LP-headache, I want to scream

[Sunnytoday]

It's worse when I stand up. The only thing that makes it better is when i lay on my side. Yes, it's worse than yesterday if that's even possible. I have migraines, and this is the worst one I've ever had in my life. Just tell me how to get rid of it please. who do i call, NYU or the lab?

What is causing it? If it is leak would you see it?????? my mom wants to know. I'm laying down now, and my handy laptop is on my tummy,

If I stand up I get short of breath and gaspy, i think it's from the pain.

i hope you don't mind i started a new thread, i needed you to hear me.

any words of advice would be welcome.

i just want to be done with this, i can't scream becuase it would hurt more. It hurts and is even hard to swallow. My eyes are still a bit swollen but they do look a lot better from yesterday.

the only tiny bit of relief i can find is to lay on my side. my back still hurts that way and sounds like popcorn when i breathe but ti's a lot better than that awful pain in my head that just makes me want to breathe funny, and throw up and everything. I took my migraine meds this morning, Frova, and i haven't felt anything from it yet. Bummer.

not very sunny at all, in a lot of pain, and blurry eyes,
~Sunnytoday~

[Sunnytoday]

hahahah.... thankfully my local FRIENDS... don't read this.. they wouldn't appreciate being called fiends. Gracious. The spelling is atrocious.

~Sunny

[Sunnytoday]

quix, deb, laura, and rena... and  everyone else....thank you.

Still same NO bettter. Still laying flat. Dumb head-ache.

A question:

Anyone out there figured out how to eat soup while laying flat on their back? Smile.

Well, I've made it three full days, either this pain is getting normalish or now i'm just getting fuzzy. My folks say i go gray when i stand up to go to the bathroom and then i return to a normalish color when i lay down.

It's Sat. so i was good and didn't post Friday night.

I'm glad you guys say this is going to end. Becuase if you didn't, well....

I'm thinking today i'll have to figure out something fun to do beside stare at my why ceiling... and you're right my computer doesn't help any. I do feel bad missing most of the past two weeks and not welcoming anyone or anything. :+) I think I'll take up your ideas and dig out some ice-cream and see if a fiend or two can't come over for a movie. Hopefully they won't mind my crazy hair.

TTYL,
~Sunnytoday~

[Lulu54]

Rena is absolutely right - if you are reading this on Friday night turn off the computer and stop adding to your strain.....  I will be anxiously waiting to hear froram you on Saturday and hoping it will be better news.  - Laura

[Rena705]

I agree with Quix honey...you need to STAY LYING DOWN!  You ONLY GET UP TO PEE or poop and then you go lie down again!!  When you do get up you bend over at the waist and walk to the bathroom in this position...you want to keep your head below your shoulders for the most comfort ok?  You need to relax and put in a good movie and have little stimulation...get off the computer...you need to have your head down...not tilted toward your tummy...you need your eyes to rest...you need to rest.  I know it is incredibly boring but if you do take some of the pain meds that the dr. prescribed, while I don't honestly think they will do anything for the pain they may relax you and convince you to sleep and at this point I think it would be the best thing for you.
Ok... I am finished sweetie but please try to relax and just lie still ok?  I am sure you will be fine but it does take time and your ability to remain still is also going to make you heal faster ok?

SO...take your pill...go do a pee...lie down and shut off the computer and tell Mom to take it away for tonight and we will talk to you tomorrow ok honey?  We will all be here thinking of you but you won't miss anything I promise and think of how much more you will have to look forward to reading tomorrow when you get up ok?

Goodnight sweetie and have sweet pain free dreams ok?

Lots of Gentle Sunny Hugs,

Rena

[Deb61]

You may me laugh, even when you're in pain!  You are such a sweetheart!  

I feel for you, honey.  I've been there.  As soon as Monday morning 8:00 rolls around, I'd call NYU.  I think as soon as you call, they'll set you up with a bloodpatch in 'Bama.  This will provide instead relief and you'll be back to feeling half-way normal (whatever that means, huh?).  

Try to keep your spirits up, it really does help.  Don't let yourself get upset.  I remember crying my eyes out one day, and it really made things worse!!!!!!!  I can't think of any other time that I was in such hideous pain, either--and I've had two babies and have had a major surgery!!!!!  Remember to keep those spirits high--watch comedies, eat your favorite flavor of ice cream, have someone paint your toe nails, and by all means write to your friends on this forum!!!!!

:)  Deb

[Quixotic1]

Stay flat as much as possible.  Tell you parents that I prescribe "Being waited on, Hand and Foot, for the next three days."  If the headache doesn't begin to ease up, you will need a blood patch.  Put in a call to Dr. Kister.  Let her/him know what has happened and that they let a resident do the patch and that he has denied that you could have a spinal headache, because he is too good.  Ask if they would intervene on your behalf to get the blood patch done under fluoroscopy, if you need it.  

Take care, hun, this will pass.  I have had one from a botched anesthesia and I do know what you are going through.  It's what I use as my "10" when I have to rank my pain level.

Everyone is correct.  If you ever feel that you are not in good medical hands, you have the absolute right - even in the middle of a procedure - to tell them to stop and that you want a different doc.  You also should not let this resident do the blood patch.  If he is dismissive, then he is being taught to be that way, and we see where all the arrogance comes from in the neurology specialty.

We need never accept medical care from a doctor who is uncaring, seems incompetent or who insults us.

Quix