Hi All, You know me - since my symptoms started about 3 yrs ago, they're just slowly gradually getting worse. Yesterday, I went in for a follow-up with my neuro. When I was there, I told her how I keep getting tight banding around both sides of my ribs and sudden tight spasms in my left hamstring - but these feel different then the usual symptoms that I have.
Now, today, I have tightness in my pelvic floor (which has ALWAYS been on my right side) all the way across the center, to the left, across my butt, down the inside of my left leg. And tightness/spasticity on my left hamstring. I am gettng numb/tingling across my pelvic bone, groin, private area and it feels like I'm going to go to the bathroom on myself. There are pinpricks across my left calf and my left foot is numb/tingling with my toes feeling stiff.
Oh, the nurse just called me back right now from my neuros office. She wants me to try a medrol dose pack and increase my Baclofen back up to 80mg (from 60mg). And to take 4 times my usual dose of Clonopin. Kind of scary since I told her when I was taking a full dose of Clonopin I felt like I couldn't breathe that well with all the Baclofen. Then she had previously told me to only take half a dose, instead, for that reason.
Anyone ever try a medrol dose pack instead of the IVSM? I know I've been banned from the IVSM because of my terrible side effects and hypersensitivity.
Thanks everyone,
Kelly