have you heard anything about the MRI yet ?
She has NF1 and is 14 yrs old
Has she NF1 or NF2 did he tell you ,what age is your child?
My daughter has Nuerofribromatousis and doctor saw slight colour during routine eye exam and sent her for mri and results came back something on the brain he could not tell me much as not his area of expertise
I think you are a normal mom concerned for her child ,why did they do a check of eye nerve damage was that because of the head aches what did they say ?