cystic fibrosis?

[krz1308]

I tested positive as a carrier and of course now they want to test my boyfriend. He does't have insurance and the test isn't exactly cheap out of pocket. If he is positive the chances are 1 in 4. And then you can do an amnio, which I really don't want to do anyway. Even if my baby was positive it wouldn't change anything. I mean there is no way I'd get an abortion. So these tests are optional, should I just not worry about it?

[krz1308]

Thanks

[maybay]

Yeah they never explain things properly. I wish you the best of luck.

[krz1308]

That makes more sense to me. They gave me a peice of paper at my first doctor appointment briefly explaining What CF is, some statistics and how accurate testing is and then it says reasons people might decline testing "if you are both carriers, you would not consider pregnancy termination if prenatal testing determined that the baby will have cystic fibrosis" it says nothing at all about it being beneficial for the doctors to know or anything.

[maybay]

Its more of a precautionary thing. Because if baby has cystic fibrosis the drs will need to plan for babies care accordingly. Such as having a nicu team ready and in the room ect. Its not abour knowing for abortion purposes. Also if you know you can start the paperwork for disability. Its always best to know. Then you can join a support group, research and be as prepared as possible.