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571680 tn?1219584014

I'm in isolation after RAI

Well, it finally happened.  I could not get on the forum because of problems with my password.  Lots have happened.
My Endo is on medical leave, so I have no Endo and had no prescription until yesterday.  I finally got the "pill."   At the hospital, they gave me the RAI-131 and instructions, so I'm in complete isolation for three days and semi-isolation for a week.  The Endo at the hospital gave me a prescription for Levothyroxene 125 to tide me over until I get a new Endocrinologist.  I haven't started it yet.  I thought I'd wait until tomorrow.  What I really want is Armour, but I need my own Endocrinologist to get that, I think.  I tried to get in touch with Stella, but I was having technical problems.  I hope everyone is fine.  I've been thinking about all of you and how helpful you've been since my TT on July 18th.  Good luck to Stella with the Armour page!  I hope Utah is doing well.  I missed you all.
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571680 tn?1219584014
I did get a good laugh from your soccer joke.  This isolation could be a lot worse if I didn't have such a great family.   My husband has been a blessing and I am fortunate to have a room with a TV, computer, my own bathroom and many other amenities.  I'm not bragging, just trying to be positive and grateful.  While I'm at it, thanks, Laura, for taking the time to write such a nice message.  I live about 45 miles from NYC.  Actually, I'm quite near the University of New York, Stony Brook, which is in Suffolk County on Long Island.  It is just that I have HIP health insurance so I am limited in the doctors I can see under my coverage.  It is also vacation time for my GP, but I'm sure this will work out also.
Helpful - 0
499534 tn?1328704178
Just thought I would check in with you and see how you are. Just remember if you see a soccer ball laying around, don't draw face on it and start talking to it like tom hanks did!! LOL
I hope that made you laugh.....dont let the isolation get to you. Make sure you do take some kind of meds when they let you. Until you find a doc who will prescribe armour, you need something. Where is the closest city to you and I will help you search. I am from wayne county-newark, ny (between rochester and syracuse) I did a search today for a girl in rochester...a dr i wish was down here in florida...lol
Any help I can give you, just let me know.
Yes this disease has been very tough. I was a corporate go getter....now I am a bed getter a lot. It basically *****! I have been on synthroid and now on armour for conversion problem. Now we are testing my reverse t3 to see if i need t3 only for a while because of possible reverse conversion problem. I just want to feel better. I like the armour...no side effects at all for me. I need an increase again though i am pretty sure. I have hashi's so i go hypo quite often. Now that I have bored you with my story...lol
I just wanted you to know that there are US out here thinking about you. You are not alone and forgotten in there.....isolation will be over before you know it.  Peace to you!!
Helpful - 0
212753 tn?1275073111
Hey I just had my 2nd RAI back in july
If it were me I would take the levo till you can get a scrip for the armour.
I am on levo,200 mcg and I feel pretty good.Been on that since Feb of 2007 when I had my first RAI
I told my endo to give me the thryrogen because I was never going to hypohell again. I am also bi polar as well as throidless so hypo was really intense for me with the depression.
Good luck with you endo search.
Love Venora

Helpful - 0
571680 tn?1219584014
Thanks for your answer Laura.  I always feel sad when I see you younger women suffering with this problem.  At least I was older when they found my problem.  It's just harder to fight back at times.  I guess isolation is getting to me.  I spent the day trying to find a new Endocrinologist.  They either don't take my health insurance or they're booking six months from now.  You've given me an idea about the internist.  I will have to be followed by my primary physician anyway for a while.  I hope you are doing well on Armour.
Helpful - 0
499534 tn?1328704178
Hope you are feeling relaxed and well......just think of this as a needed mini vacation.
It may take you a while to find a doc that will prescribe armour....this is a good time to start doing the searches and writing them down. It probably won't be an endo that will be willing to put you on armour....they are all strictly synthetic from what I see. I found an internist that prescribes mine. Good luck!
Helpful - 0
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