I know I know...it happens to everyone

[Zacksmomi]

So I got my first SSD denial today.  OK I just retyped that sentence 3 times to get it right, but apparently I am capable of holding down a job.  I hired an agency up front, so I don't have to stress about the appeal.  It is already in the works.

I have had between 6 and 7 flares since Dec of '08 with this week being the last of my 4th round of solumedrol 1000mg daily for 5 days, and apparently my flare ups are not frequent enough to keep me from holding down a regular job??? They are sorry and realize that I can not be a waitress any more, but there is work out there for me. So now who do I have help me find work? Who on earth is going to hire me??

How many times must one be totally out of commmission of 10 days or more before it effects a job?
Oh and I am apparently too mentally stable which just changed,, so we can add that to the list lol :)

UGH!!! Sorry to whine, but I do love that I can do it here.  Thank you all for being part of my life.  Without you I would already be completely unstable and have tons of cash rolling in from SSD.  Oh wait...

I hope everyone here is hanging in there.  Sorry I have been neglecting posting, I just can't do it right now but you all know how that goes.

Best wishes and thanks again for listening
D

[PheonixAbove]

You know, now that I think of it both my neuro and therapist tag teamed the SSDI admin. My therapist with a dx of General Anxiety Disorder. Maybe that's why my claim went through so painlessly.

I still think a lot of it has to do with what state you're in.

[mamiJ]

Hi Zacksmomi,

From two family members that went through the SSD process (not for MS, though) the way that BOTH of them ended up getting approved was by a physchiatrist (sp)
My mom has 3 or 4 different health problems that should have qualified her....she had pages and pages of documentation from doctors and they turned her down twice.
A relative that was approved for SSD told her to re-apply, but to add mental issues and she would more than likely get approved...and she did.

it seems like mental issues outweigh the physical ones with SSA...find a pysch dr and complain like crazy about how your health is affecting your mental status.

It's sad that it's like that...but, that was what I have been told.

Hope it all works out for you.

[addicted2harleys]

Hey D-

I haven't talked to you in a while.  I hope you have been getting a relief with all of your symptoms.  Did you ever make it to the specialist about the sarc?

I am sorry you got denied.  Even if you lose this first appeal, don't stop.  Keep following the steps.  I also heard from my SSI attorney that fatigue is a biggie to push.  And making sure that all of your med records are included.

Good luck with the appeal,
Addi

[Zacksmomi]

Thanks all for the tips and info.  I will get all over it.  
My last records were picked up by SSD April 20 and I have a whole slew of new stuff going on since May.  I also have a possible secondary dx of sarcoidosis.

Fatigue is definately overwhelming me so I am glad to know to push that more.  

Alex I really am curious about why they told you not to bother?  That is the craziest thing I have ever heard?

Take care all
D

[Lulu54]

Just last night I was reading a piece onthe MS Consortium website about SSD.  Do you know it now has its own category and fatigue is the key symptom that can get this approved for you?

The article was written by an attorney who is active in the MS community -  you can read it at  mscare.org

the link is down the page just a bit under What's new: Experts.

While you are at this site be sure to register with the NARCOMs group - this ia  database of MS patients and it is used extensively for researches.  Yes it takes some time to complete the survey, but it is worth it if you a making a meaningful contribtuion.

be well, Lu

[michelleric]

Sorry to hear that Zach, but good you already had plans made to have the appeal in the process.

Alex,  why did the lawyer tell you not to bother? Just curious...
Michelle

[PheonixAbove]

That just *****. I also think how bad the process is depends on what state you're in. Here in Massachusetts, mine went through the first time without a lawyer. Of course, it took just over a year of waiting while I plowed through the last of my IRA's just to live. (I'm caretaker to an elderly grandma too.) Don't know if that had anything to do with my SSDI going through the first time.

From what I've read around different boards, you have to keep trying, keep picking at them. Maybe better to hire someone like you've already done since it's obvious you're in the middle of a flare. I wish you luck and godspeed.

[HVAC]

I talked to a lawyer who came to our MS Support group. He said everyone should apply. When I told him my story he told me basically do not bother.  So I am lucky to know it is too late for me. Keep trying.

Alex

[RedFlame]

That's awful!!  I'm sorry you are going to have to go through this again.  I sometimes wonder why the people that make the disability determinations make the application process so hard.  

I've heard that most everyone is denied the first time.  I'm glad you have someoe to file this for you.  

Sorry you have to go through this!

lois

[Sparkysarah]

The great thing about this site is that we can all be there for each other through thick and thin. When we hit low patches then there is no need to apologise for not posting in response to other people's threads..sometimes we need to give and other times we need to take. That means there is no need to reply to this and just know that we are all in this together.

Love and hugs

Sarah