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420469 tn?1217647363

Well, that was a waste!

Well, that was a waste...

My appointment with a new neuro ended up being not only a waste of my time, but also another bruising of the mind. I feel not only let down, but I feel spoken down to, and duly chastised.

It started with her asking why I was there, I said "I have a bunch of odd stuff going on", so she asked for my symptoms, I started talking, and then told her I had a list, if she wanted to see it. She basically sneered and said "I just want you to tell me what's wrong". Ok, note to self, this is a NO nonsense doc. So I answer her questions very shortly, no chit chat (I'm a friendly person, so this is a bit tough for me, but I stick to it).

She says "You've had and MRI of the brain, and it was clear", I say "yes", I think "yes I did, on a 1.0 Tesla, with no contrast, but yes". She asks if she can examine me. "Sure", she tells me "your husband can wait in the waiting room", she sounded like she was granting him permission to do so. Nice....ok, whatever.

She does her exam, and then says "you can get dressed and meet me back at the office" (we'd moved to the exam room), so I meet her back at the exam room. She says my neurological exam was totally normal, then tells me "I don't know what you're worried about, but you should just be happy your brain is fine".

Elapsed time for all of this? 15 minutes.

Nice...

This WAS my second opinion. I don't think I can bother to fight anymore. If it's neurological, and if it happens to be MS, eventually there will be a big relapse, but I just don't feel like fighting anymore. I'm very very frustrated, and now doubting myself (even if the psych eval was normal).

Arg!

Christine
(un-dx and apparently not sick)
22 Responses
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228463 tn?1216761521
Just another opinion of mine.  My hubbie thought the same thing about the rheumatologist and I said well what the heck it is worth a try.  I went and he was very nice and personable, very unlike the neuros I had seen so far, BUT my last appointment was yesterday and he left it at " well I can explain the symptoms in your legs by your back degenerative disc disease but that really doesn't explain the symptoms in your arms or your eyes".

He gave me a strong antiinflammatory that does help even thoguh I did not realize I had back pain before and he also gave me something to help me sleep, but I am afraid of getting hooked on it.  Anyways point is you may not find all the right answers yet but if you are uncomfortable look everywhere for answers.

It does sound funny to wish for paralysis or a really big relapse but I know exactly what you mean.  At least then the doctors can't say "you look to good to have MS!!"  If one more person tells me I look good I think I'm gonna slug them! LOL

Hang in there and we will keep praying that it WILL NOT take 20 years to get an accurate dx!!
Big HUGS!!!
Kristin  
Helpful - 0
Avatar universal
SWEETIE,

I AM SO SORRY YOU HAD TO ENDURE THE RATH OF A CRAPPY NEURO.

ONE MORE FOR THE WEENIE ROAST,ITS TIME FOR ME TO MAKE ANOTHER VOO-DOO DOLL.

MY LAST NEURO EXAM TOOK WELL OVER AN HOUR AND A HALF,THE ONLY THING THE NEURO DIDN'T HAVE ME DO WAS THE HEEL TO TOE WALK,STAND ON ONE LEG AND SO FORTH DO TO MY LEG BRACES.

SHE DONE AN AWESOME NEURO EXAM.

MAYBE YOU SHOULD DROP A LETTER IN THE MAIL AND EXPLAIN TO HER HOW RUDE AND UNETHICAL SHE WAS.TELL HER YOU HAVE GOTTEN BETTER SERVICE AT A RESTERAUNT.

PLEASE DON'T GIVE UP,IT TOOK ME 4 NEURO'S.

REMEMBER STELLA(THE GOOFY NEWFIE) IS THERE FOR YOU.SOON AS I FIGURE OUT HOW TO PUT PICTURES UP I WILL OF MY GOOFY NEWFIES .

PLEASE HANG IN THERE,WE ARE HERE FOR YOU.

T-LYNN
Helpful - 0
433467 tn?1223000202
It pains me to read these posts from people who have to go through this nightmare with doctors.  I am getting strength from this community to continue the fight for a dx.

Something very similar has happened to me the past month that you just experienced.  I'm thinking we visited the same doctor or they are related!!!

I'm sending positive thoughts your way and wishing the best for you.

Hang in there.
Challenge
Helpful - 0
199882 tn?1310184542
Honey, I'm so sorry that this has happened yet once again to one of our family members.  I'm trying real hard not to get all upset or else I wont even be able to sleep tonight.  I have a tendency to do that to myself. hahaheehee

Hang in there and once you've got your venting time in get right back out there and find another neuro.  A MS specialist would be best but just finding that perfect one is next on your list.  (with our prayers)

Trust me, you will find one that sees there is a definite problem and will then schedule you some tests.  Hopefully one that wont stop until they know for sure what's wrong.  We should all pray for that one.

I'll be praying,
Carol
Helpful - 0
420469 tn?1217647363
Well, I went to RateMD and rated here there. My rating reads:


This doctor was abrupt and spoke rudely to myself and my companion. Initial consultation including a history, "neurological exam", getting changed twice, and her findings was about 15 minutes. I was told to prepare for 30-45 minutes with her. She offered no help or suggestions. I've had better service at fast food restaurants.  





Now, I said "companion" because, without ANY indication (no rings, no hand holding, NO cause) she assumed he was my husband, and called him such. He could have been a brother, a friend, a brand new boyfriend (way to scare off a new boyfriend, call him 'husband'), and it kind of irked me (although it normally wouldn't).

And, unfortunately it's true, I HAVE had better service at fast food restaurants!

Man, you should HEAR the names I have been calling her in my head (well, and out my mouth too! LOL). Good thing no one that's close to me has delicate sensibilities!

ARG!

Thank you all!!

Christine
(un-dx for another few years at least)
Helpful - 0
Avatar universal
I'm glad you posted your update, in detail, as I requested. From now on, don't listen to me!

I am so very sorry you went through that. But as a Consolation Prize, may I offer the following.

My neuro appt. yesterday was over an hour. My neuro was rude to me.

Your neuro appt. was shorter. Your neuro was rude to you.

Equation: you had less of your life wasted than I did!!!!!!!!!

See, gotta find the good in all of this, this, compost. Yeah, that's the **** word, compost.

Suzanne
Helpful - 0
335728 tn?1331414412
WHOA...CAN I PLEASE GIVE YOU THE PHONE NUMBER FOR BOTH MY G.P. AND NEUROLOGIST AND THE NEUROLOGIST THAT CHRISTINE JUST SAW???

YOU ARE IN THE PERFECT MOOD TO STRAIGHTEN THEM BOTH OUT I FIGURE!

GO QUIX!!

Rena
Helpful - 0
Avatar universal
I want to put the "weenie" on the skewer!!!  

(did I just say that?)
Helpful - 0
Avatar universal
This is going to be the best weenie roast ever!!!!

Wanna
Helpful - 0
420469 tn?1217647363
Wow, thanks guys!

I am just so beyond mad right now. ARG!

Honestly, within the first 3 minutes, I could tell where this consult was going, the one thing that really really irked me, and this may seem trivial compared to everything else, but it was the way she told ME that my husband could wait in the waiting room. Like it would have been such a huge effort for her to say to him "would you mind waiting in the waiting room please?"

Yes, everything else grinds my gears too, don't mistake that, but why, if you're going to go to the trouble of kicking him out, would you not just ask him to leave? I'm so glad he was there though, and saaw her demeanor first hand, I think otherwise he may have thought I just took it personally.

He estimates that I was in the exam room for 5-7 minutes. Now...I did forget to mention that in that 15 minutes there was "history", then "change rooms", then "get undressed and into a gown", then "neuro exam", then "get dressed into clothes", then "results". The 5-7 minutes in the room included TWO changes of clothes.

My sweet adoring husband has pleaded with me to go back and see my family doctor, and see if she can send me to another specialist. Maybe a Rheumatologist, or something like that, and look at other possible causes now, and come back to neurologists later, if need be.

I have a "spare" family doctor. One I see if I can't get in to see my regular one, and he's told me he's pretty confident it's MS, but that it's not had time to rear it's ugly head into my MRIs yet. He's a bit old school (he's been in practice for over 50 years), and doesn't think an MS Specialist would be of much help right now, but he told me about another patient he had, with symptoms like me, who took 20 years to get an MS diagnosis.

Well, all we can hope is that I'll go on the 27th to do the MS Walk, as planned, and that I'll way overdo it, get thrown into a HUGE relapse (of whatever it is), and that they will determine for sure it's neurological, and then I can sure her sweet little arse over this.

Wishful thinking, but I can dream!

Love to you all, and Thanks Quix for the membership, I'm looking forward to roasting her! What are we doing with them after we roast them??

Christine
(un-dx)
Helpful - 0
147426 tn?1317265632
Words cannot describe my sorrow for your having to be subjected to this kind of derisive, arrogant, and ignorant behavior.  Nor can words adequately covey my ongoing rage at this attitude that pervades the specialty of Neurology.

I can only beg you to get some rest and put it out of your mind.  Do not, please! internalize the actions of this woman, who does not deserve the designation of "physician."  Do not let her diminish you, nor lead you to disbelieve the messages of your own body!

Two years ago, when my 1st neuro implied to me that he thought I was feigning problems in order to obtain medical tests, I swore that I would never take another complaint to another doctor.  I actually despaired of getting anyone to listen to me (my GP did, but was old and unable to do anything but make referrals.) and I considered ending my life to avoid more repetitions of the humiliation.  That was the depression of the MS and of progressively losing fuction in my body.  The fatigue made the thought of continuing the fight seem impossible.

But, in honesty, we can only be humiliated if we allow it.  The fault lies in the defective personality and ego of that doctor, not in you.  We need you to be able to put it into a perspective that allows you to see that your suffering and your symptoms are valid, far more valid that her prejudged opinion.  Her words and actions form the beginning of the visit demonstrate that she was going to dismiss you.  The only question in her mind was how cruel and mean-spirited she was going to get.

Now, I have to ask....did you just write all of this to get my ire up further so I would write up the rebuttal to the "all atypical complaints are pyschosomatic" article in The Neurologist?  Because, I was already mad enough to do it.  Now, I have to come up with a whole set of milder adjectives and words to use instead of:

arrogant
intellectually dishonest
ignorant
patronizing
self-serving
egotistical
mean-spirited
small-minded
sneering
rigid
mysogynistic (yes, true of many female physicians )
fraudulent
unethical
lazy
criminal

15 minutes for a history, changing rooms for a physical, a neuro exam, changing rooms again, and the final impression? ??????  In the US, this would be considered "insurance fraud" unless they billed for a "short, follow up, with very limited exam."  In Canada, I don't know what is expected of a new Consultant visit and whether they get reimbursed based on what they do and time spent.  But, I am sure that they have a minimum expected behavior, and she fell totally short - but I'm sure she put in for a "Comprehensive Consult."  Her fraud is both monetary and ethical!

This is why we got the charter for our Virtual Greek House, HYPO GAMMA CHONDRIA.  We haven't talked about it for a long time, but we needed a formal organization for all of us that have been told we're crazy, think we must be crazy or are pretty sure this will all make us crazy.  Memebers also include the UnDiagnosed, the MisDiagnosed, and the Diagnosed, But Pissed Off.  HGC members are the ones who began the Friday Night Weinie Roasts to dispense with these dumb, dismissive, defective Dodo-docs.  You, my dear friend, just earned yourself an honorary membership in Hypo Gamma Chondria.  You don't have to wait for Pledge Week, and you can light the bonfire Friday, cause this Nurrow (doeasn't even deserve the correct spelling!!!) is up for first roast!!!  I'll bring the marshmallows!!

Welcome to the club, sister!!

Quix, President, Founder and member of Hypo Gamma Chondria.

Helpful - 0
335728 tn?1331414412
If and that is a BIG IF I find a neurologist here in the city that is a professional MS SPECIALIST...you will be the first one to hear about it and your name will be the first one I will give to him ok?  That is a promise I will not break!  I HEREBY SWEAR!

Rena
Helpful - 0
293157 tn?1285873439
I'm sorry your going through this again, I too as most of us here have been through this...it's not very pleasant to have a Dr treat us like that.  I'm not sure why they do it??

I only hope they change their ways of practice.... You know your body and when something is not right, I have been too a couple of those type of Drs and didn't appreciate it one bit.  I was also told, that things have to get worse before they can Dx me?  What that means I don't know...but here I am 2.5 years later..still waiting and having more tests and seeing new Drs...

It's not easy, but what else can you do but hang in there....you can't make yourself better without help and they can't help without tests showing??  But they do not have to be rude about it...

take care

andie
Helpful - 0
Avatar universal
make them do tests, tests, and more testing!!! DO NOT GIVE UP!!!

give your mind a rest!!! and then start up with it again.
Helpful - 0
Avatar universal
Are you familiar with Dr. Bernie Siegal? Decidedly not a neuro, but a doc who has written some wonderful books about dealing with life, health and cancer. He said there is no such thing as false hope, just false no-hope. Think about it. That says a huge amount.

ess
Helpful - 0
233622 tn?1279334905
If you can stand it and if it is possible go to a MS specialist.  It took me 3 appointments to get a dx.  

I do have to say I did have an abnormal MRI and ON, but if you are having problems you need someone to help you figure out what it is.  Or at the very least watch you.

LA
Helpful - 0
Avatar universal
I din't know c-r-a-p was not postable!

Sorry Big Brother...

Wanna
Helpful - 0
450140 tn?1317947304
It seems to me that finding a good neuro is like finding a needle in a haystack!! My exam was not extensive, but I felt he asked many questions. Also, he could not believe more tests were not run. Anyway, he is giving me a glimmer of hope. May be false hope, but at least its hope.
I am so sorry your appt turned out like it did. I know you had high hopes as most of us do when coming off of a bad first expierence.
DONT GIVE UP! KEEP FIGHTING
I'll be praying

Hugs,
Beth
Helpful - 0
Avatar universal
Oh ****!

My heart goes out to you, sweetie.

Don't give up!  Give yourself a few days to regroup, vent, and then move forward.

((((((HUGS))))))
Wanna
  

Helpful - 0
228463 tn?1216761521
I think Tammy pretty much said it for me too but I just wanted you to know you are not alone.

I am on neuro #4 and have been treated just like you have been by two of the others I have seen.  I know it is sooooooo hard to hang in there but please know that we are all right beside you holding your hand and that you will get through this.  I was devastated the first time it happened, and unfortunately now see it is a part of the egotistical practice of neurology for some unknown reason.  I wish the process of finding answers to neurological problems did not entail us having to see neurologists but unfortunately my GYN cannot treat this, LOL!    

I will be thinking about you and giving you lots of Cyber Hugs!!
Kristin    
Helpful - 0
Avatar universal
You did not get a neoro- exam. I too just went to a new neuro exam yesterday, and was there for an hour and a half. My neuro was professional but friendly, looked at my time-line and also asked lots of questions.  Please don't give up in your search for answers. I have been told it's "all in my head" by the best (worst) of them, and I know it's not. The neuro I saw didn't even question that I was suffering actual symptoms.

On the other hand a patient in the office told me I looked fine, and basically asked me why I was wasting my (and implie the valuable doctors time when he could be with her! Go figure!
Helpful - 0
Avatar universal
Hi Christine:
I probably should have waited a while before posting, but to hell with it.....I have to be myself and that's how it is....
I AM SO SORRY that so many of you beautiful people are getting so HURT and dismissed by these arrogant, ignorant, NON human doctors!  What is going on in our society these days that these "people" think it's ok to talk to us as if we're irrational, unknowledgeable CHILDREN??   I'm sorry I am so angry, but I am!  If I could scream from the roof tops for you (and all others on here not getting PROPER CARE)--I would scream and yell until my vocal chords went numb!
Once again, I am sorry.....so sorry that my heart hurts for you for yet another disappointing so called doctor!  
Tammy
Helpful - 0

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