Aa
what's happening to me
Sorry this is long but I will give u the shorter verson
I too have this problem I black out I have had aura and have unusual spells of talking rubbish it makes sence to me but everyone else doesn't understand what I am saying.
Also had just one attack where I felt odd went dizzy lightheaded lost vision movement and speach.... I could shout for help but I could hear I had small rigety movements like jerking but that was the only time it happened.
Every blackout I have had I feel odd walk drunk get lightheaded loose vision speach and movement then after I come back around quickly and I'm fine.
Other symptoms drinking over 3 liters of fluids unless I get a bug then it reaches 6 - 8 litres of fluid a day the toilets is my best friend.
Also quezy stomach feel sick and vomit half of the time, shaky inside and shaky hand in spells, if I'm cold I'm bone chilled and shake with shivers, if I'm hot my skin is clamy and I swelter , migraine have been reduced .... Only because of mess but I still have a permanant headache that feels like pressure pushing on my head with sharp pains and throbbing on top of that palpatations irregular heart beat too fast and asthma I have confusion, disorientation blured vision on and off pins and needles in hands and feet and I wake up with no arms.... Can't feel them completely dead.
At the same time I keep getting trapped never in my back on the right hand side of spine. I already have a damaged coxic.
Oh and pains in ribs 3 or 4 years ago they said I have chostochondritis my ribs still stick out.
And I only have one kidney
I can't have beteablockers as it triggers an asthma attack which it did on wi 3 of taking them.
I seen a cardiologist had two visits other than a Hilton monitor did nothing he released me to a neurologist which I see tomorrow
my doctor thinks the blackouts are Syncopy and he also thinks I'm having seizures as one one of my attacks I couldn't write property couldn't hold the pen my head bowed forwards and left I had aura and few hours after it happened I looked at my notes ... It looked like a baby had written it.
My partner doesn't understand I've no one to talk to and I've been off work now for five weeks doctors orders ... Oh and they have told me no driving
I'm falling apart....... Help
I too have this problem I black out I have had aura and have unusual spells of talking rubbish it makes sence to me but everyone else doesn't understand what I am saying.
Also had just one attack where I felt odd went dizzy lightheaded lost vision movement and speach.... I could shout for help but I could hear I had small rigety movements like jerking but that was the only time it happened.
Every blackout I have had I feel odd walk drunk get lightheaded loose vision speach and movement then after I come back around quickly and I'm fine.
Other symptoms drinking over 3 liters of fluids unless I get a bug then it reaches 6 - 8 litres of fluid a day the toilets is my best friend.
Also quezy stomach feel sick and vomit half of the time, shaky inside and shaky hand in spells, if I'm cold I'm bone chilled and shake with shivers, if I'm hot my skin is clamy and I swelter , migraine have been reduced .... Only because of mess but I still have a permanant headache that feels like pressure pushing on my head with sharp pains and throbbing on top of that palpatations irregular heart beat too fast and asthma I have confusion, disorientation blured vision on and off pins and needles in hands and feet and I wake up with no arms.... Can't feel them completely dead.
At the same time I keep getting trapped never in my back on the right hand side of spine. I already have a damaged coxic.
Oh and pains in ribs 3 or 4 years ago they said I have chostochondritis my ribs still stick out.
And I only have one kidney
I can't have beteablockers as it triggers an asthma attack which it did on wi 3 of taking them.
I seen a cardiologist had two visits other than a Hilton monitor did nothing he released me to a neurologist which I see tomorrow
my doctor thinks the blackouts are Syncopy and he also thinks I'm having seizures as one one of my attacks I couldn't write property couldn't hold the pen my head bowed forwards and left I had aura and few hours after it happened I looked at my notes ... It looked like a baby had written it.
My partner doesn't understand I've no one to talk to and I've been off work now for five weeks doctors orders ... Oh and they have told me no driving
I'm falling apart....... Help
Best Answer
Are you in the UK? If you are....OMG, the medical care there is SLOW and mediocre.
Not sure about the POTS too, but anything is possible at this point.
I still believe this is DI or something Endo involving the kidney.
Well...keep us posted.
Not sure about the POTS too, but anything is possible at this point.
I still believe this is DI or something Endo involving the kidney.
Well...keep us posted.
Its ok don't worry.....
So far I have an app for neurophyiology in July
waiting on scan app and eeg
I said to my doc about the urine being sweet .... He did no urine test or asked me for a sample I am gona get a copy of my records as I might be able to find out the actual results of blood, thyroid ect ......
But so far to me anyway it could be a problem with my single kidney with hypertension and something else not sure what.....
One of my friends thinks pots??? With Di
I don't know but what I do know is they need to sort it out.
Thanks for helping you have all been great!
Oh and if I get to the point I will go a&e
So far I have an app for neurophyiology in July
waiting on scan app and eeg
I said to my doc about the urine being sweet .... He did no urine test or asked me for a sample I am gona get a copy of my records as I might be able to find out the actual results of blood, thyroid ect ......
But so far to me anyway it could be a problem with my single kidney with hypertension and something else not sure what.....
One of my friends thinks pots??? With Di
I don't know but what I do know is they need to sort it out.
Thanks for helping you have all been great!
Oh and if I get to the point I will go a&e
Oops- noticed I made a number of mistakes on my last post to you. I meant:
"I'd probably BE going to get emergent care."
"...how THEY could help me get stabilized..."
"...see if I could get my appointments moved UP..."
Looks like I need to proofread before posting, expecially as they don't have an edit feature on this site! I'm sorry about the blunders.
"I'd probably BE going to get emergent care."
"...how THEY could help me get stabilized..."
"...see if I could get my appointments moved UP..."
Looks like I need to proofread before posting, expecially as they don't have an edit feature on this site! I'm sorry about the blunders.
You suggested in your opinion this was not anything for a neurologist to investigate, but ideally an endocrinologist instead. You also suggested she should ask for a brain MRI, and wondered about diabetes insipidus and about a possible adrenal issue.
With diabetes insipidus and adrenal issues both having to do with endocrine hormones which the master gland, the pituitary in the brain, has a direct bearing on, I wondered if you were thinking of the pituitary when you suggested the brain MRI. Now I know your answer is no. Hope this clears up your confusion as to what I was talking about with my question?
With diabetes insipidus and adrenal issues both having to do with endocrine hormones which the master gland, the pituitary in the brain, has a direct bearing on, I wondered if you were thinking of the pituitary when you suggested the brain MRI. Now I know your answer is no. Hope this clears up your confusion as to what I was talking about with my question?
Have an Answer?
You are reading content posted in the Neurology Community
Top Neurology Answerers
Allentown, PA
ON
Queensland, Australia
Queen Creek, AZ
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease
Getting a copy of your medical records is a great idea! If you can organize them in a folder, they can be pretty easy to lay your hands on when you are planning to visit a doctor... you can have them at your fingertips anywhere you go. You'll want to make sure if they look at them you get your copies back so you don't have to start over in getting more copies, which I imagine might cost some money?
If you don't have one already, please buy a blood pressure monitor from the store. The instructions on them are quite simple and you can learn if you are having high blood pressure readings frequently or not at home that way. Hypertension is definitely something to watch for if you have a lowered glomerular filtration rate (GFR) with your one kidney. Also, if you do, avoiding NSAIDs such as ibuprofen I believe is generally advised too (have a sibling with two kidneys, but one is congenitally defective)- you probably already know that about NSAIDs.
There is a way you can do the "poor man's tilt table" test at home. Use a blood pressure cuff that also takes your pulse. Omron is generally a good brand if you can get one of those.
Take your pulse or have someone do it that knows how- that's in case the monitor gets the pulse wrong (sometimes they seem better for the blood pressure than the pulse reading). Lay down for about ten minutes. Take your blood pressure and pulse with the monitor & then take your pulse in your wrist. Then stand up. Wait a full minute and take your pulse, etc. again. If your pulse is more than 30 beats a minute faster standing than it is when you are lying down, you might even remain standing and take it again after you've been standing five minutes. Record the numbers and show them to your doctor you and ask if you could be referred to an electrophysiologist for a REAL tilt table test. Another test that might be done to confirm P.O.T.S. is a standing plasma norepinephrine test.
If you learn you have any form of dysautonomia, including if you have P.O.T.S., as I do, feel free to join the dysautonomia forum here on medhelp and ask questions! Here's a link:
http://www.medhelp.org/forums/Dysautonomia-Autonomic-Dysfunction/show/266 ;