I have had ON for about 10 yr, just woke up with pain one day and has never gone away. I finally saw a neuralogist after about 6 mnths and he diagnosed me in about 10 minutes and was confirmed through the nerve blocks later that day. I have had multiple rounds of shots, radiofrequency, all kinds of pills & a spinal stimulator implanted (later removed after infection developed when a wire worked its way back through my neck). I am a single mother and will take any advise for pain control. Now I take a daily low dose of vicodin (same dose for about 8 years) & lots of ibuprofen. I have tried many medications over the years and have not had any real success (including very high doses of neurontin), anything new? Any combinations found to be helpful? The stimulator helped a great deal but after the infection my pain specialist gave up on me. I would greatly appreciate any suggestions. Also how do you find a dr. that knows the condition? So many respond with 'oh, you have headaches'.. I know right away they don't know, because anyone with knowledge knows it is SO much more than 'just a headache'. I greatly appreciate your time and thoughts.. all I want is to be a good mom and this makes it a real challenge at times. Thank you.