I feel shrouded

[coulonlady]

I have many symptoms listed. Problems with sight,muscle pain,joint pain and stiffness,tremors and gross motor movement problems,jerking in large muscle groups that move,confusion,memory problems,cognition difficulty,very heat sensitive,headaches, hearing problems,pain in neck,swollen and painful glands in neck,sore throat in evenings, burning tongue syndrome,Many times I look right at something and do not see it(cars books etc.)drop items unexpectedly,sudden weakness in arms and legs, Nerve pain from feet up into buttocks,everything jerks from my eyes  to hands and feet,double visions haziness, dizziness,failing to move where muscle memory should prevail. The best description of my symptoms is that I am in a shroud. These symptoms come in clusters always worse in evenings. Oh yeah, bladder and bowel problems.

[coulonlady]

I ave not been dx'd. I was dx'd with burning tongue syndrome about three years ago. I have been told I  had high tsh and low t3. High cholesterol in May. I am not in severe pain but it i am miserable. The symptoms are somewhat transitory. I have applied for indigent healthcare but do not have an appointment yet. I am totally functional but somewhat hampered by symptoms and pain. Everyone thinks i am a hypochondriac or don't believe me. Most think everything is from menopause to PTSD from a ten plus year of marriage to an alcoholic junkie who I divorced and is now trying to find me and harm me. VERY traumatic. Everyrything can be explained by something else. i m not totally sure what is wrong and am afraid to tell all my symptoms

[grannyhotwheels]

Wow, you are really going through it... I hate to hear of the suffering you must be having... Have you been to your doctor/neurologist yet?  If yes, what test have they ran so far?  I have for the most part the same symptoms but not all of them... It's so hard not knowing what each day will bring...

If you can tell us about your doctor experience and what's next on the list...

I'll be praying,
Carol

[nancihelp373]

Would find it difficult to understand how an MD could not put something together with all the misery you are in.

[nancihelp373]

WOW .... what tests have you had? Have you been diagnosed with anything?