Hit a brick wall???

[yorkylass]

Hi everyone, I was diagnosed with Graves disease a year ago. The first 5 months I was swinging from hyper to hypo all the time (apparently sensitive to Carbimazole). The I switched to PTU 7 months ago.

I started PTU in March and my TSH was 0.03 (0.38-5.5)

May  TSH 0.2 (0.38-5.5)    Free T4 12.2 (11.5-22.7)    Free T3 5.1(3.5-6.5)  
At this time I had dizziness, pulsating feeling, constipation, muscle cramps,hair loss(by the brush full), extreme tiredness, memory and concentration problems.

June TSH 0.34     Free T4 13.2    Free T3 4.3
At this time I was feeling slightly better, but, room for improvement, still tired, but,not as bad, occasional dizziness. Hair loss stopped completely.

Started with all May symptoms again, hair loss got really bad, 10 days of consipation followed by 10 days of the runs.
I requested a blood test.
October TSH 0.73    Free T4 12.3    Free T3 4.6

I'm told everything is fine, but, as I see it, it must be when my T4 drops my symptoms start up again.
I've been on the same dosage of PTU for the whole 7 months.

I feel like I've hit a brick wall, my levels (apart from my TSH) are almost identical back in May to the present day.

My endo and my gp disregard my symptoms because my levels are in range.

I've took it upon myself to reduce my PTU from 100mg daily to 75mg. In hope that my Free T's will rise a little and I'll be less symptomatic. I'll inform my endo when I see him on the 12th Nov.

Am I doing the right thing?

Has anyone got any advice for me please? I feel stuck. 7 months and same labs, same symptoms. Please help.

Yorkylass

[stella5349]

HAve you talked to yur doctor about more of a permanent solution like RAI? I don't want to push the thought of killing your gland off - but just looking to see what your doctor has suggested or how bad the Graves is rearing up on you?

[yorkylass]

Well 4 days into my reduced dose and I'm having hyper symptoms again.

Last night while making dinner I had a funny turn. Shaking, dizzy and all hot and flustered.

This morning I woke up with an itchy rash on my back, a symptom I had prior to diagnosis which cleared up as soon as I started taking meds.

I guess I must go back to 100mg daily.

Is it possible to get these hyper symptoms 4 days into reducing my dose by 25%?

Thanks Yorkylass
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