Wellllll, I could talk about this for hours, but this is the reason why I am seeking a 2nd opinion...I have many many symptoms associated with MS that this current neuro. initially was concerned about..well, once I had the MRIs, one in October, and the last one in March, additional lesions formed on the one in March, plus the report states "differential diagnosis would include MS..." and I have the lesions and symptoms to show for it (check out my MRI images on my page) but he says, "Well....no, not MS, nothing is wrong because you don't have enough lesions and they're not big enough...you could have had a stroke, you could have migraines, etc..." And then I was shown the door....left his office without any other help whatsoever, and whatdaya' know, I still have these symptoms more than a month later, they come and go, but the balance and 'drunk' feeling is almost always with me, as well as many others!! I'm 22, I do NOT have heart disease, no vascular disorder, no history of trauma or infection, nothing, but everything points to neuro...I digress!!! :-)
~Aleah
I should have known to get a new doctor when I went in because I could barely stand up straight because I was in so much pain, mainly in my back (where I found out I had a lesion). A couple of years later, as I'm going through my old medical receipts, I find the one from that visit and noticed (which I foolishly hadn't before) that they wrote my dx for that visit as "gout". Wow. READ YOUR RECEIPTS/DISMISSAL PAPERS, EVERYONE! I could have saved myself a LOT of time, pain, and money. He didn't even give me a verbal dx that day, just blew me off, as always. Ta-ta, loser! lol
ok, have fun reading this:
when local neuro mumbles the test results after [you remind] him you had tests done and now wanting to know the results. states he cannot make a diagnosis, much data is subjective he states, although test results contradict him...MRI, LP & hx.
at the same time the other doctor, a ms specialist in another state, has written down "diagnosis, demyelinating disease of the cns" and he tells you on the phone he has ruled out most everything else and is pointing to ms and a treatment plan after vep test. he asks, didn't your local neuro mention this to you, i spoke with him about it? i told him no. talk about being left out of the loop!
local neuro tells me they don't do VEPs here. tells me to call my ms specialist's office to set up the appt in that state. i call that office, they say they want the test done here in this state, no sense in flying there. i get nowhere with appt division here about this except that the hold up is they are trying to figure out who is going to pay for the appt. do what?
then a voucher comes in the mail stating consult from local neuro to eye neuro for appt here in this city for vep. guess what? that office building is just behind the local neuro's office building! what, he didn't know this when he stated they don't do vep here? sure, i'm gullible doc, keep em coming!
approx 4 months later from original request for vep from ms doctor, local neuro gets me an appt.
local neuro? he still can't believe the lp was positive!! said mri's didn't show anything although the radiologist's impression was "demyelinating disease, same as last mri"
duh?
my ms specialist from what i can tell so far is top notch. working to find a root cause and develop a treatment plan.
and yes, in the VA system i can request another local neuro.
what do you think, time for a new local neuro? LOL LOL LOL
[where ya at glenn beck, where ya at?]