icy cold limb & hand swollen

[sunnyweather]

Hello Everyone,

I would like to say that reading everyones comments on other discussions has helped me tremendously. Thank you.

I find when the weather gets cold or too hot I have the same symptoms that are driving me crazy. I get these symptoms when I'm under stress too. Migraines, fatigue but the ones that are driving me crazy are the icy freezing numbness no pins and needles my right hand swells the pain that comes with it is high. I also get a muscle spam in my right foot like you know it is coming and you are trying to breath it out but then the pain is so bad that you can not move that food or the spasm gets worse (not sure if whe I'm experiencing is called a spasm or not) This can happen several times in a day. I have a pile of blankets on me at the moment and the weather is -5 . Does anyone have any tricks that they use to ease the pain?

Thank you for taking the time to read my post and hope that you are having a comfortable day.

[Ismene77]

This is a new feeling left leg knee down like it's been in a meat locker dx 2009 ON since 1992 but hey it was all in my head and c spine and now thoracic happy to find this place

My soon to be 4 yr old and I Re living in transitional housing just trying to survive

He is perfect and despite it all we are good

Good to know that this is an ms sympt thanks all

[calamfred]

Hi,
Lulu is so right..I would definitely see the Dr about your symptoms. My hubby (diagnosed w RRMS) doesn't have swelling either..only time he did have was in reaction to Baclofen (rare side effect, hubby just happened to have). Medically speaking, cold extremeties can related to a blood flow issue, as can swelling/edema. I have Lupus and along with it Raynauds, which causes me to have ice cold feet and or hands sometimes even when I don't feel cold overall.
Regards,
C

[HVAC]

I have never had swelling with MS.

Alex

[sunnyweather]

Thank you. I started with tgn then I awoke one morning with right arm paralysis for 4 months the drs thought I had a stroke   My hand was slightly swollen then. Now I get that deep freeze pain. My balance has just gone did the good old neuro examine then I moved waiting for a new dr. This balance
Problem comes and goes sometimes I get lucky and grab a wall etc so I don't go all the way down.

[LisaJF]

As HVAC said, muscle relaxers and/or Neurontin helps and I agree with LuLu, to investigate a bit further with the primary in regard to the unilateral swelling.  

Just make sure other symptoms do not accompany that like leg pain, redness (streaks), or shortness of breath.  These symptoms should be reported to the doctor asap.

I wish you luck with the management of your pain and/or spasms.  I've tried Zanaflex and Flexeril which both do diddly squat for me.  One time I did have Valium in ER for muscle spasms and lo and behold the anxiolytic worked for me and after 5.5 hours later, the pain/spasm returned again.  Not that I was anxious but I think Valium has pharmaceutical agents that helps with relaxation of skeletal muscles.  Just don't quote me on that.  

What may work for one person, may not work for another.

Keep us posted.

Lisa

[Lulu54]

hi,  I'm glad you are finding the information here useful.  It is very unusual for MS to cause the swelling you describe -remember MS is a central nervous system  disease while the swelling problem  almost always is circulatory system.    You really need to talk with you doctor about this - your primary care one - and have it checked out.  Remember - just because we have MS doesn't mean we are immune from other problems.

best, Laura

[sunnyweather]

Thank you, I tried amitriplyene (not sure of the spelling) was left like a zumbbie lol. Does your hand ever swell up and hurt a lot?

Hope your have a great weekend!

[HVAC]

For spasms I take muscle relaxers and for nerve pain anti seizure medications.

Alex