Rhythmic Movement Disorder, Can't take it anymore

[suziecue40]

Hello,

Is there anyone, I mean anyone, out there that has rhythmic movement disorder? I have been violently thrashing my body and head, laterally while asleep or mostly somewhat asleep since I can remember. I am 30 now. It use to consume maybe an hour or two a night but now it is getting drastically worse. I find myself doing it or am told that I, "rock", 4-5 hours a night. Apparently kids grow out of this and the remainder that carry this disorder into their adult lives are autistic or mentally challenged, which I am neither. My doctor prescribed me clonazepam, which does not work and I'm not taking an addictive, benzodiazepine for the rest of my life.
Does anyone relate to my problem and if so what treatments have worked for you? I'm going to go insane!

[bbaggins]

I rocked until I was about 23. What you have to do is force yourself to stop. I basically kept myself from rocking by wrapping myself up tightly in the covers. I had to stop because it was starting to make me nauseated.

A lot of people use it as a "pacifier" to go to sleep, and since they have done it for so long, they are almost afraid to stop.

Eventually it will go away.

If the clonazapam is not working, you might want to try something else like Xanax, Ativan or another benzo, or perhaps even a sleeping pill. People react differently to different meds. Clonazapam and Ativan do nothing for me (I take benzos for anxiety), but the Xanax seems to work.

[wolfman666]

My story exactly. I'm so stunned, some one else has my same story. I'm so isolated and it destroyed my self esteem. My parent's locked me in a room for days' and never spoke to me about it.It was taboo.Horrible. I wonder what my life would have been like with out this problem.

[alaskanhealthnut]

In addition to my previous comment, a person can actually listen (and watch) one of Dr. Natasha Campbell-McBride's seminars regarding the GAPS diet by going on www.youtube.com    Listening to one of her seminars would help a person know if they were a gaps patient and what to do about it.  Again, good luck and God bless!

[Dennie42]

I am 42 years old. I'm not sure if this is what is wrong with me or not. It has only happened once that I know of. I fell out of bed, I am in a wheelchair at night so I couldn't stand but out of no where I started hitting my head against the bed, my dresser, and my make up table. I was telling myself to stop but that didn't happen, I did notice that when I was hitting a spot over and over I could move my face alittle. I was black and blue and started having seizures after this but Doctors can't tell me what was going on.  Denise

[gaza564]

Hi to everyone , I have been rocking my head from side to side for most of my life i am 44 yrs old now and feel it is getting worse, i used to do it in bed just before or during sleep as you all say , but now i find myself doing it during the day too , usually when i am sitting in a chair or watching tv , and i dont know i am doing it until m y partner tells me, now he just whistles when i start to do it and i stop but i am never aware that I am doing it at the time, igt is worrying me now as it seems to be getting worse esp in the daytime , does anyone else on hear have this happening to them.
Thanks guys

Gary

[saintacha]

I am 28 years old, married and with a child. I have RMD and have ever since I can remember. I body roll just like you described. I just explain it to men and it really hasn't been that big of a deal. My husband even admitted to trying it and it just made him dizzy lol. Every family member and close friend of mine knows about and and most have seen me do this. Don't be embarrassed by it because it's pretty much a part of you. Feel proud of yourself.