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HELP! Endo vs ND. ND put me on WP for Hashi's. Endo says would not recommend meds!
Hello! I am new and previously posted back in May when I first discovered my Thyroid issues and was told that I have Hashimoto's Disease.
I am so confused! Is this just a case of an Endo not being well educated about treatment of Thyroid issues, Estrogen Dominance, and Adrenal issues, or did my ND jump the gun on putting me on Westhyroid for Hashimoto's Disease? Heck, the Endo made it sound like I don't even have Hashimoto's! Do I, or don't I have Hashimoto's?
I just met with an Endo yesterday for first time in my life. She said she would not have put me on any meds for Hashi's, while my ND put me on Westhroid 6 weeks ago. I need to make sure that I am doing the correct thing, and not ruining my Thyroid even more. Endo also said that she would not have tested me for TPO/ab and TG/ab. I instructed my PCP to add these tests (since he didn't know anything about these), and found the following:
May 9, 2015
TSH = 1.76 (.4 - 4.0) (This is highest it's ever been. Jumped from 1.52 in March to 1.76 in May. Lowest it's ever been was 0.84 9 years ago).
Free T3 = 3.0 (2.3 - 4.2)
Free T4 = 1.12 (.84 - 1.51)
TPO/ab = 1143 (0.0 - 60.0)
I immediately started supplementing Selenium and Iodine when I received these results and felt better 2 days later. (I suspected low iodine because I do not eat processed foods, nor do I salt my food.).
My Thyroid is enlarged, I have two nodules that were biopsied benign mid May. In May, I shared my labs from my PCP with my ND. She said that I have Hashimoto's and started me on two weeks of sample (1/2 grain?) Westhroid, then I started 65mg dose and have been on that for 26 days. I am still fatigued, puffy, can't seem to lose those last 5 lbs, foggy brained. I have been on LDN for about 3 weeks. I am wondering if jumping up to the 3 pill dose made me more lethargic? I cut it back to 2 pills last night and will see how today goes.
The Endo said that she is concerned that Westhroid will make my TSH go too low. I am very curious to know what my current Thyroid levels are, even if 26 days on 65mg Westhroid might be a bit too soon to check.
According to a saliva hormone test that I through Labrix, I am: Estrogen dominant, have low Cortisol, low Seratonin, low Norepinephrine, low Epinephrine, low Glutimate. My ND wants to start me on low dose oral Progesterone, has me on Gaia Adrenal Support (I am doubting this is going to help??). I am on nothing yet for the neurotransmitter issues. Endo basically ignored all of this and was not concerned.
I have MTHFR A1298C and supplement with methyl folate and methyl B12, in addition to other vitamins.
I did not care one bit for this Endo's dismissive tone. She admitted that she has no idea as to why I would be so fatigued, etc. Is she just a whack-a-doodle Endo, or are her opinions about my Thyroid, Estrogen Dominance, and Adrenal issues correct, that I shouldn't be doing anything??
What should I be doing and what should I not be doing in my situation?
Please help! Thanks!
I am so confused! Is this just a case of an Endo not being well educated about treatment of Thyroid issues, Estrogen Dominance, and Adrenal issues, or did my ND jump the gun on putting me on Westhyroid for Hashimoto's Disease? Heck, the Endo made it sound like I don't even have Hashimoto's! Do I, or don't I have Hashimoto's?
I just met with an Endo yesterday for first time in my life. She said she would not have put me on any meds for Hashi's, while my ND put me on Westhroid 6 weeks ago. I need to make sure that I am doing the correct thing, and not ruining my Thyroid even more. Endo also said that she would not have tested me for TPO/ab and TG/ab. I instructed my PCP to add these tests (since he didn't know anything about these), and found the following:
May 9, 2015
TSH = 1.76 (.4 - 4.0) (This is highest it's ever been. Jumped from 1.52 in March to 1.76 in May. Lowest it's ever been was 0.84 9 years ago).
Free T3 = 3.0 (2.3 - 4.2)
Free T4 = 1.12 (.84 - 1.51)
TPO/ab = 1143 (0.0 - 60.0)
I immediately started supplementing Selenium and Iodine when I received these results and felt better 2 days later. (I suspected low iodine because I do not eat processed foods, nor do I salt my food.).
My Thyroid is enlarged, I have two nodules that were biopsied benign mid May. In May, I shared my labs from my PCP with my ND. She said that I have Hashimoto's and started me on two weeks of sample (1/2 grain?) Westhroid, then I started 65mg dose and have been on that for 26 days. I am still fatigued, puffy, can't seem to lose those last 5 lbs, foggy brained. I have been on LDN for about 3 weeks. I am wondering if jumping up to the 3 pill dose made me more lethargic? I cut it back to 2 pills last night and will see how today goes.
The Endo said that she is concerned that Westhroid will make my TSH go too low. I am very curious to know what my current Thyroid levels are, even if 26 days on 65mg Westhroid might be a bit too soon to check.
According to a saliva hormone test that I through Labrix, I am: Estrogen dominant, have low Cortisol, low Seratonin, low Norepinephrine, low Epinephrine, low Glutimate. My ND wants to start me on low dose oral Progesterone, has me on Gaia Adrenal Support (I am doubting this is going to help??). I am on nothing yet for the neurotransmitter issues. Endo basically ignored all of this and was not concerned.
I have MTHFR A1298C and supplement with methyl folate and methyl B12, in addition to other vitamins.
I did not care one bit for this Endo's dismissive tone. She admitted that she has no idea as to why I would be so fatigued, etc. Is she just a whack-a-doodle Endo, or are her opinions about my Thyroid, Estrogen Dominance, and Adrenal issues correct, that I shouldn't be doing anything??
What should I be doing and what should I not be doing in my situation?
Please help! Thanks!
Your cramps could be due to low magnesium. Too much calcium and sugar depletes magnesium.
COMMUNITY LEADER
No, I don't think you do understand what I'm saying, but that's okay... I'm not here to argue with you...
For your information, links and references to the the site you've quoted from are not allowed here, since they're a competing site; however I won't report it this time... Neither do I put much stock in the information that comes from there.
For your information, links and references to the the site you've quoted from are not allowed here, since they're a competing site; however I won't report it this time... Neither do I put much stock in the information that comes from there.
In case this is deleted due to providing the link:
Hi Barb,
I think I understand what you are saying. The studies you notate are in iodine deficient areas. What were the selenium values of the people studied? It is best not to be deficient in any nutrients.
Selenium and iodine work hand in hand, much as calcium and phosphorus do (I am thinking horses here.....as in horses who eat too much alfalfa....), or with calcium and potassium (as in humans....if eating too much ice cream, for example, without balancing potassium....I have person over eaten ice cream and woken up in the night with severe quadriceps spasms, due to the calcium/potassium imbalance.). Balancing intake of opposing minerals helps to achieve balance within the body. If a person is supplementing selenium in their diet, they need to make sure that they are consuming the baseline amount of iodine:
From the Stop The Thyroid Madness website, see Selenium:
"What does selenium do for the thyroid? How is it connected to iodine? As stated earlier, selenoproteins in the Dis family convert the storage hormone T4 into the active T3 hormone. It does this by removing one iodine atom from the T4. But, selenium has other relationships with iodine as well. It is well documented that a severe iodine deficiency leads to neurological and myxedematous cretinism. It is only when a severe selenium deficiency is coupled with a severe iodine deficiency does the latter occur. Iodine deficiency also causes goiter but a selenium deficiency results in a “weighty” or heavy thyroid as evidenced by ultrasound results. Studies show that selenium protects against goiter and iodine is proving to protect against a heavy thyroid.
When there is an iodine deficiency and attempts to supplement with selenium occur, the selenium will magnify the iodine deficiency causing it to become worse. The reverse is also true. If there is a selenium deficiency and attempts are made to supplement with iodine, the iodine will exacerbate the selenium deficiency causing it to worsen as well. In fact, anytime one is high and the other is low, symptoms will occur and often times get worse. If there is a deficiency, both must be supplemented or kept low.
In addition to its affiliation with iodine, selenium is responsible for other regulatory functions within the thyroid. Selenium deficiency leads to the exacerbation of Graves, Hypothyroidism, Hashimoto’s and other thyroid disorders. Recent studies have shown that selenium supplementation can reduce serum levels of T4, Free T4, and Reverse T3 (See links below). To explain, the thyroid produces hydrogen peroxide during the production of T4. While some hydrogen peroxide is essential for proper functioning, excessive amounts of it can lead to high T4 production which results in a lower T3 availability. Too much hydrogen peroxide will also cause cell destruction. Selenium as GPx anti-oxidant breaks down excessive hydrogen peroxide and as a TRx prevents cell damage and necrosis of thyrocytes.
Can I take iodine if I have Hashi’s? What role does selenium play in this?
>>>>>>>>>>>>>Current research is proving that those with Auto-Immune Thyroiditis (AIT), which is widely known as Hashimoto’s Thyroiditis, or simply, Hashimoto’s, can and should supplement with iodine.<<<<<<<<<<<<<<<<<<<<<>>>>>>>>>>Current research extols that selenium restores the balance, not only of the thyroid, but also the immune system as well.<<<<<<<<<<<<
It is not uncommon for those with AIT to be selenium deficient due to their diets or other autoimmune conditions they may have (such as Celiac’s, Crohn’s, or Ulcerative Colitis). 90% of the body’s immune system resides in the small intestine where these autoimmune disorders are seated. So those with autoimmune disorders often avoid gluten as it intensifies the immune response. Unfortunately, most selenium is taken in from bread, pasta, grains, and flour enriched with selenium. All those who have gone gluten free avoid these foods due to the immune system’s response to the gluten. Furthermore, the majority of selenium is absorbed in the small intestine, so those with autoimmune issues are at a higher risk of Selenium deficiency.
Research has shown that selenium is an immune-modulator and a deficiency results in a compromised immune system. A mild selenium deficiency complicates AIT, but a severe deficiency in the mineral leads to thyrocyte destruction and the increase of macrophages – a type of white blood cell. Since selenium is responsible for modifying the body’s inflammatory response, it is a wise decision to add a dietary selenium supplement.
How much selenium can I take? Can it reduce antibodies? The vast majority of experts agree that a good starting therapeutic dose of 200 micrograms (mcg) has positive effects on both the thyroid and the immune system. At this dose, selenium significantly reduces TPO and TgAb antibodies; up to 55-86% and 35-92% respectively. Attainment of euthyroid status (after long term therapeutic dosing) has also been reported. It is important to note that selenium supplementation, even in those with a sufficient selenium level, will still enhance immune and thyroid response. Research data shows that a dose of less than 200mcg is not sufficient and will heighten iodine deficiency, goiter, and AIT attacks.
The National Institutes of Health Office of Dietary Supplements states that adults should not consume more than 400 mcg of selenium per day."
Hi Barb,
I think I understand what you are saying. The studies you notate are in iodine deficient areas. What were the selenium values of the people studied? It is best not to be deficient in any nutrients.
Selenium and iodine work hand in hand, much as calcium and phosphorus do (I am thinking horses here.....as in horses who eat too much alfalfa....), or with calcium and potassium (as in humans....if eating too much ice cream, for example, without balancing potassium....I have person over eaten ice cream and woken up in the night with severe quadriceps spasms, due to the calcium/potassium imbalance.). Balancing intake of opposing minerals helps to achieve balance within the body. If a person is supplementing selenium in their diet, they need to make sure that they are consuming the baseline amount of iodine:
From the Stop The Thyroid Madness website, see Selenium:
"What does selenium do for the thyroid? How is it connected to iodine? As stated earlier, selenoproteins in the Dis family convert the storage hormone T4 into the active T3 hormone. It does this by removing one iodine atom from the T4. But, selenium has other relationships with iodine as well. It is well documented that a severe iodine deficiency leads to neurological and myxedematous cretinism. It is only when a severe selenium deficiency is coupled with a severe iodine deficiency does the latter occur. Iodine deficiency also causes goiter but a selenium deficiency results in a “weighty” or heavy thyroid as evidenced by ultrasound results. Studies show that selenium protects against goiter and iodine is proving to protect against a heavy thyroid.
When there is an iodine deficiency and attempts to supplement with selenium occur, the selenium will magnify the iodine deficiency causing it to become worse. The reverse is also true. If there is a selenium deficiency and attempts are made to supplement with iodine, the iodine will exacerbate the selenium deficiency causing it to worsen as well. In fact, anytime one is high and the other is low, symptoms will occur and often times get worse. If there is a deficiency, both must be supplemented or kept low.
In addition to its affiliation with iodine, selenium is responsible for other regulatory functions within the thyroid. Selenium deficiency leads to the exacerbation of Graves, Hypothyroidism, Hashimoto’s and other thyroid disorders. Recent studies have shown that selenium supplementation can reduce serum levels of T4, Free T4, and Reverse T3 (See links below). To explain, the thyroid produces hydrogen peroxide during the production of T4. While some hydrogen peroxide is essential for proper functioning, excessive amounts of it can lead to high T4 production which results in a lower T3 availability. Too much hydrogen peroxide will also cause cell destruction. Selenium as GPx anti-oxidant breaks down excessive hydrogen peroxide and as a TRx prevents cell damage and necrosis of thyrocytes.
Can I take iodine if I have Hashi’s? What role does selenium play in this?
>>>>>>>>>>>>>Current research is proving that those with Auto-Immune Thyroiditis (AIT), which is widely known as Hashimoto’s Thyroiditis, or simply, Hashimoto’s, can and should supplement with iodine.<<<<<<<<<<<<<<<<<<<<<>>>>>>>>>>Current research extols that selenium restores the balance, not only of the thyroid, but also the immune system as well.<<<<<<<<<<<<
It is not uncommon for those with AIT to be selenium deficient due to their diets or other autoimmune conditions they may have (such as Celiac’s, Crohn’s, or Ulcerative Colitis). 90% of the body’s immune system resides in the small intestine where these autoimmune disorders are seated. So those with autoimmune disorders often avoid gluten as it intensifies the immune response. Unfortunately, most selenium is taken in from bread, pasta, grains, and flour enriched with selenium. All those who have gone gluten free avoid these foods due to the immune system’s response to the gluten. Furthermore, the majority of selenium is absorbed in the small intestine, so those with autoimmune issues are at a higher risk of Selenium deficiency.
Research has shown that selenium is an immune-modulator and a deficiency results in a compromised immune system. A mild selenium deficiency complicates AIT, but a severe deficiency in the mineral leads to thyrocyte destruction and the increase of macrophages – a type of white blood cell. Since selenium is responsible for modifying the body’s inflammatory response, it is a wise decision to add a dietary selenium supplement.
How much selenium can I take? Can it reduce antibodies? The vast majority of experts agree that a good starting therapeutic dose of 200 micrograms (mcg) has positive effects on both the thyroid and the immune system. At this dose, selenium significantly reduces TPO and TgAb antibodies; up to 55-86% and 35-92% respectively. Attainment of euthyroid status (after long term therapeutic dosing) has also been reported. It is important to note that selenium supplementation, even in those with a sufficient selenium level, will still enhance immune and thyroid response. Research data shows that a dose of less than 200mcg is not sufficient and will heighten iodine deficiency, goiter, and AIT attacks.
The National Institutes of Health Office of Dietary Supplements states that adults should not consume more than 400 mcg of selenium per day."
Hi Barb,
I think I understand what you are saying. The studies you notate are in iodine deficient areas. What were the selenium values of the people studied? It is best not to be deficient in any nutrients.
Selenium and iodine work hand in hand, much as calcium and phosphorus do (I am thinking horses here.....as in horses who eat too much alfalfa....), or with calcium and potassium (as in humans....if eating too much ice cream, for example, without balancing potassium....I have person over eaten ice cream and woken up in the night with severe quadriceps spasms, due to the calcium/potassium imbalance.). Balancing intake of opposing minerals helps to achieve balance within the body. If a person is supplementing selenium in their diet, they need to make sure that they are consuming the baseline amount of iodine:
http://www.*************************/selenium/
"What does selenium do for the thyroid? How is it connected to iodine? As stated earlier, selenoproteins in the Dis family convert the storage hormone T4 into the active T3 hormone. It does this by removing one iodine atom from the T4. But, selenium has other relationships with iodine as well. It is well documented that a severe iodine deficiency leads to neurological and myxedematous cretinism. It is only when a severe selenium deficiency is coupled with a severe iodine deficiency does the latter occur. Iodine deficiency also causes goiter but a selenium deficiency results in a “weighty” or heavy thyroid as evidenced by ultrasound results. Studies show that selenium protects against goiter and iodine is proving to protect against a heavy thyroid.
When there is an iodine deficiency and attempts to supplement with selenium occur, the selenium will magnify the iodine deficiency causing it to become worse. The reverse is also true. If there is a selenium deficiency and attempts are made to supplement with iodine, the iodine will exacerbate the selenium deficiency causing it to worsen as well. In fact, anytime one is high and the other is low, symptoms will occur and often times get worse. If there is a deficiency, both must be supplemented or kept low.
In addition to its affiliation with iodine, selenium is responsible for other regulatory functions within the thyroid. Selenium deficiency leads to the exacerbation of Graves, Hypothyroidism, Hashimoto’s and other thyroid disorders. Recent studies have shown that selenium supplementation can reduce serum levels of T4, Free T4, and Reverse T3 (See links below). To explain, the thyroid produces hydrogen peroxide during the production of T4. While some hydrogen peroxide is essential for proper functioning, excessive amounts of it can lead to high T4 production which results in a lower T3 availability. Too much hydrogen peroxide will also cause cell destruction. Selenium as GPx anti-oxidant breaks down excessive hydrogen peroxide and as a TRx prevents cell damage and necrosis of thyrocytes.
Can I take iodine if I have Hashi’s? What role does selenium play in this?
>>>>>>>>>>>>>Current research is proving that those with Auto-Immune Thyroiditis (AIT), which is widely known as Hashimoto’s Thyroiditis, or simply, Hashimoto’s, can and should supplement with iodine.<<<<<<<<<<<<<<<<<<<<<<>>>>>>>>>>>Current research extols that selenium restores the balance, not only of the thyroid, but also the immune system as well.<<<<<<<<<<<<
It is not uncommon for those with AIT to be selenium deficient due to their diets or other autoimmune conditions they may have (such as Celiac’s, Crohn’s, or Ulcerative Colitis). 90% of the body’s immune system resides in the small intestine where these autoimmune disorders are seated. So those with autoimmune disorders often avoid gluten as it intensifies the immune response. Unfortunately, most selenium is taken in from bread, pasta, grains, and flour enriched with selenium. All those who have gone gluten free avoid these foods due to the immune system’s response to the gluten. Furthermore, the majority of selenium is absorbed in the small intestine, so those with autoimmune issues are at a higher risk of Selenium deficiency.
Research has shown that selenium is an immune-modulator and a deficiency results in a compromised immune system. A mild selenium deficiency complicates AIT, but a severe deficiency in the mineral leads to thyrocyte destruction and the increase of macrophages – a type of white blood cell. Since selenium is responsible for modifying the body’s inflammatory response, it is a wise decision to add a dietary selenium supplement.
How much selenium can I take? Can it reduce antibodies? The vast majority of experts agree that a good starting therapeutic dose of 200 micrograms (mcg) has positive effects on both the thyroid and the immune system. At this dose, selenium significantly reduces TPO and TgAb antibodies; up to 55-86% and 35-92% respectively. Attainment of euthyroid status (after long term therapeutic dosing) has also been reported. It is important to note that selenium supplementation, even in those with a sufficient selenium level, will still enhance immune and thyroid response. Research data shows that a dose of less than 200mcg is not sufficient and will heighten iodine deficiency, goiter, and AIT attacks.
The National Institutes of Health Office of Dietary Supplements states that adults should not consume more than 400 mcg of selenium per day."
I think I understand what you are saying. The studies you notate are in iodine deficient areas. What were the selenium values of the people studied? It is best not to be deficient in any nutrients.
Selenium and iodine work hand in hand, much as calcium and phosphorus do (I am thinking horses here.....as in horses who eat too much alfalfa....), or with calcium and potassium (as in humans....if eating too much ice cream, for example, without balancing potassium....I have person over eaten ice cream and woken up in the night with severe quadriceps spasms, due to the calcium/potassium imbalance.). Balancing intake of opposing minerals helps to achieve balance within the body. If a person is supplementing selenium in their diet, they need to make sure that they are consuming the baseline amount of iodine:
http://www.*************************/selenium/
"What does selenium do for the thyroid? How is it connected to iodine? As stated earlier, selenoproteins in the Dis family convert the storage hormone T4 into the active T3 hormone. It does this by removing one iodine atom from the T4. But, selenium has other relationships with iodine as well. It is well documented that a severe iodine deficiency leads to neurological and myxedematous cretinism. It is only when a severe selenium deficiency is coupled with a severe iodine deficiency does the latter occur. Iodine deficiency also causes goiter but a selenium deficiency results in a “weighty” or heavy thyroid as evidenced by ultrasound results. Studies show that selenium protects against goiter and iodine is proving to protect against a heavy thyroid.
When there is an iodine deficiency and attempts to supplement with selenium occur, the selenium will magnify the iodine deficiency causing it to become worse. The reverse is also true. If there is a selenium deficiency and attempts are made to supplement with iodine, the iodine will exacerbate the selenium deficiency causing it to worsen as well. In fact, anytime one is high and the other is low, symptoms will occur and often times get worse. If there is a deficiency, both must be supplemented or kept low.
In addition to its affiliation with iodine, selenium is responsible for other regulatory functions within the thyroid. Selenium deficiency leads to the exacerbation of Graves, Hypothyroidism, Hashimoto’s and other thyroid disorders. Recent studies have shown that selenium supplementation can reduce serum levels of T4, Free T4, and Reverse T3 (See links below). To explain, the thyroid produces hydrogen peroxide during the production of T4. While some hydrogen peroxide is essential for proper functioning, excessive amounts of it can lead to high T4 production which results in a lower T3 availability. Too much hydrogen peroxide will also cause cell destruction. Selenium as GPx anti-oxidant breaks down excessive hydrogen peroxide and as a TRx prevents cell damage and necrosis of thyrocytes.
Can I take iodine if I have Hashi’s? What role does selenium play in this?
>>>>>>>>>>>>>Current research is proving that those with Auto-Immune Thyroiditis (AIT), which is widely known as Hashimoto’s Thyroiditis, or simply, Hashimoto’s, can and should supplement with iodine.<<<<<<<<<<<<<<<<<<<<<<>>>>>>>>>>>Current research extols that selenium restores the balance, not only of the thyroid, but also the immune system as well.<<<<<<<<<<<<
It is not uncommon for those with AIT to be selenium deficient due to their diets or other autoimmune conditions they may have (such as Celiac’s, Crohn’s, or Ulcerative Colitis). 90% of the body’s immune system resides in the small intestine where these autoimmune disorders are seated. So those with autoimmune disorders often avoid gluten as it intensifies the immune response. Unfortunately, most selenium is taken in from bread, pasta, grains, and flour enriched with selenium. All those who have gone gluten free avoid these foods due to the immune system’s response to the gluten. Furthermore, the majority of selenium is absorbed in the small intestine, so those with autoimmune issues are at a higher risk of Selenium deficiency.
Research has shown that selenium is an immune-modulator and a deficiency results in a compromised immune system. A mild selenium deficiency complicates AIT, but a severe deficiency in the mineral leads to thyrocyte destruction and the increase of macrophages – a type of white blood cell. Since selenium is responsible for modifying the body’s inflammatory response, it is a wise decision to add a dietary selenium supplement.
How much selenium can I take? Can it reduce antibodies? The vast majority of experts agree that a good starting therapeutic dose of 200 micrograms (mcg) has positive effects on both the thyroid and the immune system. At this dose, selenium significantly reduces TPO and TgAb antibodies; up to 55-86% and 35-92% respectively. Attainment of euthyroid status (after long term therapeutic dosing) has also been reported. It is important to note that selenium supplementation, even in those with a sufficient selenium level, will still enhance immune and thyroid response. Research data shows that a dose of less than 200mcg is not sufficient and will heighten iodine deficiency, goiter, and AIT attacks.
The National Institutes of Health Office of Dietary Supplements states that adults should not consume more than 400 mcg of selenium per day."
COMMUNITY LEADER
I fully understand that you are deficient in iodine... many of us are. I, too have IC and I've also been on a salt restricted diet since I was in my 30's due to excess fluid retention.
I also have Hashimoto's and Pernicious Anemia, plus I was deficient in selenium and other nutrients when I was diagnosed with Hashimoto's. In addition, since then, I've been diagnosed with Metabolic Syndrome and pre-diabetes, which I've pretty much turned around with additional diet changes.
Studies have shown that when you have Hashimoto's, such many of us, here on the forum, that supplementing with iodine, actually causes the autoimmune attack on the thyroid to be worse than it be if you weren't taking the iodine.
"In Sri Lanka researchers kept track of the effects of using iodine on thyroid function and they charted their findings for 3 years. This was the first study of its kind. It showed the changes in autoimmune markers as the study went on and showed the increases in autoimmune disease in these people.
In Turkey a study looked at 1,733 adolescents and found that the elimination of iodine deficiency in the Eastern Black Sea region was also followed by an increase in autoimmune thyroiditis and thyroid dysfunction.
Practitioners and health coaches who tell Hashimoto’s patients to take iodine may be causing a more aggressive autoimmune attack on thyroid tissue."
I also have Hashimoto's and Pernicious Anemia, plus I was deficient in selenium and other nutrients when I was diagnosed with Hashimoto's. In addition, since then, I've been diagnosed with Metabolic Syndrome and pre-diabetes, which I've pretty much turned around with additional diet changes.
Studies have shown that when you have Hashimoto's, such many of us, here on the forum, that supplementing with iodine, actually causes the autoimmune attack on the thyroid to be worse than it be if you weren't taking the iodine.
"In Sri Lanka researchers kept track of the effects of using iodine on thyroid function and they charted their findings for 3 years. This was the first study of its kind. It showed the changes in autoimmune markers as the study went on and showed the increases in autoimmune disease in these people.
In Turkey a study looked at 1,733 adolescents and found that the elimination of iodine deficiency in the Eastern Black Sea region was also followed by an increase in autoimmune thyroiditis and thyroid dysfunction.
Practitioners and health coaches who tell Hashimoto’s patients to take iodine may be causing a more aggressive autoimmune attack on thyroid tissue."
I've read 25% who have an autoimmune disease will have more than one. My sister and I have the same 4 autoimmune diseases - pernicious anaemia, vitiligo, alopecia areta, Hashimoto's thyroiditis. I would like to give mine away as I do not like them! XD
Hi Red Star,
Thanks for this info. I think I've read that once a person has one auto immune disorder, they are likely to have three with in their life time. I have been tested for the following, with the results notated:
Type 1 diabetes - negative
Pernicious Anaemia
Addison's Disease
Vitiligo
Celiac Disease - negative
Alopecia Areta
Systematic Lupus Erthematosus (SLE) - negative
Rheumatoid Arthritis - negative
Sjogren's Syndrome - negative
Inflammatory Bowel Disease
Multiple Sclerosis (MS)" - negative
Thanks for this info. I think I've read that once a person has one auto immune disorder, they are likely to have three with in their life time. I have been tested for the following, with the results notated:
Type 1 diabetes - negative
Pernicious Anaemia
Addison's Disease
Vitiligo
Celiac Disease - negative
Alopecia Areta
Systematic Lupus Erthematosus (SLE) - negative
Rheumatoid Arthritis - negative
Sjogren's Syndrome - negative
Inflammatory Bowel Disease
Multiple Sclerosis (MS)" - negative
Hi Barb,
In retrospect, my Interstitial Cystitis diet has been missing elemental nutrients. My IC has been in remission for years without any medication, and by diet alone. Once I became aware of the price I'd pay if I ate certain foods, I've been very disciplined as to what I put in my mouth ever since. This discipline has lead to a diet lacking in vitamin C, iodine and selenium. Dysbiosis and MTHFR lead to other issues, like lack of folate and B12 absorption.
Iodine RDA is 150 mcg, but I have likely not been receiving anywhere close to 150 mcg on a regular basis for years. Iodine deficiency contributes to goiter, hypo thyroid issues and fibrostic breasts (due to these nodules, I had a double biospy last year). I have these three, in addition to uterine fibroids. If a person consumes foods that contain goitrogens, substances that interfere with the uptake of iodine in the thyroid, they can exacerbate iodine deficiency. The primary vegetable that I eat is a goitrogen; broccoli, in addition to cauliflower, and other cruciferous vegetables.
Couple that with the fact that everything I eat is unsalted, and I do not eat any processed/fortified foods foods. The only two foods that I eat on the list of top 10 foods containing iodine are: eggs and turkey. The closest thing I get to processed is: whey protein (0 iodine), Premier Protein Drinks (25% RDA Iodine), and occasional protein bars. I have avoided salt for years, so where I am I getting iodine from?....not many places. If I eat salty food, I can feel it in my bladder (IC). Additionally, it makes my hands stiff.
Most of the foods that I've been eating for years contain little or no iodine: whey protein powder, oatmeal, and coconut milk with blue berries; fresh vegetables and only a few fresh fruits. Zero pasta, bread, gluten. Sure, I might cook eggs a few days a week, or ground turkey once a week, but there are days that would go by where what I eat might contain very little iodine. I do not eat out very often (2 - 5 times a month). When I do, I usually have salmon or chicken prepared very bland, zero salt. I am not afraid of fats and make sure to consume them
In other words, I have not been meeting the iodine RDA (150 mcg) for years, nor have I been meeting the selenium RDA (55 mcg). Excess iodine can cause autoimmune thyroid disorders, especially when selenium is deficient or in excess. Optimal selenium can eliminate goiter and normalize autoimmune markers.
Hopefully this all makes sense as to why I decided to add iodine to my diet.
I think it will be very interesting to see if there is any change in my TPO/ab and other thryoid hormones, especially since I have been supplementing selenium. I am looking into finding a lab that tests iodine serum.
In retrospect, my Interstitial Cystitis diet has been missing elemental nutrients. My IC has been in remission for years without any medication, and by diet alone. Once I became aware of the price I'd pay if I ate certain foods, I've been very disciplined as to what I put in my mouth ever since. This discipline has lead to a diet lacking in vitamin C, iodine and selenium. Dysbiosis and MTHFR lead to other issues, like lack of folate and B12 absorption.
Iodine RDA is 150 mcg, but I have likely not been receiving anywhere close to 150 mcg on a regular basis for years. Iodine deficiency contributes to goiter, hypo thyroid issues and fibrostic breasts (due to these nodules, I had a double biospy last year). I have these three, in addition to uterine fibroids. If a person consumes foods that contain goitrogens, substances that interfere with the uptake of iodine in the thyroid, they can exacerbate iodine deficiency. The primary vegetable that I eat is a goitrogen; broccoli, in addition to cauliflower, and other cruciferous vegetables.
Couple that with the fact that everything I eat is unsalted, and I do not eat any processed/fortified foods foods. The only two foods that I eat on the list of top 10 foods containing iodine are: eggs and turkey. The closest thing I get to processed is: whey protein (0 iodine), Premier Protein Drinks (25% RDA Iodine), and occasional protein bars. I have avoided salt for years, so where I am I getting iodine from?....not many places. If I eat salty food, I can feel it in my bladder (IC). Additionally, it makes my hands stiff.
Most of the foods that I've been eating for years contain little or no iodine: whey protein powder, oatmeal, and coconut milk with blue berries; fresh vegetables and only a few fresh fruits. Zero pasta, bread, gluten. Sure, I might cook eggs a few days a week, or ground turkey once a week, but there are days that would go by where what I eat might contain very little iodine. I do not eat out very often (2 - 5 times a month). When I do, I usually have salmon or chicken prepared very bland, zero salt. I am not afraid of fats and make sure to consume them
In other words, I have not been meeting the iodine RDA (150 mcg) for years, nor have I been meeting the selenium RDA (55 mcg). Excess iodine can cause autoimmune thyroid disorders, especially when selenium is deficient or in excess. Optimal selenium can eliminate goiter and normalize autoimmune markers.
Hopefully this all makes sense as to why I decided to add iodine to my diet.
I think it will be very interesting to see if there is any change in my TPO/ab and other thryoid hormones, especially since I have been supplementing selenium. I am looking into finding a lab that tests iodine serum.
COMMUNITY LEADER
There are different causes of vitamin B-12 deficiency... it can be from poor diet or simply not eating enough of the foods that are rich in B-12, since it only comes from animal products, such as meat, eggs, dairy, etc. Many vegetarians or vegans are deficient in B-12.
I, too, have Pernicious Anemia, which is, by definition autoimmune. Once a person has one autoimmune condition, the chances of having another are greater.
Chloride is, typically, looked at with potassium and sodium, since those are all electrolytes. Typically, if they are in the range, they are considered to be normal...
I, too, have Pernicious Anemia, which is, by definition autoimmune. Once a person has one autoimmune condition, the chances of having another are greater.
Chloride is, typically, looked at with potassium and sodium, since those are all electrolytes. Typically, if they are in the range, they are considered to be normal...
I have autoimmune pernicious anaemia actually. My MCV was 83 fL (80 - 98) with severe vitamin B12 deficiency. I had masked megaloblastic anaemia.
The following info is from the book "The Everything Guide To Thyroid Disease" by Theodore C. Friedman, MD, PhD and Winnie Yu Scherer:
"Although the majority of people with Hashimoto's will not develop any other disorders, it's important to know what some of these autoimmune conditions are in case you do start to experience symptoms. Keep in mind, too, that you may be more likely to develop Hashimoto's if you have one of these other conditions.
Type 1 diabetes
Pernicious Anaemia
Addison's Disease
Vitiligo
Celiac Disease
Alopecia Areta
Systematic Lupus Erthematosus (SLE)
Rheumatoid Arthritis
Sjogren's Syndrome
Inflammatory Bowel Disease
Multiple Sclerosis (MS)"
The following info is from the book "The Everything Guide To Thyroid Disease" by Theodore C. Friedman, MD, PhD and Winnie Yu Scherer:
"Although the majority of people with Hashimoto's will not develop any other disorders, it's important to know what some of these autoimmune conditions are in case you do start to experience symptoms. Keep in mind, too, that you may be more likely to develop Hashimoto's if you have one of these other conditions.
Type 1 diabetes
Pernicious Anaemia
Addison's Disease
Vitiligo
Celiac Disease
Alopecia Areta
Systematic Lupus Erthematosus (SLE)
Rheumatoid Arthritis
Sjogren's Syndrome
Inflammatory Bowel Disease
Multiple Sclerosis (MS)"
COMMUNITY LEADER
WP has T3 in it and T3 can be taken with food, whereas T4 can't, so it's not as critical to separate the WP like it is a regular T4 med.
Yes, the fact that you're taking all your WP at once could have a huge bearing on being tired later in the day, because T3 is fast acting and it doesn't stay in your system for more than a few hours. You're taking it all at once, it peaks within 2-4 hrs and is gone a few hours later, so you're left the rest of the day with nothing.
It's not so hard to rearrange your schedule slightly to accommodate the med, once you think about it... The med is much more "forgiving" than we think it might be, as long as we're consistent in how we take it and don't take things that obviously inhibit absorption with it.
For instance, when I was still working, I got up at 3:30 am, took my T4 med as soon as I got out of bed, turned on the coffee pot, which was prepared the night before, jumped in the shower and by the time I got done showering, got my coffee ready and got my hair dried, 30 minutes had gone by and I could get go ahead and take my first dose of T3, eat breakfast and get on with my day. My second dose of T3 was taken with lunch.
Now that I no longer work, I still take my T4 med but I take my T3 with it, first thing, turn on the coffee pot, feed the dog and putter around for a while... it doesn't take long for that 30 minutes to go by... I "never" wait a full 60 minutes to have coffee and it really doesn't matter that much, as long as you're consistent with your schedule. Instead of watching the clock for 30 minutes, why not use that time on the treadmill? Makes the time go faster if you're doing something...
My second dose of T3 is still taken with lunch. You can take your second dose of WP just before lunch, then wait, say 30 minutes before eating anything...
I realize that your T4 and T3 are "together" whereas mine are separate, but even if I were taking something such as WP, I'd do it the same as I do now, only I'd take the second dose about 30 minutes before lunch.
Kelp is chock full of iodine and iodine is contra-indicated for those of us with Hashimoto's, as it can make the autoimmune reaction much worse than it otherwise would be... I don't recommend taking that, at all.
I'm not sure why selenium would be important to take in the morning; you shouldn't be able to actually "feel" much of anything, such as an energy boost, right after you take it.
I take NSAIDS, but I try to separate them from my thyroid meds by a couple hours... thyroid meds are best taken apart from other medications, whenever possible.
I take the bulk of my vitamins/minerals at dinner time and bedtime. Some of them, such as calcium, magnesium, etc are best taken then anyway, because they tend to have a calming effect, so they can help you sleep.
Make sure ferritin is included in the iron panel.
Yes, the fact that you're taking all your WP at once could have a huge bearing on being tired later in the day, because T3 is fast acting and it doesn't stay in your system for more than a few hours. You're taking it all at once, it peaks within 2-4 hrs and is gone a few hours later, so you're left the rest of the day with nothing.
It's not so hard to rearrange your schedule slightly to accommodate the med, once you think about it... The med is much more "forgiving" than we think it might be, as long as we're consistent in how we take it and don't take things that obviously inhibit absorption with it.
For instance, when I was still working, I got up at 3:30 am, took my T4 med as soon as I got out of bed, turned on the coffee pot, which was prepared the night before, jumped in the shower and by the time I got done showering, got my coffee ready and got my hair dried, 30 minutes had gone by and I could get go ahead and take my first dose of T3, eat breakfast and get on with my day. My second dose of T3 was taken with lunch.
Now that I no longer work, I still take my T4 med but I take my T3 with it, first thing, turn on the coffee pot, feed the dog and putter around for a while... it doesn't take long for that 30 minutes to go by... I "never" wait a full 60 minutes to have coffee and it really doesn't matter that much, as long as you're consistent with your schedule. Instead of watching the clock for 30 minutes, why not use that time on the treadmill? Makes the time go faster if you're doing something...
My second dose of T3 is still taken with lunch. You can take your second dose of WP just before lunch, then wait, say 30 minutes before eating anything...
I realize that your T4 and T3 are "together" whereas mine are separate, but even if I were taking something such as WP, I'd do it the same as I do now, only I'd take the second dose about 30 minutes before lunch.
Kelp is chock full of iodine and iodine is contra-indicated for those of us with Hashimoto's, as it can make the autoimmune reaction much worse than it otherwise would be... I don't recommend taking that, at all.
I'm not sure why selenium would be important to take in the morning; you shouldn't be able to actually "feel" much of anything, such as an energy boost, right after you take it.
I take NSAIDS, but I try to separate them from my thyroid meds by a couple hours... thyroid meds are best taken apart from other medications, whenever possible.
I take the bulk of my vitamins/minerals at dinner time and bedtime. Some of them, such as calcium, magnesium, etc are best taken then anyway, because they tend to have a calming effect, so they can help you sleep.
Make sure ferritin is included in the iron panel.
Hmmmm.......Interesting! Does this have any significance...
I've had six Comprehensive Metabolic Panels this year so far, at three different labs.....I just noticed that all of my Chloride levels look like this: 102 (99-109), 104 (98-107), 105 (98-107), 105 (97-108), etc. This does appear to be "normal", as the norm range is indicated as being: 97-107. I barely sweat (due to Thyroid?), have normal serum sodium levels, glucose is normal. My BUN is fairly consistently marked as high, but Drs are never concerned when I inquire.
I also notice that my CO2 levels look like this: 32 (22-31), 31 (22-31), 26 (22-28), 31 (21-31), etc. I do not eat any acidic foods, drinks, nor take diuretics due to IC, nor do I take any medications which would elevate CO2.
Should I be concerned about these levels?
Funny, so far I have been diagnosed with the following things that all have fatigue and/or weakness associated with them:
MTHFR
Hashimoto's
CEBV
Vitamin C deficiency
folate deficiency
B12 deficiency
selenium deficiency
Fibromialgia
I've had six Comprehensive Metabolic Panels this year so far, at three different labs.....I just noticed that all of my Chloride levels look like this: 102 (99-109), 104 (98-107), 105 (98-107), 105 (97-108), etc. This does appear to be "normal", as the norm range is indicated as being: 97-107. I barely sweat (due to Thyroid?), have normal serum sodium levels, glucose is normal. My BUN is fairly consistently marked as high, but Drs are never concerned when I inquire.
I also notice that my CO2 levels look like this: 32 (22-31), 31 (22-31), 26 (22-28), 31 (21-31), etc. I do not eat any acidic foods, drinks, nor take diuretics due to IC, nor do I take any medications which would elevate CO2.
Should I be concerned about these levels?
Funny, so far I have been diagnosed with the following things that all have fatigue and/or weakness associated with them:
MTHFR
Hashimoto's
CEBV
Vitamin C deficiency
folate deficiency
B12 deficiency
selenium deficiency
Fibromialgia
Hi Barb! I appreciate your input. Thanks you!
Yes, I was thinking all signs point to Hashi's....chronic EPV, etc. You know, I went to the that Endo appointment because my PCP had referred me, and I went in thinking, "maybe I can learn something I don't know.". What I got instead was a total head spin! I left her office feeling so numb and deflated, yet I head/palming over over her opinions and attitude. Yes, all things considered, I had no choice but to introduced her to the curb. ;-)
I do believe I have some symptoms of hypo, and some of hyper. The Endo examined me and said, "Well, you look great! You look very fit! Do you work out a lot?". To which I grimaced, as what I feel like on the inside is what I am concerned about! Me: "I own a farm. I have been so fatigued and in pain, I am dragging myself around doing farm work on a daily basis. Between all of that, I've only managed to ride my horse 6 times this year, so that should be a huge indicator that I am definitely feeling NQR!".
I tried to discuss my T3 and T4 levels and the fact that they are not within the optimal range with that Endo. Of course she shut me down. Just another reason to show her the curb.
My Tg/ab is <32 (00.0 - 60.0). I still can't get over the fact that if I had not basically demanded that we test TPO and Tg, I would still be floundering about trying to figure out what's wrong. I am on year two of chasing all sorts of medical weirdness, which for the most part has been inconclusive and has cost me about 9K out of pocket (my insurance has billed out over the insane amount of $67,000 between Jan 1, 2014 and today.). At least I have some answers and I am getting closer to others.
Oh! I really like your suggestion about splitting up my WP! Excellent idea! Perhaps taking it in one chuck at 6:15 am is why I am fatigued later on? I am finding it a bit of a challenge to take the WP at the optimal time, in consideration of meals and vitamins. It should be taken 30 min to 1 hr prior to meals, or 4 hours after meals, correct? I am challenged because I eat little meals all day long. I usually roll out of bed, make coffee, eat, walk on my treadmill, then go outside. Lately I've been taking my WP as I get out of bed, drink water, and watch the clock until I can eat something.
I also typically take a bunch of vitamins with my meal, since I am usually out the door and gone for 6 or so hours. Are my MTHFR vitamins contraindicated to WP? What about Ester C, selenium, kelp? I feel like these are the critical ones that I need in the morning.
What about NSAIDS and WP?
I am hoping to make it the walk in clinic today and get the iron panel. Are there any other tests that you'd recommend that I get?
Yes, I was thinking all signs point to Hashi's....chronic EPV, etc. You know, I went to the that Endo appointment because my PCP had referred me, and I went in thinking, "maybe I can learn something I don't know.". What I got instead was a total head spin! I left her office feeling so numb and deflated, yet I head/palming over over her opinions and attitude. Yes, all things considered, I had no choice but to introduced her to the curb. ;-)
I do believe I have some symptoms of hypo, and some of hyper. The Endo examined me and said, "Well, you look great! You look very fit! Do you work out a lot?". To which I grimaced, as what I feel like on the inside is what I am concerned about! Me: "I own a farm. I have been so fatigued and in pain, I am dragging myself around doing farm work on a daily basis. Between all of that, I've only managed to ride my horse 6 times this year, so that should be a huge indicator that I am definitely feeling NQR!".
I tried to discuss my T3 and T4 levels and the fact that they are not within the optimal range with that Endo. Of course she shut me down. Just another reason to show her the curb.
My Tg/ab is <32 (00.0 - 60.0). I still can't get over the fact that if I had not basically demanded that we test TPO and Tg, I would still be floundering about trying to figure out what's wrong. I am on year two of chasing all sorts of medical weirdness, which for the most part has been inconclusive and has cost me about 9K out of pocket (my insurance has billed out over the insane amount of $67,000 between Jan 1, 2014 and today.). At least I have some answers and I am getting closer to others.
Oh! I really like your suggestion about splitting up my WP! Excellent idea! Perhaps taking it in one chuck at 6:15 am is why I am fatigued later on? I am finding it a bit of a challenge to take the WP at the optimal time, in consideration of meals and vitamins. It should be taken 30 min to 1 hr prior to meals, or 4 hours after meals, correct? I am challenged because I eat little meals all day long. I usually roll out of bed, make coffee, eat, walk on my treadmill, then go outside. Lately I've been taking my WP as I get out of bed, drink water, and watch the clock until I can eat something.
I also typically take a bunch of vitamins with my meal, since I am usually out the door and gone for 6 or so hours. Are my MTHFR vitamins contraindicated to WP? What about Ester C, selenium, kelp? I feel like these are the critical ones that I need in the morning.
What about NSAIDS and WP?
I am hoping to make it the walk in clinic today and get the iron panel. Are there any other tests that you'd recommend that I get?
Hi Red_Star,
Thank you for your response. Funny you mention anemia. I was just researching megaloblastic and pernicious anemia. Since July 2014, my MPV has tested high norm, above high norm, high norm and the last test June 8, high norm. My MPV has been low several times during the same period. My BUN is consistently high (not one doctor seems to be concerned about this. I have a water bottle with me at all times, of which I consume regularly.). Recently found out I also have what I guess what could be considered to be Chronic EBV? I've been tested twice, 6 weeks apart. First EBV VCA IgG - 554 (0 - 21.9) and EBV Nuclear Ag - 593 (0 - 21.9). Six week follow up at different lab revealed off the charts positive for both.
As an effort to solve this puzzle and to feel better, I mentioned all of the above to the Endo. She was not concerned.
I don't know that I'd save that I have heavy periods. Actually, what would you consider to be heavy periods? My cycle is still staying pretty true to being 26 days, and my periods last 3-4 days. For the most part they are light, but there are usually two days that I would consider to be more on the heavier side.
I s the Endo correct or is the ND, in regards to my thyroid? With my TSH, free T3 and T4 being low, yet TPO is super high, do I have Hashi's? Should I be taking thyroid meds?
Thanks!
Thank you for your response. Funny you mention anemia. I was just researching megaloblastic and pernicious anemia. Since July 2014, my MPV has tested high norm, above high norm, high norm and the last test June 8, high norm. My MPV has been low several times during the same period. My BUN is consistently high (not one doctor seems to be concerned about this. I have a water bottle with me at all times, of which I consume regularly.). Recently found out I also have what I guess what could be considered to be Chronic EBV? I've been tested twice, 6 weeks apart. First EBV VCA IgG - 554 (0 - 21.9) and EBV Nuclear Ag - 593 (0 - 21.9). Six week follow up at different lab revealed off the charts positive for both.
As an effort to solve this puzzle and to feel better, I mentioned all of the above to the Endo. She was not concerned.
I don't know that I'd save that I have heavy periods. Actually, what would you consider to be heavy periods? My cycle is still staying pretty true to being 26 days, and my periods last 3-4 days. For the most part they are light, but there are usually two days that I would consider to be more on the heavier side.
I s the Endo correct or is the ND, in regards to my thyroid? With my TSH, free T3 and T4 being low, yet TPO is super high, do I have Hashi's? Should I be taking thyroid meds?
Thanks!
To quote Unicef: "Up to 4 to 5 billion people may suffer from iron deficiency and an estimated 2 billion are anaemic."
If the body's metabolic rate drops bone marrow has difficulty producing red blood cells so this is why anaemia is a possible symptom of hypothyroidism. Hypothyroidism also lower stomach acid which leads to the malabsorption of nutrients including iron. Also a possible symptom of hypothyroidism is heavy periods and this is a cause of iron deficiency. I don't know if your thyroid issues are that bad yet to affect iron levels but it is worth having a full iron panel done just in case.
Take note of your symptoms. If you are taking too much thyroid hormone you'll start to show symptoms of hyperthyroidism.
If the body's metabolic rate drops bone marrow has difficulty producing red blood cells so this is why anaemia is a possible symptom of hypothyroidism. Hypothyroidism also lower stomach acid which leads to the malabsorption of nutrients including iron. Also a possible symptom of hypothyroidism is heavy periods and this is a cause of iron deficiency. I don't know if your thyroid issues are that bad yet to affect iron levels but it is worth having a full iron panel done just in case.
Take note of your symptoms. If you are taking too much thyroid hormone you'll start to show symptoms of hyperthyroidism.
Forgot to add: I have not had an Iron panel done yet. I expressed my concern for these tests yesterday with the Endo. She said that she did not think anyone could possibly be iron deficient in this day and age.
This just doesn't sound right, as she has no idea about what I am consuming on a daily basis. I think I'll order my own tests, as I don't believe in guess and prefer to be safe than sorry.
This just doesn't sound right, as she has no idea about what I am consuming on a daily basis. I think I'll order my own tests, as I don't believe in guess and prefer to be safe than sorry.
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Many doctors/endos don't test antibodies, because they assume that anyone with hypothyroidism has primary hypothyroidism/Hashimoto's, but in your case, the endo doesn't even consider you hypo, so of course, she wouldn't have tested the antibodies... chances are, she wouldn't have tested Free T3 and Free T4, either!!
While your thyroid hormone levels are not "horrible", it sounds as though you do have some symptoms of hypothyroidism, and I always figure it's best to go ahead and start on medication before symptoms get out of hand. You're not "ruining" your thyroid... Hashimoto's is going to do that for you, regardless, so you might as well take the medication and try to alleviate your symptoms.
Most of us find that we feel best with FT4 about mid range; yours is slightly short of that at 42% of its range. In addition, most of us feel best with FT3 in the upper half to upper third of its range; yours is considerably short of that goal, at only 37% of the range. It's understandable why you'd have symptoms.
It takes the T4 in the Westhroid 4-6 weeks to reach full potential in your blood, so testing again before that is pretty much a waste.
Some of your other issues may fall into place once your thyroid hormone levels are optimal again, but I don't think you need an endo with a "do nothing until you're deathly ill" attitude, either. This seems like a good time to kick that endo to the curb.
Once a person has been diagnosed with a thyroid condition and taking optimal doses of thyroid hormones, it's not the least unusual for TSH to be very low or suppressed... my own TSH has been at < 0.01 - 0.01 for the past 7 yrs and I've never been hyper, once. TSH is irrelevant, at this point.
Are you splitting the Westhroid into more than one dose daily? Most of us on a medication that contains T3 find that splitting the total dose into 2 equal doses (one first thing in the morning and one around noon) works best because it keeps FT3 levels more stable throughout the day.
Also make sure you're not taking vitamins/minerals such as calcium, iron, magnesium, etc within 4 hours of your thyroid medication, as they will affect absorption of the med.