Hello guys :)
So far, no change in my symptoms, except the hungover feeling is worse on some days than others. I have my C-spine MRI tomorrow, I'm hoping that will help us out with some answers.. Wouldn't that be great if it was just a little spinal cord compression due to some stenosis in the c-spine??
I got some lab results back today and I'm not really sure what to make of them, again, it's one of those things that could mean a lot of different things :/
Path CBC: reactiv-appearing WBC's, otherwise normal appearing smear. Clinical correlation is advised. The doc ordered this test because she said she was concerned that my WBC's had been consistently elevated for an extended period of time and was wondering why no one caught it.
ANA screen: Positive
Interpretaions: If ana is positive, but negative for all listed antibodies, then it is positive for one of 118 non-specific autoimmune anitbodies
I think this are a cardiac panel
CK- 122
CK-MB- 2.2
relative index- 1.8
These values are listed after the ANA screen:
DNA DS AB- 4
HISTONE AB- 12
ANTI-SMITH- 7
SSA AB- 246
ANTI-RNP- 21
SSB AB- 10
CENTROMERE AB- 21
JO-1 ENA- 26
SCL-70 ENA- 126
They didn't include any reference ranges for the above results, so I am just waiting now to go back to the doctor next week to go over everything.
I'm thinking the SSA AB is whats abnormal and maybe the SCL-70 ENA slightly as I think anything greater than 120 IU/ML is considered positive, but i'm not definate.
I also found out this weekend that my paternal grandmother was diagnosed with lupus several years ago and is bed ridden at this point with severe pain and paralysis. I don't have a close relationship with my biological father, but I finally broke down and called him to see if I missed somthing in the family history..
I have researched lupus, but I don't have any of the dermatological issues that are usually present. no rash, no photosensitivity, definite heat intolerance but thats all. I will do the c-spine tommorrow, and I am seeing the eye doc next week to look into the visual disturbances I've had. I am hoping that the new doc that ordered these tests will have some good news for me. She is in internal medicine, but the doctor that is over seeing her residency is a rheumotologist, so at least I will have a few more bases covered.
Any input on my labs would be greatly appreciated. I am getting really rundown, I have stopped taking my neurontin because it makes me soo much slower and scatter brained than I am already, It has even hurt my ability to have normal conversations. I think I am going to go back on and only take it bedtime though, because the pain is getting unbearable again.
I go home to Florida next weekend and I'm soo excited!! I can't wait to see my family, my home and grass and trees again!! lol, Any suggestions on somthing I can take to help with the neuralgia that wont keep me on the couch the whole time?
Thanks for all your help guys!! :)