Just an update

[MonkeyMom4]

I went back to my PCP today just for a discussion. To try and regroup and get some answers as to what to do next.

We had a great conversation and he said all sign are pointing to MS, but of course he wouldn't be able to dx, the neurologist would need to.

I asked him if the neuro would even dx it b/c my mri was all clear. He said that they could do a clinical diagnosis and that there are treatments that can help stop the progression. But he made it clear that I need to go back to the neuro.

He said if the neuro appointment doesn't go as planned then he would not hesitate sending me to Iowa or the Mayo clinic...he said he would prefer the Iowa hospital vs. Mayo. He said he would send me anywhere really. This made me feel so relieved.

To have a doctor acknowledge your symptoms is comforting, it makes me feel less alone.

He then said that I was not allowed to leave until I had an appt. scheduled with my neurologist!! The nurse called and guess what?!? They are able to get me in on May 3rd....of this year!!! Can you believe it!! I was shocked...I said do you mean June 3 and she said no, May 3rd. YIPPY!!

So, we'll see how that goes.

Thanks for listening...I just had to tell someone.

As others have posted on here, I'm kind of riding solo with all this medical crap. Nobody but my co-workers knows about my appointments really. So, I'm really glad I have you guys/gals on here.

[MonkeyMom4]

Wow Lisa! Great article. Thank you so much!!

Alex, thanks for your encouragement. All of you wonderful people continue to give me hope!

Thanks again!

[HVAC]

We will keep are fingers crossed with the Neurologist and this turns into a dead end try another and keep trying until you get an answer.

Alex

[LisaJF]

I am so happy for you to have an appointment so quickly!  I am sorry for all your trials and tribulations with your ailments and obtaining a diagnosis.  This path alone can be the most frustrating.

I'm also happy that your PCP is a diligent and empathetic person.  You dont get that around here much these days.  I'm relieved to read that you are comfortable with him.  One thing I hate is when PCP's dismiss their patients as if "we" are putting them through a ringer, when in fact it is "we" who are going through it.  It's not like they are not getting paid to do their job. :)

I'm very happy that you're on the route of discovery and hopefully a final diagnosis so you can be actively treating your body medication that could slow the progression.  There was an article posted here a short while ago by someone from the forum, where they feel that early intervention with DMD's before diagnosis is encouraged.

I found it!

http://journals.lww.com/neurologynow/Fulltext/2011/07020/An_Ounce_of_Early_Intervention__Can_early.15.aspx

(I've been bookmarking these links in wrong areas! I must learn to make a folder for them! They are all over the place!)

Let us know how it goes!!!

Hugs, Lisa