In March 2005 I was diagnosed with Ehlers-Danlos Syndrom type II. I have since gone downhill with not being able to really do much of anything. Any amount of activity is too much, muscle weakness, nerve problems (facial, arms and legs) and severe bone pain and feet pain, I cant wear regular shoes or even socks. I live in sandals year old (its cold in the winter months but I cant handle the pressure on my feet, it hurts too much. I am told by some, I have EDS, that is to be expected, then by others, its in your head. I am fighting for my independence on a daily basis. My husband drives me most places because my dexterity is very bad, to write or type for long time, hurts, to hold flatware to eat has been impossible, I go through 3-5 forks / spoons a meal because I cant hold it. I have had every test under the sun it seems, bone scans, blood work, x-rays, CT scans, MRI's muscle biopsy with no results. I have a stack of paperwork about 1 and 1/2 inches thick showing I am perfectly fine, but cant stand to get out of bed in the am because it hurts so bad. I have been told by a neurologist I am a mysterious girl, hence the name.