Sever Cramping and muscel spasms

[sharon1010]

I dont want to give a whole long story for everyone to read so I will make this short and sweet. I need help and quickly from anyone please..............I am getting so depressed I dont know what to do. I have sever cramps and muscel spasms over my entire body all throughout the day and night. I hurt so bad and its effecting my whole life. My finger and toes get all distorted with cramps and I just want to die the pain is so bad. At night it travels all over my body that I have not slept in over a year. My vision and changed. My CK level is over 600 and my dna and ana is positive. I drop things all the time and cannot walk out these camps. Someone please help me. I cannot keep living like this. The doctors dont seem to have a clue. I have had that nerve test and that was fine. I have had so much blood work done and apart from the above others were normal. Predisone made it worse and gave me mouth ulcers and nose ulcers. They saidI have lupas but the cramps are not a part of lupas. Does anyone ever feel the doctors and purely guessing and give meds to send you on your way and they are maing me feel like i am crazy. 2 yeas ago i played racquetball 7 days a week not i cant do anything because of the cramp and spasms. I dont ave ms they said as my muscels are strong. No one knows what to do. I have to get some relief and i would like to know what is wrong with me. This is not normal. I have not had an mri but does that prove anything anyway?? I dont see any real diagnosis so where do i go from here. I would love love love someone to say this is wha it is and take this medication and its gets better and i can get on with the rest of my life. I am 53, female, love to travel and exercise but this is effecting my life.....can anyone please please help me.... oh what kind of doctor do i go and see. I have been to a rheumatoid doctor, neurologist and general doctor and all they say is i have lupas they think??? thank you everyone. Please get back to me.

[sharon1010]

Now I just do not know what to do. My question is would they not have tested for the obvious. I have had 6 lots of blood tests now and been to 4 different doctors. Would the deficiency have shown up in them? All I want is to be able to sleep and not up all night with cramps and spasms. It has seriously began to effect my job as well. I was in the middle of my job and my hands cramped so bad and could not hold anything at all. Also I was with a customer and my toes and legs curled up and were cramping and I was trying not to cry and work at the same time. I soooooo wish I could be told what I have and get meds and get on with the rest of my life. Sorry to complain but I haev really had enough and just want to go back to the gym without hurting :( Thank you both for your help and concerns.

[caregiver222]

An MRI will reveal nothing regarding your cramps. In almost all cases these cramps or "charlie horses" are secondary to a calcium deficiency and often a vitamin D$ deficiency. Very ocasionally due to a potasium deficiency. You need a vitamin D3 check to insure your levels are above 30 and to rule out hypocalcemia. Ask your physician to prescribe quinine sulfate for cramp relief.

[sharon1010]

tankyou so much for even responding. i feel so desperate at this point. i am going to ask for an mri like u said. just rule things out. thank u again sharon

[Dagun]

Hi Sharon, I´m sorry that you are suffering so bad. I´m also undiagnozed and have been having increasing problems for three years now. I also have lower back problems (disc), but so many do. If this is going on all over your body, that can´t be because of the back problem. But I feel it is strange that you have not had an MRI of head, I did early on, but they saw nothing. I would like my Neuro to do it again and now with contrast, but he thinks it is not time yet. Probably because even though I have widespred symptoms, they are mostly mild.

I have musclespasms in arms and legs, but not so painful just uncomfortable. I also have twitches all over, pins and needles in hands and feet (more on the left side). Mioclonus in fingers and many, many more strange things going on. Waiting for diagnoses is awful, and when you are in this much pain, you have to keep on searching for help. Ask about the MRI of head, just to make sure that there is nothing there.

I hope someone else reads you story and gives you helpful hints. Sorry for my English.

Best regards,
Dagun  

[sharon1010]

Sorry I also forgot to say I have raynauds disease and lower back problems. do not know if this makes a difference. Also one other thing is that I have met some wonderful doctors and my gener doctor is the best ever. I just need to find the one that can help me. thank you