frusttrated timberwolf63

[timberwolf63]

hi ive been tested for Ms since lkast july no diagnosis yet.havinf really bad balance issues my memory does not  seem mto mbe as good as it used to, my husband is telling me i get, lost very quickly.i was just tested for meneres disease last week.i am having symptoms of leg pain  it jjust starts for no reason.im also having randome pins and needles in my rt arm. my primary dr is saying my rt side is weaker then the left.i do not know if its time i mtry to mfind a MS specialists arre stay with my  neurologist he says he is a bout 75-80 percent sure i have ms but does not want to give me any meds yet.im having a ,lot of dizziness spells which is knew. im also all of sudden started with nausea and abdominal pain which some people are saying ca also  be symptoms of MS.

[HVAC]

Sounds like you have a good doctor sorry it is taking so long to find an answer. There is no magic in medicine unfortunately. It took me 46 years to figure out I had MS and 4 to figure out I had Cancer which was worse since the Cancer was spreading. I had good Doctors looking for things they just could not figure it out. Hopefully you will get an answer soon. My MS took a long time because I started with PPMS as a child and it progressed slowly. It just did not fit the typical MS. Back in the 1960's they did not know children could get MS. They also did not have MRIs. I still only have three or four lesions. My LP was off the charts so I was finally diagnosed with that.

Alex

[timberwolf63]

i have been testes for lymes disease lupus and  about 8 auto immune disease everyone came back negative.thats why my nerologists is still sticking by me.he is the type that will keep digging until he finds out whats wrong with me.he also specializes in Ms as a second background.timberwolf63

[timberwolf63]

i have had 6 positive mri of my brain but nowhere else timberwolf63

[Ricobord]

Balance issues, memory problems, getting lost, meniere's, pins & needles, muscle pain, dizzyness, nausea, abdominal pain, and demyelinating lesions can all be symptoms of Lyme Disease. With leg pain, abdominal pain, and lots of neuro symptoms, you are a really good candidate for a coinfection called Bartonella, too.

You are in Lyme country, so you'll want to get checked out for Lyme Disease before you take any immune suppressing drugs.  They make an infection much worse. Standard blood tests produce way too many false negatives, so a negative does not exclude it. My Lyme mimiced MS, including the numerous brain lesions in my white matter. I also have Bartonella.  I had most of the symptoms you describe.

You are welcome to come tell us your symptoms and progression on the Lyme Disease forum and see what others think.  We have some wonderfully supportive and knowledgeable people there, too. (The folks here are awesome!)

[HVAC]

I know you are frustrated and want an answer. Perhaps seeing a MS Specialist would help. Many Neurologists follow you a long time especially if you do not have MS lesions on a MRI or a Lumbar Puncture with evidence of MS. It took me two years and the positive Lumbar Puncture before I was finally diagnosed and tons of blood work to rule out anything else. I had 5 positive MRIs. The insurance companies want the doctors to be very sure before they can give you the MS medications. MS medications are have a lot of side effects and are thousands of dollars a month so they want to be sure. I am sorry you are going through this.

Alex