i had a livertransplant at 6 months old i am now 25 its very important that you take your meds everyday when told to because your white cells can kill off your red ones it sounds scarey.... your liver could reject and you could be in serious trouble.
The research I saw said 20% of all liver transplant patients do not need immune suppression meds.
However, there are people who have stopped taking them who land up with jaundice and in the ER.
Ideally have regular labs to see how well your doing if you decide to wean off.
I tried once, my labs rose above normal and I began taking them again.
Now, over 6 years out, I'm very slowly weaning off and my labs look great.
It also helps if you stay in touch with your body, have a positive attitude, be aware and patient.
089~ if you've done great for over a year, I don't know why you wouldn't share it with your partner and doctor. My doctor knows what I'm doing, hasn't given his approval, let me know the risks, but also let me know he has patients who have stopped successfully as well as ones who've tried and failed.
He has to protect himself but once you've already done it, why not share ?
hi i had my transplant in febuary this year i also want to stop my meds i was 26 at the time of the surgery so am still young and healthy my bloods have all been good so far...i want to stop the meds but dont want to go though all of the pain i went through...i was very ill i had 2 weeks tops to live and had a full liver transplant..i hate meds as i have been taking them since i was 13 for a heart problem but have since been told to stop taking them
About anti rejection drugs for Liver transplant,
I stop taking them, cellcept and progarph.
about 8 1/2 years after my transplant.
and so about 4 months later my young wife,
became pregnant !
So I'm a firm believer that the drugs do suppress,
certain bodily functions.
As my surgeon told me certain Doctors and pharmaceutical companies,
are in bed together.
Although my body did except the foreign liver,
In which the drugs suppress the immune system,
So the body can except the new liver!
At any rate I'm still here and about to be a Father at youthful age of 63!
I had a liver transplant in 2002 and for the past year I quit taking my rejection meds and doing great. 12 years now and I've had no problems. Pam
Hello, I wanted to find out more about how is everything going with your son.
My daughter story is very similar and doctors are considering stoping prograf because of the ptld. Any response will be appreciated.