I stopped all medication. Told my doctor who is at Vanderbilt. He told me there is only one reported case in the world that survived. It is a bunch of brainwash from the drug companies. Doc made me go to a psychiatrist. I have not been to a doctor in years and feel great. Doctors need to practice medicine and not follow protocol of drug companies wanting to get rich.
I'm post liver transplant 10 years, take .5mg Prograf twice a day. I have skin cancer rampant all over my body, constant disfiguring surgeries. Now the insurance company is ******* me over on the Prograf, so I soon will be free of this drug. My blood pressure has been uncontrollable, due to the Prograf. Thanks to Blue Cross/ Blue Shield Medicare Part D of Florida, my life will improve or end quickly.
Yes, of course you're right.
I'm watching the research but I'm fine with taking my minimal dosage of prograf:)
I met a man at a support group meeting last week and he is 4 years post transplant. He too is taking .5 in the morning and .5 at night.
He looked wonderful and one wouldn't even know he had been so ill at one time.
I guess I'm thinking it seems a small price to pay (having to take a minimal amount of prograf) to possibly prevent rejection of the donor liver.
Nan
My meds have slowly been reduced. At first I was on prednisone, prograf and cellcept. I was off both the pred and cellcept by 8 months. The trough level for prograf changes the further out you get from your transplant.
Seeing that .5mg is the capsule of prograf they make, I assume it's the lowest dosage possible.
It's always 12 hours apart since it doesn't have a long half life.
I pushed to get off the meds as quickly as was safely possible.
Why take more than we need ?
I just reread your post and saw you wrote .5 not 5 mg. Big difference!
That is such a small amount that I'm wondering why they think you need to stay on it.
Nancy