recruiting for children for ms study

[Lulu54]

You might be interested in this new study

http://www.nationalmssociety.org/news/news-detail/index.aspx?nid=5494

[HVAC]

I wish they knew about childhood MS in 1965 when I was hospitalized at age 2 with my first attack. They caught a nurse beating me with a metal spoon because I could not eat. Instead it was just a mysterious illness which caused brain stem damage. My parents told me about it when I was an adult plus about all the other Neurology visits. Over the years as I had more Neurological symptoms and saw many Neurologists no one put the pieces together. My life might have been different. My parents, teachers, and health professionals may not have come down on me so hard and might have been a little more understanding. Everyone thought I just needed a firm hand literally. Children with MS today will not end up like me inside a State Institution loaded up on drugs because the medical profession does not understand their illness. What they thought was treatment for me turned out in an abuse scandal shutting down the childrens' wing of that institution. I do not hate the ignorance I endured. I am glad things have improved.

Things have changed. Things in the future will be even better. Studying children is the key to understanding MS in adults.

My MS probably came from Key West where I was first hospitalized. The reason I say that is it is a small island with a large amount of MS.

Alex

[sllowe]

shoot - didn't see this - If it's the same - sorry :(
-Shell

[Sumanadevii]

Lulu when I begin to feel really sorry for myself, I think about children and young adults with MS.  Then I realize how blessed I was to raise my family.  I got to do so many things before this monster came into my life

I just had to say this because to see MS and children on the same line just makes me sad.  If I have a hard time understanding the "why" I wonder how they manage at such young ages.

Maybe this study will prove helpful.  Maybe soon we will have a cure.  

There is always that hope.