ruling out ms again

[Joiedecour]

So I put call in to neuro to ask if she can definitively rule out MS now. My understanding is that there are categories - not, possible, probable and definite. She won't answer that. All she is saying is that there is no evidence of demylination on scans. Is that the same thing???????

[Joiedecour]

Thank you, Alex. I am getting physical therapy and was offered amantadine. Some of my symptoms have been and gone - one week of urinary issues, and three separate visual disturbances so those are apparently anecdotal. The paresthesias, headaches, lightheadedness come and go too, but usually have something going on with left foot, leg most days. I guess I just have to wait it out until it's all more obvious, as well as find a new neuro for the future. I really appreciate your reply and insight into how it all works with neuros. She does want to see me in 4 months, although I have no idea why given what she's communicating to me.

[Joiedecour]

Kyle, thanks, you're a genius : ) I was interested in 'throwing in towel' post which reminds me of much of what I've heard from my neuro too - lesions too small, not in right place, wait for another event, etc...I am going to take a break from it too and deal with it all again at next flare of symptoms. Thanks for your response.

[kwarendorf]

Einstein said that the definition of insanity was doing the same thing over and over again and expecting different results.

Going back to the same neurologist and expecting to hear something new, with the same set of results, will not get you anywhere. It remains my opinion that you need a new neurologist.

Kyle

[HVAC]

The short answer is no. For a diagnosis these days you have to have something show up on on scan for the insurance. I have very few lesions and I have had MS 40 over forty years. It was my lumbar puncture which got me my diagnosis of MS in 2009. I was first hospitalized in 1965. Sometimes it does not show up on a lumbar puncture either. Are they at least treating symptoms? The way a Neurologist's mind work is not MS until everything else has been ruled out and they decide it is MS. I went to only one Neurologist in the middle of my diagnosis who said it was not MS. Another Neurologist told me not to take that as a definite and I was
diagnosed with MS a year and half later.

Some people come to this forum and find out they do not have MS but something different.

Alex