New labs still not feeling great

[toni2251]

Hello
I just received my new labs from a new endo who was not helpful again.
TSH 0.17 (.30-5.50)
T4 1.15 (.76-1.70)
T3 2.7 (1.9-3.9)

I'm taking 88mcg of levoxyl and I was taking about 10 of cytomel but mt doc wants me to stop taking. I stopped taking it and it is hit or miss daily on feeling bad. I know I need a dose increase. Please help.

[flyingfool]

What bothers me is that Your Dr's seem to have no problem what so ever causing you to feel like crap.  Just to see what your numbers stabilize at.

B.S.!  Why should you go through hell just for them to prove a point?  The Dr goes home and feels no different while you go through torture and feel like crap.  How is that OK?

It is common that TSH is suppressed when on a T3 medication.

Look at the FACTS.

When you stopped taking the medication or reduced your dosage you immediately started feeling terrible.  What more evidence is needed????

[toni2251]

Hi
I went to Ann Arbor on Tuesday to see an ob/gyn endo and she was great. She listened answered all my questions and even told me that she did not work with thyroid. Her specialty was diabetes. She said that the next endo I was going to see did specialize in thyroid. I couldn't believe it. She did however want me to stop taking cytomel only because she wants to see how I convert on my own. I have to admit I am so tired I could faint not to forget about the constipation ( sorry). Should these symptoms get better with better labs?  I hope so. Ill have to find out her name because I was so happy she listened I didn't even care what her name was. Wow it takes for ever to find a good endo. Thanks for the info. I'm still curious about my lab work. She says it looks good but she says my t4 meds are to low. She expects no higher than 125 but my labs will tell. Ill keep pushing and we will see what happens. Thanks!

[gimel]

If you still need to find another doctor, would Ann Arbor be close enough to consider?

[gimel]

First thing I would do is go back to the dosage with which you were feeling best.  The clinical response should be all important, not TSH.  Not sure what doctor you can work with to obtain 'scripts and maintain your best dosage, and ignore the TSH.  Probably the prior doctor.  What do you think ?

[toni2251]

Thanks for the info. I still feel pretty bad but not as bad. I feel like in healing. Do you think I need an increase in t4 and the labs were with no cytomel  I stopped probably two days before.

[gimel]

Sorry your latest doctor turned out to be a dud.  I'll keep looking for a good one.  

Are those lab results representative of the time before, or after you stopped taking the Cytomel?

As for the suppressed TSH, that is a common misunderstanding.  Doctors have been taught that TSH accurately reflects levels of the actual thyroid hormones.  In reality, TSH cannot be shown to correlate well with either Free T3 or Free T4, much less with symptoms, which are the most important.  Further, a suppressed TSH does not mean that you are hyper, unless you do have hyper symptoms due to excessive levels of Free T3 and Free T4, which you did not have according to those labs.  There are numerous scientific studies showing that many hypo patients will have suppressed TSH when taking thyroid meds adequate to relieve symptoms.  If you would like links to a couple of those studies, to convince your doctor, I'll be glad to provide them.  

[toni2251]

Also does my TSH number being so low really matter?  My endo says that my TSH SHOULD NOT be suppressed.