Weird Sensation

[mokibear]

So I'm wondering if it is the little green men playing havoc in my head again or if anyone else has experienced this.

Over the last 4 days, when I go up the stairs, I get this sensation that my right foot is sinking into the stair. It really feels as if I'm in the twilight zone as this feels very real. I even look down to see if my foot has somehow magically disappeared into the step. I then over compensate lifting my foot to get to the next step and the next thing I know is that I'm tripping my way up the next one and usually landing on my knees. It only seems to happen when I'm going up the stairs. Anyone?

Moki

[young at heart]

YA KNOW I COULDN'T REFUSE THIS ONE!!!!!

THE LITTLE GREEN MEN GETTING YA ARE THEY.

THAT MADE ME LAUGH.

OKAY ON A SERIOUS NOTE YES,I HAVE IT TO WHERE I DON'T KNOW WHERE MY FEET ARE,WHEN I WALK I'M ALWAYS WATCHING THEM.

I HAVE GREAT DIFFICULTY WALKING UP STAIRS,THE FOOT PLACING IS ONE AND THE OTHER IS BECAUSE I HAVE DIFFICULTY LIFTING MY FEET.

I HAVE BILATERIAL FOOT DROP AND WEAR LEG BRACES.

IF I HAVE TO CLIMB THE STAIRS I USUALLY CRAWL UP THEM ,NOT A PRETTY SITE.

DEFINATEY TELL YOUR DOCTOR,I'M SURE ITS JUST NOT THE LITTLE GREEN MEN THIS TIME.

T

[Quixotic1]

Hi, Kiddo.  You're losing a sensory ability called proprioception.  This is the position sense in your joints.   It may be that you can't tell how bent your knee is and feel that your leg is straightening out, when it isn't.  Basically you can't tell where your foot is in space.  This is not a good thing, but your doc does need to know.  Either that, or your ability to feel the pressure of the stairs under your foot is faulty.  But, if that were the case you would have problems on flat ground, too.

An example, I had an abdominal surgery under a spinal anesthesia.  I KNEW I was lying flat on the table, but my brain "heard" that my feet were up in the air.  It was the weirdest feeling.

Quix

[speechgeek]

I have had the feeling of stepping on to "air"  when walking up the stairs. I am guessing that my proprioception (or lack there of) is part of my peripheral neuropathy. I have it my hands a lot reaching for sunglasses that are NOT on my face etc. weird sensations when grasping for the phantom sunglasses.

Rebeccah

[Momzilla]

Can that sensory loss be temporary?  When I was at my worst with all my neurologic symptoms, I tried to explain that to my Do-Do Neuro.  I said it seemed like a perception problem.  It felt like when I've had the nitrous oxide at the dentist, and I was lying back, but my legs were nowhere to be found.  And when I lay in bed, I could perceive my head and torso, but my legs were flying up behind me.

He looked at me funny and said hed never HAD nitrous oxide at the dentist.  Grrr.  Made me feel so stupid.  He's the one who sent me to the psychiatrist.

Now, I RARELY get that feeling.  Can it come and go?

Crazy Zilla*

[Momzilla]

Yes, I said do-do.

[mokibear]

Well at least its nice to know its not the little green men, or is it? haha

I never thought much about this before because it isn't all the time, but I have had times where I get the same sensation on even ground but it doesn't happen all that often. I also have been laying in bed and thought my arms or legs were in one position only to find out that they were in another position all together.

So these are things that are going to get worse? The step thing has not happened as of yet today, but then the day is not over. It just freaks me out a tad bit when it happens.

Moki

[pennst8r]

Oh my, that's weird! I trip over my feet all the time, but that would freak me out.

Hope it goes away...soon.

Penn

[Heather3418]

What you are describing sounds very familiar to me.  This is one reason I cannot walk in the dark.  This is also the reason that I cannot walk on uneven surfaces.  If I close my eyes, I cannot tell you where my arm or leg is, in relation to space.

This is a common problem for people with neurological disorders.

I would report this latest symptom to your doctor.  This is a very important symptom.

I miss you Moki.  Big Time!

Heather

[mokibear]

Thank you all for letting me know that I'm not alone in this. I think this is starting to freak me out a little because it is happening more now then it had in the past. I did tell the new neuro about the foot sinking in the stair feeling and he seemed to know what I was talking about, although he didn't say anything as to why but he did write it down. It only had happened the day before once and then that morning before I left to go to see him.

The fatigue has been worse this week too. Hubby said that with the dark bags under my eyes, I look like I'm packed and ready to go. (isn't he so sweet lol) I've been sleeping but it just doesn't seem to matter how much or little I get I feel so tired. I'm not bad first thing in the morning, but as the day progresses, I go down hill. I don't know if this is making it worse with the sensations or not.

Heather I have experienced everything you have stated. I will put it in my time line for when I see the new MS neuro. I miss you too my friend. I'm so happy to see you on here again. My thoughts and prayers are always with you.

Hugs to you all
Moki