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572651 tn?1530999357

Weekly roundup.

Greetings, everyone old and new here on this wonderful forum.  It's another week - so give us a peek into your week and what's happening that you would like to share........

Good or bad, we like to know,
Laura
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4661387 tn?1359415198
Oh wow Kelly97,
You have a very busy week this week. I pray it all goes smoothly and you get the news or answers you need from all your doctors appointments and have a fantastic lunch with your friends/co-workers!
Helpful - 0
4661387 tn?1359415198
Hello everyone! Well my week...Imy hubby bought me a Mini Rex bunny rabbit on Sunday to help me with my therapy I get really anxious and stressed out in crowded places, loud places and anywhere in between at times...so he and the doctor thought this might help. There is a photo of him on my page his name is Chaos Max.

They are changing up some of my medications because I am  having a rage/anger reaction to something and the only new one I'm on is Zoloft but instead of taking me back off the Zoloft they took my Savella because they think the interaction is between both of them...so now the nerve pain in my legs is so intese that I haven't slept for the last two nights and am fighting this pain moster each day as I'm awake.

I don't have any appointments this week but would like to get a call stating they moved my neurology appointment to a lot closer date, currently last week of February. Things seem to be moving along in our house this week.

I posted a fun 10 things I love about my incurable disease post and would love it if you all wanted to chime in on it. I had fun making my list. I had even more fun laughing at my spelling error in the title and in my post. :)

Tadaa to a great week everyone! Best wishes and prayers to you all!
Mellie~
Helpful - 0
Avatar universal
My daughter visited overnight from college.  She graduates in May.  I love to have her home.
Just visited my new Myastenia Gravis specialist, who told me I definitely have MS and possibly MG as well.  He was wonderful, and the meeting was all about what am I thinking? what questions do I have?  My neuro is on board and verifying all things are considered as we go forth with the assumption of 2 auto-immunes.  
Boy you never never know where your path will lead you.
While I'm not anxious to be diagnosed with 2 auo-immunes, I'm happy to start moving forward.
I start Intravenous immunoglobulin infusion this week.  Work is intense and super busy which keeps my mind busy. Good to keep busy

Maureen
Helpful - 0
1832736 tn?1325082968
Spoke with my new long term disability manager, those calls are always fun, "so what is stopping you from going back to work or maybe learning a new career?"  As much as I would love to go back to work, I'm just a little too messed up to return to work or learn something new, pretty much the same questions as the short term disability manager.  I'm fairly sure she has the file sitting in front of her or on her computer, along with all the files from my neurologist.  

Wednesday its time for the annual physical, hopefully that will be all for the rest of the week.      
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751951 tn?1406632863
Colin, did we ask, where in OH?
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1045086 tn?1332126422
Today was a called update to the cardiologist.
Tomorrow it's the pulmonologist.
Thursday it's the orthopedic surgeon.
Friday it's the dermatologist.

I just wish one of them could/would actually do something to help make the piece of me they're in charge of work a little bit better.

Oh wait.  I picked up new glasses on Saturday.  I can see better at distance now.  Give me a few days and the bifocal might kick in too :)

Superbowl..... Signals the end of a season, yes?  It would be a real blessing to think the constant whistle sounds from the next room were coming to an end... if experience didn't tell me the Peter Pans of the world will simply use this occasion to change the shape of their game ball.... and move those incessant whistles into a huge echo chamber.

Needless to say, I'm no fan.  I'll spend Sunday at a granddaughter's divisional swim meet.  No noise there!  lol
Helpful - 0
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