If its not MS, what could it be?

[NotCertain1979]

I have been dealing with this since 2010. It started when I was at work(I was a typist), I started to began typing really really fast. My coworker says to me "dang you are a fast typed". When I opened my mouth to reply she and I noticed that I began to stutter. She knew that was not normal for me. I also began to tremble and shake all over, so bad to where I could not stand to walk. I goes to the ER by ambulance and the nurse could not figure out what was wrong. She left me in the room with my mom for 45 mins before the physician came in. He did his normal tests, I had no reflex on my right knee. He then asked me to get up and walk and to his surprise, when I tried to take a step with my right foot, down I went. My right side was paralyzed. Had a MRI, no stroke, no lesions. Only thing abnormal was my white blood cells were high and after 2 days in the hospital still can't move my right side. The doctors were baffled so they came up with encephalitis hashimotis. Sent me home after I regained movement on my right side after 4 days of being in the hospital. Everyday after that, my right side had stayed weak. Then I started developing pain, dizziness and nausea. In 2011 the exact thing happened again on the right side, this time I stayed in the hospital for over a week until I regained movement. Again, MRI normal and negative for lesions, spinal tap was normal as well. The same neurologist told me I needed to see a psychiatrist! Seen the psychiatrist and was told there is nothing wrong with me and I didn't need to come back! I remained having the pain in my legs and arms and lower back till this day. The fatigue takes over my life, My legs are so weak they shake when going up and down stairs, I can't walk a certain distance before I have to stop and sit. I can't lift my arms to blow dry my hair and to comb my hair. I can't do yard work or wash my hair due to the lower back pain. I was on the treadmill one day and my left leg started dragging so i jumped off the treadmill and got on the exercise bike only for my left foot to completely drop off the paddle. I finally went to see another neurology doctor and he was even worse. He said it was due to lack of excersice. He went on and done some lab work and sent me on my way. Well a couple of days later he calls to say my creatinine and adolase ( I hope I spelled that correctly) were 10x higher than normal. My vitamin d level was at 5! So he says it looks like I have a muscle disease. I gets a muscle biopsy and that was NORMAL! NO MUSCLE DISEASE DETECTED!  I am so tired at this point. So he does another MRI and spinal tap because he's thinking what I have been suspecting all along MS. Again no lesions on MRI but I do have 12 obliclonal bands. This is where we stand to this day with no definite answers. He does a CBC and I go back August 30th to get some kind if results. He says if nothing shows he will be referring me to a rheumatologist. Some new symptoms are numbness at the bottom of right leg and tingling sensation in my foot and hands, some vision blurriness and when I try to open something or reach for something my hands shake real back. I still have the weakness in my legs and arms which I think is worse, the fatigue is getting worse and the pain is too. I'm thinking my neuro doctor has ruled out MS due to no lesions.

I apologize for the long story but I really need some input please. I have been dealing with this for 6 years. I am currently on short term disability through my employer due to all my symptoms is getting worse and still not having a answer for all of this.

[immisceo]

Just to echo what JJ said, I can not address your question as I find it quite difficult to read and focus on without the use of paragraphs. This is a fairly common challenge for people who participate in this community.

[supermum_ms]

Hi and welcome,

Could you please brake up your posts into small text blocks, people with MS commonly have visual and or cognitive issues that makes reading large blocks of text difficult to follow....ta

I did get through your post but to be honest from what i can work out what you've described wouldn't be typical of MS, it first presented with symptoms more resembling a stroke than MS. It's more common for MS to present with bilateral but you experienced paralysis and verbal communication issues which when related to MS, are usually associated with long term MS and not a first attack.

It's also isn't typical to still not have any lesion evidence of MS in 6 years (2010-2016), Multiple Sclerosis literally means multiple scars so when there isn't any showing up in the brain and spinal cord with symptom progression, MS becomes a less likely cause.....

You have some diagnostic evidence of something being wrong in 2010, your white blood cells were high and no reflex in your right knee, your LP was initially normal in 2012 but this time you now have 12 obands, obands that appear in BOTH the blood and the CSF basically cancel out, so an important question would be if these obands were a positive result because these 12 obands were only UNIQUE to the CSF.

Your is  creatinine and adolase are 10x higher than normal and your vitamin d level is low so something is going on but your diagnostic evidence is not specifically pointing towards neurological conditions like MS. Polymyositis (connective tissue disease) was at the top of my thoughts but I'm not at all sure of what condition(s) it might be because your muscle biopsy was normal and you haven't mentioned if this latest neuro found you to have any abnormal clinical neurological signs.....i can't come up with anything specific sorry but it might actually be a good idea to get the opinion of a rheumatologist anyway...

Hope that helps in some small way...JJ