jibjen]

Hi,

I'm in limbo but my neuro is labeling my 20 lesions as migraine and old age..(I'm 41)

I have been experiencing symptoms since last June and he insists on theory..All my MRI reports have statements concerning MS and that it sould be included in diagnosis...all consistent with demyelination and gliosis...

How do you have a migraine when the symptoms that last since June and don't go away when the migraine does...And as far as migraines I am lucky if I get one every 3-4 months at this point....

He has weened me off migraine meds to see what I am like w/out them...despite a sinus infection which I beleive gave me a headache...I have not had any..

I am on the wait and see list...

JibJen

[Ufrustrated2]

>>Recently someone challenged me that people aren't dismissed, disdained, discarded or humiliated by neurologists as often as I seem to imply.

and now after all these posts what do these people think about their challenge to you?

i would add to my story above but there isn't any use. you know the story and have seen docs to validate it.

now  i'm in anger management over it and soon to be (some form of ptsd) therapy over it.  and those two things are directly linked to the dismissed, disdained, discarded, humiliation from the world of "getting to the bottom of my illness from the VA".

to be fair: some VAs are heaven and some certainly are not. for those that are good, please keep up the good works.