Tourette's Cure - Worked for Me

[FNPinMaple]

Dear friends,

I have Tourette's syndrome, or at least 'had' it until about a year ago. While my symptoms were quite severe, I now, with proper care, am completely symptom free.
I have been using an oral appliance that has eradicated my symptoms, the appliance being based off the work of Dr. Anthony Sims    http://www.absimsdds.com/
My orthodontic specialist spoke to Dr. Sims, and made a similar appliance for me, and my tics stopped.

I can't believe this, and didn't believe the videos on Dr. Sims website when I saw them, but PLEASE check it out before you judge this.

To give you an idea of the extent of my Tourette Syndrome experience, I viewed a video of myself recent, where I would tic on average 6-8 times in 2 minutes.
Which, in a 16 hour day would be 2,880 tics, a not-so-insignificant number.
Furthermore, my tic (main one) was a serious jaw-wrench, which led to severe headaches, intense lacerations inside my mouth (had to have teeth taken out to stop the deep lacerations), and a loud cracking in my TMJ.

Since settling in with this appliance, I might have 1 in a whole day, and often never, and all the internal "neurological storms'' that can come with tourette syndrome are now gone.

Here is a paper on the treatment:
http://www.tmjstack.com/casereport.pdf

reply with any questions.
This has been a dream come true for me.

with love, and empathy,
Rob

[fuzzy673]

Someone else coming out with a load of crap trying to make money, do you really think people with tourettes don't know any better?

[FNPinMaple]

MY RESPONSE:

Dear friend,

I appreciate your desire to protect people from scams, honestly. I also understand the frustration, and the disbelief. I actually felt somewhat angry when I encountered the website, which was given to me by my orthodontic specialist.

I have no connection with Dr. Sims. He lives in California, I live in British Columbia in Canada. I am not an orthodontic specialist, and cannot make the appliances. I have no means of making money of this, and don't even know how I could, to be honest.

I expected people to get angry, to not believe me, and even to insult me, for how could a physical appliance help what is taken to be a neurologically-based condition. I myself went to the University of British Columbia Movement Disorder Clinic for years, have taken multiple drugs for TS, and thus had a hard time believe it could even be possible.

However, as I did, prior to accusing me of being a charlatan, one who is attempting to somehow make money off of people's sorrow, please read the paper that I linked, and view the videos on the orthodontist's website.

Then, after viewing and reading, and considering, please feel free to ask any questions, and find out if I am trying to "scam people for their money" and how, and then feel free to post all over the internet that I am doing this, and how I am doing it. You would fully be in your right to do so.

Yet, if you choose not to actually investigate it, please do not prevent others from doing so, as it may truly improve their quality of life.

I wish you well and welcome any questions or thoughts.

Respectfully,
Rob

[FNPinMaple]

From other correspondence between 'Fuzzy' and I, which I thought would be important for others to read.

Here is one of the main papers (this was posted above)

http://www.tmjstack.com/casereport.pdf

From Google, you might want to read:

http://www.************.com/articles/Sims_and_Stack_Explain_How_Drug_Free_and_Surgery_Free_Treatment_of_Tourette_s_Is_Possible_a1767.html

In addition, if your 'consultant' is a medical professional of the classic variety, he should have access to Dr. Sims other published paper on the appliance. Name and abstract below:

An intraoral neurocranial vertical distractor appliance provides unique treatment for Tourette's syndrome and resolves comorbid neurobehavioral problems of obsessive compulsive disorder.
Sims Anthony B; Stack Brendan C
Medical hypotheses 2010;75(2):179-84
8865 Stanford Blvd., Suite 131, Columbia, MD 21045, United States. ***@****

Abstract on
Evidence has existed for many years that individuals with Tourette's syndrome (T.S.) have associated neurobehavioral comorbid disorders. Though these disorders are not necessary to give a definitive diagnosis for Tourette's syndrome, many patients present with clinical signs of additional problems. Many believe that Tourette's is a neuropsychiatric disorder with symptoms originating from the brain or basal ganglia. Some of these coexisting conditions include attention deficit hyperactive disorder (ADHD), obsessive compulsive disorder (OCD), depression, sleep disorders, and enuresis. We hypothesize that an intraoral device can be utilized to eliminate these associated comorbid neurobehavioral signs and symptoms. Use of this device, called a neurocranial vertical distractor (NCVD), results in the elimination of unwanted neurobehavioral disorders via normally existing trigeminoreticular fibers and tracts (Fig. 1).

Respectfully,
Rob

[takamine]

hey FNPin MAple
  i see Dr.stack in Washington, he made me an appliance. it definetely works. my only problem is flying across the country to see him for consultations. who do you see in california? i also live in BC by the way, so california would be a much quicker trip for me. any info on regarding contacts for dr.simms or for your specialist would be greatly apreciated.

[KileyAnn]

My husband has one of Dr. Stack's appliances.  His tics have decreased by 90% and he's only had it for 2 weeks!  We are very happy with the results.  Yes, it's a pain to fly from Iowa to Virginia, but it's worth all of the time and money.  My husband is going to try and see a local tmj specialist to do the maintenance on his appliance.  Hopefully he doesn't mess it up!  Glad others have seen improvement in these oral appliances!

[KileyAnn]

My husband had one of Dr. Stack's appliances and his tics are reduced by at least 90% and it's only been 2 weeks.  We are from Iowa and hope to have a local tmj specialist do maintenance on his appliance but will definitely continue to make the trip to Virginia if need be.  It's worth it.  When we were in his office a 13 year old boy was there with severe tourettes.  We saw him the next morning after his appliance was in and his tics had already decreased by 40%.  Dr. Stack was adjusting his appliance to get even better results.  it's really quite amazing.  

[liza0727]

I have a grandson Anthony thats 14 and with the same problem I to found Dr Stack's videos and was amazed We tried the stick method first and it worked Our only problem was Dr Stack was to far for us to travel so I called and did some searching for myself for a Doctor around us After many phone calls I finally found one that was willing to try it.God works in small miracles.Anthony has had he's 3 rd visit and he has improved 90% This is no fast money deal.This is no scam this is real.Don't put down someones comment if you don't no the facts.I found this comment after I already made a post about Anthony the other day.Those who know about this procedure will only tell you that nothing but good has come from it.

[Juicebox75]

There is another dentist by the name of Gary Demerjian in Glendora, California. He, Dr. Sims and Dr. Stack are in constant contact with each other. his information is :

G Gary Demerjian, DDS
175 N Pennsylvania Ave # 4
Glendora, CA
91740

Phone: [phone]

[Juicebox75]

There is another dentist by the name of Gary Demerjian in Glendora, California. He, Dr. Sims and Dr. Stack are in constant contact with each other. his information is :

G Gary Demerjian, DDS
175 N Pennsylvania Ave # 4
Glendora, CA
91740

Phone: [phone]

[marydp]

Try Dr. Pouchet  14333 104 ave Surrey 604-496-5169

she is a student of dr stacks and is in contact with him often

[strictly419]

Anybody know of any Doctors in the Ohio area that do this?

[Beth3854]

Hi, i'm from Massachusetts. Does anyone know any other dentists/ doctors that do the TMJ appliance for Tourettes other than the ones mentioned? I'm looking for a doctor closer to me. Can someone tell me the costs they paid for the appliance?  Which doctor did you see?

I called Dr Stacks Office today and his office said it would cost between $4700 to $6300. The thing that has me worried is that it isn't guaranteed and its alot of money to throw away if it doesn't work. (especially as i don't have that cash available)  I have Tourettes since I was 7 and i'm almost 40. It definitely got worse as I got older.

Please help. Any info would be appreciated.

[Lorenrose]

Rob can you please contact me at 562-547-1874.  I am very desperate trying to get help for my daughter who has Tourette's.
thank you.

[smf11540]

Does anybody know of any Dr's in Texas, that do the TMJ Appliance for tourettes?

[Jschubert]

How much did this cost?

[Jschubert]

How much did this cost?

[Lorenrose]

Hi I have a question. Have you been able to get your grandsons off of meds since he has the appliance. I have a daughter on meds but Dr Demerjian said he does not recommends taking them off meds so my question is what's the point then isn't the home idea to get off meds with this appliance?

Thank you.
Lorenrose

[Lorenrose]

I took my daughter to see dr Demerjian but he said he didn't recommend taking her off of the meds. I ask isn't that the whole point.

[FNPinMaple]

Hello there,

Sounds odd to me, honestly. My understanding is, as well, that the whole point is to be able to manage the symptoms of tourette's without medication.

I had gone off medication for some time prior to encountering the appliance, which was horrible as I hadn't been off meds in years.

However, while I would have had to go back on medication, as it was getting completely unbearable, I now do not take any medication at all.

The cost, in total, I can't quite say. There was a monthly payment to be monitored by my orthodontist, which was $50/month for one year.
Then, the appliance went through some failures - cracking and such - and I had to then have it repaired.

In the end, with my coverage through medical/dental, the initial cost was not that high, maybe $350, but then there was the monthly, and repair, costs.

I am currently awaiting contact with my Ortho specialist so I can get a more permanent piece (the one I have is large and moveable). We were waiting to see the effects longterm, etc. before this step would be taken.

fondly
R

[designsbymyra]

My daghter has had sezuires for 11yrs and is now 31yrs old. My friend who is a Dentist, Ortho and TMD/TMJ specialist is now treating her with the appliance you re talking about. The first day she wore the appliance we noticed a huge difference in her motor skills, speech, etc. If anyone in Oregon is dealing with sezuires and they tell you nothing is wrong with you...PLEASE!!!!! look into this treatment. We are seeing Dr william Lee willis in Roseburg Or. He is giving my daughter her life back!

[designsbymyra]

Call Dr william Lee Willis in Roseburg Or.[phone]. He is on Oregon but he will tell you what t look for in the Dr's credentials

[designsbymyra]

I agree! My daughter is being treated in Roseburg, Or and her quality of life has impoved greatly

[designsbymyra]

See Dr william Lee Willis in Roseburg, Or. 51-672-4899 he is wonderful and he is treating my daughter that lives in SC

[designsbymyra]

541-672-4899 sorry the number was not complete