hearing loss

[Rachelinpain]

any of you with hearing loss caused by MS?  how did it start adn what is the prognosis?  thanks

[young at heart]

RACHEL,


LET YOUR NEURO KNOW,THIS WAY IT IS AT LEAST DOCUMENTED.

I HAVE NEUROLOGICAL HEARING LOSS AND WAITING AND HAVE BEEN WAITING FOR THE HEARING AIDES.

HEARING LOSS IS CAUSED BY LESIONS FROM THE MS.

THEY ARE VERY COSTLY,BUT MY INSURANCE DOES COVER THEM.

IT DOES GET VERY FRUSTRATING AND CERTAIN NOICES ARE ENOUGH TO PUT THROUGH THE ROOF.

AT LEAST HAVE IT DOCUMENTED!!!

HUGS

T-LYNN

[jensequitur]

That's an excellent way of describing it... and guess what we did yesterday?  Wrap presents!  And guess what?  We had to use.... packing tape.  Argh argh argh.

[Quixotic1]

Ohhhhh!  Packing tape being ripped off the roll.  Oh spare me the agony!!!  It's like my brain is being ripped out!

[jensequitur]

I would call up the neuro, at least, and see what he says.  If this is neurological, there isn't much you can do about it.  But it's worth following up on.

[Rachelinpain]

thank you or your replys

a couple days ago i woke up and the hearing in my left ear had changed.  at first i thought it was my right ear because everything sounded so lound in my right ear...even the sound of the heat coming out of the vents seemed loud but later on i realized i was just not hearing well out of my left ear and that why the hearing in my right ear sounded so loud.  

i went from just not having hearing to hearing beeping sounds everytime someone would speak or if i heard music.  the beeps were in line with the cadence of speaking, like morris code...instead of "hi, mommy, i love you"  i heard beep, beep beep, beep, beep, beep, beep and the rest of the word after the beep was almost silent.  

today my hearing seems much better, maybe just faintly dim but no beeping.  i have had lots of ringing in my ears before.  i was wondering if this was related to neurological problems or if maybe congestion or something.  i did the test to see if it is just conductive hearing loss vs sensorineural (the humming test) and it said that it was probably sensorineural, but just when i was ready to go to the doctor it seemed better.  

should i go to the doctor now anyway  or wait and see if it happens again?

thanks for the advice.

[young at heart]

RACHEL,

I HAVE SENSORI-NEURAL HEARING LOSS DUE TO MS.

I HAVE HAD MY HEARING CHECKED AND FOLLOWED UP ON SINCE OCT.2006.I KNOW AM CAVING IN AND GETTING THE HEARING AIDES.

I SHOULD OF A YEAR AGO.

I SEE A NEURO-OTOTOLOGIST  AND THE TESTING CAME BACK VERY BLUNTLY CNS DISEASE CAUSING THE LOSS.THIS DR.ALSO DONE THE EVOKED POTENTIAL TEST CALLED A VNG TO CONFIRM THE CNS DISEASE.

IF THIS PERSIST,THE EARS ARE JUST LIKE OUR EYES DON'T LEAVE IT GONE UNCHECKED.

ANOTHER FORUM MEMBER HERE (UNDIAGNOSED) HAS HEARING AIDES DUE TO HEARING LOSS HOPEFULLY ZILLA WILL POP IN AND ANSWER ALSO.

PLEASE GET IT CHECKED.

T-LYNN

[doni54]

I'm undx but have ringing in both ears all the time, it never stops.  Like jensequitur, the volume in my right ear will just shut down sometime, and other times the ringing is so loud I can't hear well anyway.

Have you asked your neuro about this?

Good luck and I hope your hearing clears up.

doni

[jensequitur]

Just recently I've been having some weird ear moments.  Tthe volume in my left ear will suddenly get real quiet, just like somebody turned down a stereo.  I'll also get ringing in my ear, sometimes quite loud.  

So I told my neuro about this, and he said I might need to go to a ear guy to have my hearing checked.  Personally, I think if it's neurological, it will eventually heal.  Since I'm also hypersensitive to sounds in that ear (packing tape is especially painful, but the CLANG of the trashcan is also pretty bad) I don't need a hearing aid in that ear to increase the overall volume.