OKAY I'M GONNA TRY THIS AGAIN!

[sandie490]

I am in the process of trying to get a diagnosis.  here are my symptoms,tell me what you think.

Twitchiing fingers, face, hands, toes, and other parts of my body especially strong popping or jumping muscles under the skin on back chest and thighs.
tremors in hands especially left, left leg, and inside my body, along with pins and needles along my extremities.
bladder problems. had 2 infections within 2 months, seems to be a burning there, and incontinence all the time. don't know it's gonna happen, urge to pee strong several times a night also.
cog problems, walk into room don't know why, have trouble talking, stuttering,memory etc
vertigo some days worse than others always there
pain in face, nerve pain different parts of body. neuro said i have lhermettes sign, stays with me on and off all day.
eye twitching but also feels weak sometimes hard to keep it open
sexual dysfunction, totally. doctor gave me viagra
need cane to walk, left leg numb and weak pins and needles.
lips and chin numbness pins and needles and i  think i have that tn pain occasionally
fatique bad
nerve pain/sensation when i start to fall asleep wakes me up several times asoon as i cllose eyes
left arm falls almost useless when walking numb and pins and needle
i think i might have had an ms hug the other night.  weird strong burning pain came over me on the right side of back.t
traveled up my back and wrapped around to the front
squeezing and bad muscle spasm like pain could not breath right, hard to breath in. rested awhile, it actually hurt inside my body also. waited got up half hour later. started again.  next 4 days just very soar couldn't touch my skin.
that's anouther symptom hurts to be touched can't handle heat, hot showers hurt.
light sensitive
mri T1,T2 strength showed one single lesion. dr said everybody gets them don't worry.
49 yrs old female. i do have lupus, in remission, diabetes type 2 non insulin under control. ebv, and fibro19yrs.
my sister was diagnosed 4 mths ago. she called me up and said get tested i think you were misdiagnosed. and that's it folks.  
i know it's still long this was the best i could do. have a different neuro app in summer one who specializes in ms.
something is definitely wrong. i am getting new symptoms every week. the lupus and fibro never felt like this.
my sister and bro in-law and mom think i was misdiagnosed with the fibro.
anyway are any of these symptoms consistant with ms to you. after reading experiences on this forum, i would have to say yes in my opinion.

[Quixotic1]

Hi, Rabi,

This is a forum for Multiple Sclerosis a neurologic disease.  We aren't the forum for dealing with diseases or problems with the skin.  Please repost your questions onver on the Dermatology Forum at

http://www.medhelp.org/forums/Dermatology/show/65

Do you have MS?  Are you asking if this is a symptom of MS?  Are you on an MS medication?

Quix

[rabi503]

i hav skin itching on my feets after i wear shoes or sandals
the area becomes red n later skin flaps are removed n skin over that area is not soft bt its like sheet
wt shud i do ???

[slightlybroken]

Sounds like you got the brush off from those neuros....I would try to find a good one in PA and start fresh with someone who will listen.

Make a good timeline like the others have suggested (how your symptoms behave, when they have come on, how long they last).

It is very intimidating when you have health issues and these doctors don't seem to care. Some people might have lesions with no apparent reason. What I think shouldn't be ignored is when a patient has symptoms of something neurological going on and lesions. They need to investigate, what put the lesion there to begin with.

[Lulu54]

If you take the time to compose a written timeline, you can fax it in advance to the doctor and tell them you want it included in your medical record.  As for forcing them to actually read it, I'm not sure how to accoomplish that!

Lulu

[sandie490]

Hey!

The only thing that is really bugging me is, the first neuro that i went to,first of all is the only neuro in my area. I live in south jersey.
He told me after i had the brain mri, that there is one small lesion.  the report said, it was a little suspicious of ms not sure if it's demyeilating, further correlation needed.
He didn't even read the films, he said he doesn't read the films he doesn't feel it necessary. When i tried to ask some questions he got up, walked to the door and opened it for me to leave.
Second neuro, little further south told me don't worry about the lesion everyone gets those.  But I really didn't tell him about all of my symptoms, because when I handed my list of symptoms to the first neuro, do you know what he said to me before he opened the door for me to leave, when I handed him my list of symptoms? "Oh, don't give that to me, I don't need to read that!"
So, when i sent to second neuro, I guess I felt unsure of what to do. I guess a little intimidated.  
You see, I am also in the process of moving to pa, so I think the second neuro didn't want to get to involved.  He did say though, the Lhermittes sign that I have  a symptom that is mostly associated with ms so follow it up when i get to pa.

[Lulu54]

Hi Sandie,
Thanks for doing this again - it makes so much more sense to me tonight :-)

The symptoms you describe definitely fit the profile of MS, but your history is muddied with the Lupus, Fibro and EBV, which can mimic MS symptoms as you well know.

Having a close family member with MS increases your chance of having MS as well.

Is the new MS neuro you are seeing the same one treating your sister?  I sure hope this new doctor helps you sort our everything.

In the meantime please take some time to look over our health pages (yellow icon, upper right side of this page) and learn more about MS, the diagnositc process and constructing a timeline.  The timeline will be very useful to you and your new doctor.

I hope you will stay in  touch here and ask all the questions you want, ok?

be well,
Lulu

[slightlybroken]

The lhermitte's sign is indicative of something neurological going on. Have you had any other abnormalities on exam? You wouldn't get that sign with fibro. You definitely need to be re-evaluated.

[jensequitur]

First thing to do is make sure that your MS hug was an MS hug.  Heart problems manifest differently in females, and sometimes the pain is referred to the back or elbow.  Definitely make sure that it's not the heart, first.

I think you already know that your symptoms are indicative of MS.  Fibromyalgia and MS have similar symptoms, but as far as I know it doesn't come with cog fog or tingling and numbness.

I was diagnosed with one lesion in my brain - a large 5 mm one in my right cerebellum.  Because of its location and shape, it was indicative of MS.  If a lesion is touching the vascular areas, or if it's infratentorial (outside the brain, but inside the tentorium -  the bag of skin inside your head) then it's definitely indicative of MS.  

I've heard that everybody gets lesions.  But MS lesions look distinctly different from ischemic lesions, which perhaps the neurologist is thinking of.

So I would definitely pursue the diagnosis.  A timeline of your symptoms couldn't hurt - keep it simple, one page, and try to date the symptoms and the order in which they occurred.