Just like you plus more

[Trishas65]

I want to warn you now that this entry most probably will be quite lengthy. I want to let you all know that I'm very interested in making contact with those like me. Even though I don't know any of you, I am praying for you all. That everything is resolved for you, that once resolved you are no longer in any pain or discomfort, and until resolved that God wraps you in his comforting arms and gives you and your loved ones peace. I include your loved ones because they are as affected by your issues as much as you are. They may not hurt physically, but they do hurt for you. It's really hard to watch a loved one suffer and that is exactly what the people you care about are go through, while you are going through the physical aspects of this condition.

Are there any of you out there, who have Lupus as well as this septated cystic mass? I was notified of the Lupus in 1995, have developed MANY health issues over the years, then the cystic mass was found this past Christmas Eve and diagnosed on January 5th. I'm having robotics surgery on the 13th, and though I pretty much know what I should expect from my recovery if I hadn't any other health concerns, and I also know the Lupus and aging cause healing to be much slower than it would be for a completely healthy person.

I am very interested in any input, but would especially like to hear from any Lupus patients who have gone or are going through this process of dealing with these nasty cysts.

Thank you all for having this conversation, as I learned a few things. I apologize once again for the length of tis message. I think this is the only way I'll be able to make contact with those who are going through the same thing or similar. There is truly strength in numbers, even if its only emotional or psychological.

Again, I pray all of you do well with your surgery and recovery. Thanks again!!!


This discussion is related to what does septated cystic mass mean?.

[old_before_my_time]

Most ovarian cysts, even complex ones like yours, are benign. If the surgeon has good cystectomy skills, he should be able to remove the cyst, send it for frozen section while you are under anesthesia, and then sew you back up if it is benign. You would not even have to lose your vital ovary. Our ovaries produce hormones into our 80's for good health and well-being. The uterus is also important our whole lives for anatomical and skeletal integrity as well as normal hormonal and sexual function / health...don't know if they were going to remove that too or not.

I lost both ovaries, tubes, and my uterus for a benign ovarian cyst. I wish I had done things very differently. It has shattered my world in every way. Of course, if it had been cancer, that probably would have been necessary. But it was WAY overkill and has caused permanent harm since the ovaries and uterus have LIFE LONG functions.

[HVAC]

You are not alone.There only two of us who answer questions on a regular basis. I do not have Lupus. I have had multiple sclerosis for 50 years and have been diagnosed with stage 3c ovarian cancer for two years and eight months. They missed the cancer because they thought my symptoms were caused by MS.

If they are using to robot that means they are thinking it is not cancer which is good. They knew from my ultrasound it was cancer and my doctor who is known for his skill with the robot said no way. They cut me down the middle.

The worst pain I had was gas pain. They put air in and the anesthesia makes you constipated. Getting up and walking as soon as you can is key.
It was hard for me to get in and out of bed with the MS. Plus they took a lot out of me including the omentum the covering to all the organs in your abdomen. I was in the hospital 6 days.

If you have a walker great. I have one of the hospital ones with only back wheels. I got it at a thrift store. It is good to have by the bed or couch to use to get up and walk to the bathroom. Even my healthy husband used it after surgery for getting up. Pillow pressed to the abdomen to cough or laugh. I take pictures of friends and loved ones to look at to calm myself before and after surgery. Something religious might help you. Whatever makes it easier.

If you can get your surgeon talk to your Lupus doctor that can help. My surgeon refused. Or talk to your lupus nurse if she can give any advice.

Also always know you can get a second

Alex