Preparing for appointment

[asdf125]

Tomorrow the hospital is finally breaking the month and a half of keeping me in the dark about my cyst. Im preparing a list of questions I so desperately need answered, just in case they point a needle at me and my brain shuts down.

Im 23 years, have had the cyst for a year, but was not diagnosed until august. I have not been told anything about my case and am worried sick, obviously.

Here is what I got so far:
Get the results of my blood tests
Get the written reports from the US and CT scans
Ask about my kidneys, got scanned during US
Find out how many cysts I have, size, left/right ovary, simple/complex
Surgery, laparopscopy (unlikely) vs laparotomy (bikini vs midline), how it would affect me long term.
Recovery, what to expect, common complications (you ladies appear not to be told enough about this)
Drugs for my needlephobia
How to prevent future cysts, diet, p pills (oddly I got my cyst while on the p pill)

Did I miss something?

[asdf125]

I think most of my delay was caused by the surgeon being on holiday..! I was diagnosed in late august, all blood tests and scans were done in august (see Large Ovarian Cyst if you want to read more about my case). I havent had a date yet, but they were looking at 27/10 or 10/11 and promising me it would be sorted soon. Waiting for a dreaded phonecall.. I dont want surgery lol!

Dear misspinkangel should consider changing GP, hers sounds a bit useless..

[Nina0108]

Thanks for the insight ladies! I hope both of your surgeries go smoothly.

[misspinkangel]

Your not wrong there, my gp is rubbish! still no date, my poor postman practically gets mugged by me every morning for the post!

[asdf125]

Ladies, Im wondering if my surgeon wants to cut corners or wants to remove more than she needs to to avoid spilling the mucus. I want to keep as much as possible obviously.

I just got a letter about having surgery the 7/11 (pre assesment date is 10/11 LOL! will have to change that!)
It says I will be having the following procedure:
Laparotomy and unilateral salpingoopherectomy

To anyone not knowing:
Laparotomy is open surgery (bikini cut as I refuse midline)
Unilateral means it only affects one/one side
Salping is the fallopian tube
Oophorectomy is removal of ovary

So they want to remove one ovary and tube..

Does all letters say that and then they later try to save bits and pieces or would I agree to "too much" if I agreed to that? I wont be signing anything for a while, so I reckon I have time to rescearch a bit.

Same time I guess I cant tie ther hands and say only to do unilateral oopherectomy in case the tube is buggered? They told me it is highly unlikely for a cyst this size to be on the tube, so I was hoping I could keep it.
According to some site, my type of cyst (mucinous cystadenoma) is "often attatched to an ovary by a stalk rather than grow within the ovary itself ". I know there is exceptions, but shouldnt that mean that it might be possible to save the ovary? (ovarian cystectomy surgery)

Im guessing I can only tell them "if A do this, if B do that" as noone will really know until they chop me in half..

Am I panicking over nothing? My surgeon is really really pushing to do things I dont want (midline incision, take the whole ovary) because of the mucus. I really hope it isnt lazyness..

Any thoughts? What did your letters say?

[asdf125]

I will be pre assesed for the anesthetics on the morning of surgery. They dont have time to fit be in for a seperate appointment. Ill be chatting people and signing stuff before the surgery anyway so I guess they will have time for that as well.

I really need a shower soon, cold sweats hasnt stopped since I got that letter. Should be some fun days leading up to surgery! :-S

[Debtrap]

I don't know if it's too late in the game, i would exolore my surgery options and get a second opinion... but after talking to my surgeon, he said exactly what u said alot of doctors cut corners or do not have the skill to do a less invasive surgery.,,,even if laparscopy is out of the question you might have someone else who is more willing to spare your reproductive parts..you are way too young...honestly There is no harm in going for a second or third opinion...good luck :) debbie